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    Old 01-15-2009, 05:40 AM   #1
    sammyo1
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    Whats normal post op

    Hey everyone as you can see I am positng alot here.
    Capt & company, as I stated in the other thread I am starting to get alittle concerned I am having some old symptoms progress. My left arm & hand hurt more then right after post op. Also that dang chest & left shoulder. I feel like I am getting alot of muscle spasms which I had on & off before sugery.
    I am alittle concern but am wondering if this is normal. I got some control of the chest area prior to surgery & know I kind of feel like its starting over. I have alot of weakness in my left hand & if I try to grip anything with it I will have sudden zaps of pain along wiht the throat & neck but I am thinking it may be normal.
    I know the surgeon said the pain should not be the same as before surgery but thats what has me concerned. I have some problems with the C4 & 7, the C7 being the worse of the two but he said that should not need any surgery hopefully for years. So dont understand why this is reoccurring. Anyone have some of the same symptoms occur post op & did it improve?
    How about you Capt, do you have anything that you had preop?

    Other then that I am going abit stir crazy on how to keep myself occupied.
    I am ADHD thus meaning more on the hyper side & my daughter is constantly telling me to try to chill out more. I wonder around the house wondering what can I do. I am reading & doing some scrapbooking which is taking me forever to finish on page & alittle TV, not a big TV fan & some puzzle books. I tried video games & my girls said I was the worst they had ever seen. I still may attempt to find a game I can handle, maybe one for kiddies section,lol. What did you all do to keep occupied? This is going to be along recovery. I dont sleep well so I am taking naps alot which is new to me. This is tough as I am used to constantly being busy. Do you all feel the same? I telling myself it will be worth it in the long run. Thanks guys for putting up with me. Sammy

     
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    Old 01-16-2009, 02:28 AM   #2
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    Re: Whats normal post op

    Sammy,
    I have the same zappy feelings on my left side especially in the wrist and thumb. The docs say some of it is from the nerves rewiring or repairing themselves. I remember that this did go away. The muscle spasms are or should be post op related. Remember we just went through major surgery and it will take some time. I think six to 8 weeks before we can tell which is pre and post surgery. I am the opposite of you. I have to make myself get up and walk on the treadmill for at least five minutes. Walking, no walking to do stuff is supposed to help recovery. The circulation needs to flow. I did do something very stupid though, I took down my christmas tree alone. It's fake so I had to take apart rod by rod. I should not have done that at all. I still have lifting restrictions. Are you able to just rest without feeling the urge to get up? What if you downloaded or got a meditation tape and really gave yourself five minutes to fully relax? I have to do it for walking so why don't we do this together five minutes or more of me walking and you fully relaxing. What do you think? I'm scared already.
    PS I suffer from ptsd so I understand other problems.

     
    Old 01-16-2009, 04:41 AM   #3
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    Re: Whats normal post op

    Oh my I am not so sure taking down the tree was smart. Although I understand how hard it is to ask or wait for someone else to do something for you, girl I am not sure I could have handled that. I am worried about this pain going up & my husband is to.
    I am waking up sore as heck. I felt like my neck is swollen or something hard to describe this morning, This collar felt like it was to tight. I think I am moving all over in my sleep. Got out of bed & was walking like I was drunk my balance was horrible. I am not sure if part of it is my lower back but I actually looked like I was drunk.
    yep, sounds like we are a mess. You dont want to get moving & I dont want to relax.
    I am getting alot of the preop stuff back & its scaring me, do you have any of the preop pain or problems? I know its probably different for you but I have times I cant seem to hold my head up like it wants to fall back. Since they modified this collar it feels different. Not sure if anyone else has felt that. I am going to try to relax more as this worries me. My pain level in the morning is up there & I am going between the couch & bed trying to find where I will be most comfortable & move less to sleep during the night.
    Do you have higher pain level since taking the tree down? We are going to have to follow the rules. My surgeon said same restrictions at 2wk post op, meaning nothing.
    Marcia if you see this I will take the "big black sling" any day over this collar. Its driving me crazy.
    Capt, take care & let me know how its going. Sammy

     
    Old 01-16-2009, 07:06 PM   #4
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    Re: Whats normal post op

    Hi Ladies, I know you started this thread to talk about your post op and was reading to see how you are doing. Sammy I am sorry about your loss.

    You both need to slow down and take it easy and follow orders! I don't think that means lifting your arms up over your head taking a Christmas tree down - captnanny.

    Sammy - it is normal to start feeling bad a few weeks after. The anesthetic is pretty much getting out of all your body tissues and things are waking up and starting to communicate with each other. What position are you sleeping in? From how you describe things I think you might benefit from sleeping more upright in a more stable position, like a recliner or similar maybe trying this for a week and see if you feel better.

    Take care - hope your next week improves. NP

     
    Old 01-17-2009, 04:04 AM   #5
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    Re: Whats normal post op

    Hey,
    Yes we both need to slow down and I think I read somewhere that when you are stressed or worried all day the muscle naturally tense up. Wellll, that's what I'm doing to myself as well. The post op pain is bad I have times where I feel like my head is broken. If that makes sense. I also keep going back and forth to my room and couch to see what is most comfortable. I am going on four weeks and I thought some of this would feel better. The pain I felt before was in my neck so it is very hard to tell whether it is from recovery or before. I know that the doc's said that if they did an mri everything in the back area would show a lot of swelling. I can actuall at times say I feel like I have to lay down or my neck will brake. I know it's not true but that's what it feels like. The doctors nurse yelled at me for taking down the tree and yes I am so in pain from it. I learned my lesson I can't believe how sore I am. Last night I went to sleep with my collar on and this morning I woke up with it off. I feel like it causes me more pain at times but I don't know. I definately don't want to do anything stupid again.

     
    Old 01-17-2009, 06:19 AM   #6
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    Re: Whats normal post op

    Hey ladies!!!
    I totally agree!!!!
    Slow Down!!!
    My surgeons instructons were to not lift my arms above my head other then to get dressed or bath, and even then I was told to be very carefu.
    My 2 level ACDF c4-6 was on Sept 3, 2008.
    In the begining I did have some of the pains go away and then return and then go away. It seems as though the nerves were always changing and yes they can sometimes een hurt worse while in the reuvination process.

    I would say that durning the first month after my surery I did very little. I slept a lot and walked slept and walked. When I walked I walked starting out like just in the house. The rest of the time i was on the couch or in my bed with my wonderful and expensive wedge pillow that really made a huge difference in my sleeping and being comfortable...
    I had already started my semester in college so I did hav to attend class but it was only one class and one day a week and I would have to get up a lot because sitting really bothered me.

    Sammy your not that far out from surgery, and although I am not a doc my experience is that the pain is going to be weird and change and do funky scary stuff.

    Capt- I am not sure we have met as i was sort of on a break from the board for a whiel so I am not sure when you had your surgery!!! Your Christmas tree experience reminds me of something I did like 3-4 days post-op...I can laugh now and say how silly of me to think I could or should even be doing what I did but at the time I learned quickly I had no business doing so....What I did was went to one of those grocery warehouse places...My Mom was there and here in my town (she lives about 130 miles away) but she was up taking care of me and helping me...I felt sort of pretty good and was stir crazy and wanted to be out so I went to tis grocery place with her and I was practically cyring when we left....It just was so croweded and people would bump me and it was clearly to much walking at one time....needless to say I did not go on grocery trips for a long while after that..lol

    Another thing you mentioned Sammy was the collar bothering you!
    I had issues with my collar! I was put into an Aspen color and it actually would press on the back of my skull and cause me to go numb and have terrible pain. Not sure you should do this without asking the surgeons office but the nurses and PA told me to take the plastic tabs and bend them some to take some of the pressure off of certain area's that were causeing pain...

    I aslo had gooten a rash and had to treat that too. I actually cut an old t-shirt and put that inside the collar so that was between my skin and the collar and it help alot...

    For me the whole experience right from the minute the accident happened to the second neck surgery in 1 year has been a slow process....Like a turtle race! Some thing just seemed to take forever.....testing different types of conservative procedures...then recovery from the first surgery (posterior Cervical Foraminotomy at C 3-4 and 4-5) that was on Jan 8, 2008 and then in July or August I changed from a NS to an Ortho spinal specialist and in Sept after ruling out any rotator cuff surgery had my ACDF on Sept. 3, 2008.

    The recovery from this surgery just varies from person to person...In the begining I did have some scares and some very doubting moments that things were okay in there....
    Like before surgery I did not have that much right sided neck pain and after surgery about the two month mark I had all of a sudden out of the blue some really excruciating burning on the right side of my neck!!! I was freked thinking something ws wrong in there!! The docs office assured me things were okay and this was normal!! In a few weeks that pain just dissappeared and never to this day has it returned...
    Weird!
    So I will say some prayers for you all....and please try and remember this is a healing process....it takes time and every docs instructions are different and everyone heals differently.
    All my experience and or suggestions are just that and should be checked through your docs office...I am not a doc and can only share with you all how my experience with the two neck surgeries and 4 arm surgeries and two female surgeries I have had in the last 5 years have gone....It is a long long road sometimes...but there is a light at the end of the tunnel...
    Have a good day now and remember to rest as much as you can...
    Sky!!!

    Last edited by Administrator; 01-19-2009 at 10:45 AM.

     
    Old 01-18-2009, 04:02 AM   #7
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    Re: Whats normal post op

    Hey skych,
    I had my surgery December 18 2008. I had a posteriory laminectomy and fusion. I had an ACDF on April 13, 2007 and things seemed to being going fine until I took on two jobs and physical labor. The physical labor part automaticaly started my symptoms again. Apparently I was not totally fused and the upper disc, c2-3, became so degenerated it was causing stenosis and a cyst. My screws came loose so they had to go in and fix it.
    I am excpecting too much of myself this time. It hurts so bad in the back and I know Sammy is frustrated as well. I was told not to go back to school this term. I am trying to get my teaching certificate and was told the stress would just cause more pain and posture problems.
    As far as how I am now, I feel like sammy, frustrated, in pain and wondering if this is really going to work. I don't know what types of medicine you all are taking but that has been a real worry for me, I keep thinking I shouldnt need it as much. But I do. I will say last time I was on so much medication, too much medication and this time I think it's a normal dose, so the doctors say. I just feel like a whimp needing to take it. Ok I'm whining and off the topic don't know how that happened just had to get my med thing off my chest.

     
    Old 01-18-2009, 07:21 AM   #8
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    Re: Whats normal post op

    Capt dont be to hard on yourself as I wonder the same. I am off one of the meds but the other pain med (percocet) I need. This pain is awful in the morning & depends on what day it is how much I need. I really dont do much, ,maybe fold a few clothes. I catch myself before raising my arms for the most part. Sometimes I just forget. I was getting brave but am slowing down. Its tough but we will get through it. I know its early post op for both of us & for you going through the back is worse, we will just have to take it one day at a time. I had less pain after surgery & I guess thats what worries me.
    I am hyper & this is alittle tougher then I thought it would be. I realized I am abit of a control freak with my house to, I am working on that.
    This collar has me miserable & in a bad mood. Woke up with such a headache & neckache & both arms hurting. The dang collar was digging into my shoulder neck area. I have had it & going to try again to see what I can do about it. I am getting no sleep no matter where I try to sleep & since its been modified I dont feel the support in the back of the head.
    Chrissy my husband did bend the back tabs this morning for me. Its just to big. It comes up almost to my entire ears & sits against them. I am constantly trying to adjust it to get it from behind my ears. I also know what you mean about the stores, had my husband take me yesturday & was paranoid about someone bumping into me.
    I use my sisters collar to put on after showering to allow my hair to dry this one takes up the entire back of my head, but my sisters is to hard to wear for long. My pain in going up especially in the mornings & cant help but wonder if most of it is this collar. I understand why you asked me Chrissy what brand of collar I had. This is a small Aspen & I am praying I can get a better fitting collar.
    Hang in there Capt, I feel for you. We are early in the game here & at least we have each other to vent to. God bless, Sammy

     
    Old 01-18-2009, 09:12 AM   #9
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    Re: Whats normal post op

    sammy,just how bad are your balance and gait issues right now? did you obtain your op notes from that surgery yet? i am not trying to worry you even more hon,but considering that you did have actual cord compression pre op and that stupid collar crap is probably causing you to jostle it around just to get it tolerable all the time and of course the flip flop way you tend to sleep,there could be something going on at that surgical site or something shifted?

    i would seriously call your surgeon to report what you have been experiencing since the surgery and make certain to write down what you are feeling and when you started feeling it. this could just be a possible spinal tract trying to 'right' itself from being compressed or something else,but it does sound like the spinocerebellar tract that governs your balance and your gait may have been affected from your spinal compression. i will have to look at my tract sheet to see where exactly it runs in that cord again. this could just be some level of healing or something else too,thats why you really do need to report this to your surgeon hon. i had ALOT of really strange and rather freaky things just play out during that first year after my spinal cord surgery. there are just certain things that occur within that cord during the healing process once it has become affected or damaged too. you just really need to find out exactly what this is from and what your surgeon thinks here. like i said,it could be normal for what you had going on,or it could be something else too. you just may need another MRI to really see whats going on up there right now.

    make a call tomorrow to get the process rolling on getting those very important op notes if you haven't already done so,then call your surgeon to report those symptoms. your surgery was alot more than even your surgeon expected so you REALLY need to know just exactly what he saw and what he did during that surgery. did you have ANY hardware placement or just that normal fusion? please keep us posted hon. but do get that taken care of just to see what your surgeon thinks about this,espescially if it is new. and then keep track of anything else. i do hope you can still get that new collar,this is just so stupid. hang in there sweetie,Marcia
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    Old 01-19-2009, 05:11 AM   #10
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    Re: Whats normal post op

    Marcia, I think its my lower back, I limp or shuffle every morning as it is. That morning was just really bad & to be honest scary. Did not last long but I did think what the heck now, you know. I am one cranky lady. I have a PM appointment today so I will see what he says.
    I have experianced more pain since this collar was modified, not sure if its related.
    I hate to ask again but can you explain to me how your collar fit?
    Since this one was modified it feels like the back is not supported. It comes up to cover almost my entire back of the head & as I said before touches both ears. I cant tighten it so the chin sit upon it or the plastic part is to tight on my throat. I still feel like its swallowing me up.
    I have put off dealing with it but am getting no sleep. I am peeved at the guy who modified it, he thinks I expect it to be comfortable & said thats not going to happen. I realize that but I know its just to big & thats that. I going to see what the insurance says today. I know I am terrable in my sleep, I keep raising those dang arms as usual & cant get comfortable at all. As you can see I am still a freak. Honestly between loosing my sister & all of this I struggle with feeling depressed most days & am trying hard to just fight this bad mood. I can tell you this collar has alot to do with it. I am forever tugging on it or moving it away from my ears or adjusting it. It feels to tight at the sides & to loose every where else & I am clueless as to how its suppose to fit, but honestly I cant see myself going even one more month in this thing. So I have no choice but to try again to fight for a new one. I looked up the collars online but it did not tell me much. Just from what I have heard here seems like I am not the only "petite or small" women who had a problem with getting the right size collar. It all comes down to money, noone wants to pay for another. Based on my surgery date the medical supply could have exchanged it but chose not to. I have given it a try to see if I could get by with it but forget it. I'll let you know, sorry for asking again about the collar but I cant figure out what the right fit should feel like. Thanks & godbless, Sammy

     
    Old 01-19-2009, 11:37 AM   #11
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    Re: Whats normal post op

    Hey Sammy,
    First off I am not sure I new of your sister's passing so I want to extend my deepest cindolences..Hugs

    About the collar, I am not sure what brand you have, but Idid feel like mine was causeing me lots of trouble and as if I was swimming in it as well. I called and complained alot...lol.
    I did have to have some adjustment made to my collar .... it was and aspen. There are other types of collars out there and maybe if you can try a differnet one that would suit you better.

    I also agree with much of what Feelsbad has stated about the healing and the possibility it could be something else...
    I really do think that calling and letting the surgeon know what has been going is something I would do and I too think marcia is right on to suggest that you do so.

    I so feel for you hon...This has jus been a long long road!

    Even though I generally overall feel better there are some pains that crop up and i get concerned that there is new issues happening or something going on with the hardware???!!!

    Right now I am having a bunch of pain and I think it is because I had to get into a weird bending osition to look at the serial number on the wireless router box for the internet and I immediately felt something pain wise and it now since has not gone away....it hurts in my neck and it is pretty bad...

    Like you and many others we so want to feel good right away and I for sure have to say this is such a long road for me personally and for you with the many differnet things you have had going on...I just keep moving along hon at that turtle like speed..lol
    I am praying for you hon and call the doc just for peace of mind!!!! I would rather bring it to there attention then to leave it unsaiid....'
    Sof and gentle hugs..
    ps Captnanny
    I feel for you too and totally understand....i will keep you in my thoughts and in my heart...
    I too and having a not so great day...On top of the added pain flare i have some emotional stuff going on and a cold to boot...so such is life...coming on line and supporting you all is helping me to deal with and handle my own "self issues"
    have a better day all!!!

     
    Old 01-20-2009, 04:59 AM   #12
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    Re: Whats normal post op

    Sky, yep its an Aspen. I have been up all night with this thing. It digs into my shoulders, where it meets the neck or around that area. There for causing my neck/shoulders to hurt & ache & at times it will bring on a headache. I am going to have to try to sleep in the recliner again. I have had it modified once, perhaps I'll go back. thank god its not just me. It did take some pressure off the collar bones modifying the front & not the back made me feel like a lost some support in the back.
    I would not say a word it it was just uncomfotable but its painful.
    My husband was so mad yesturday he called the office again but no response. The lady was rude as all get out & told him alot of surgeons dont even use the collar, my husband said this one did & its causing problems. She said the aspen was used for everyone else & he told her I am pretty small compared to alot of people.
    She hung up on him, boy was he mad.
    I'll have my husband bend the tabs in the back again. Did they modify the back on yours to & what size did you have? How far up the back of your head did it come & did it touch your ears? I am trying to figure out how its suppose to fit. Sorry for all the questions but when I see my surgeon I want to know as much as I can about the proper fit. I am not trusting the med supply who has changed their opinion soon as they found out the insurance would not pay for another one.
    I honestly dont like to complain (thats why I come on here,lol) & if it was only going to be in it one month I would just put up with it, but up to 3mths in this. I have to take my meds as much from this collar as I do from the other pain & thats the honest to god truth.
    I am done fighting the surgeons office over it, it just causes more stress. I'll just have to deal with it but I do plan on telling my surgeon who I really like that everyone said I should have been measured, I just dont want anymore pain, 4yrs of it is enough.
    I fought taking my pain med during the night as I dont want to increase them.
    This is going to be along journey. I am optimistic but frustated. Thus far my fingers seem to be feeling better & still some pain but better.
    Be careful Sky, you have really fought hard to get to where you are & I so want you to get all that you want, so take good care. God bless, Sammy

     
    Old 01-20-2009, 05:54 AM   #13
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    Re: Whats normal post op

    Hey Sammy,
    Today after I go to PT I will take out my collar and look at the size.
    One thing I want to ask is did the people in the docs office show you how to take it on and off? Did they tell you do not take both sides off the first time you change pads (you should have gotten two sets of pads) this way you are able to make sure you put them back together correctly. I will check my size.

    I have a slender neck and small head but I think I am taller and much bigger framed then you.

    Let me see if I can answer some of your other questions

    The size part I think was small but will check. The collar did come up pretty far in the back of my head and cause pressure in the back of my head...my head would go numb on the scalp sometimes... Yuck or casue me a head ache!
    As far as modifying it I was uncomfortable and at the first check up the gal from the back office showed me how to bend those plastic tabs in the fron and back and all around on the area's that had tabs and caused pressure....

    Like I said before it did go up the back of my head pretty far and almost covered the very tips of the bottom of my ears...say I wanted to ware dangle earrings..lol....they woudl have to hang over the edge of the collar...

    I had to continually keep adhusting those tabs to get them to become a bit more flexable.

    I am thinking somewhere in some post you said how you have a tiny frame and I am wondering if the collar is just flat out uncomfy or it truly is a bit to big for you and maybe the biggest child size one would be more appropriate..

    But I do want to tell you I struggled with the collar for about the first month to get it to be more comf...constantly bending the tabs at the pressure points as the Ortho's office showed me...

    I also had pain from the collr on my cheek bones or the Mandible if you will....The constant pressure of my chin setting in that cradle of the collar was pain-ful and annoying...
    Then I got a rash under the collar in the front! it was caused from the oadding and moisture and I ended up cutting a piece of T-shirt materia and using that under the collar as it was easier on my skin. I ended up having to go into the docs offie for that and was then told to get some Benydril for the rash and use powder ...it went away and the T-shirt I kept there because it did feel smoother and easier on my skin and kept that little hile in the frint of the collar from diggin into my neck!!

    That's about all I can say for that collar and I wore mine for way over the inteded 6 weeks I think it was 9 weeks and then had to sort of wean off of it..because my head would get tired...

    Hang in there Sammy. I just remember the thing being uncomfy period! I hope today is better....keep working those liitle tabs into a softer better position for yourself...it takes some time with the bending to soften them and get them supple enough to stay wear you wnat them...I think I was always fiddling with them.,,,,
    Here's to better days,,
    Wish me luck I have a myo-facial release appointment early this morn and my first day back to scholl since last semester...
    Oh I gat an A last semester in my course...not a science course but at least it was a good grade considering the surgery and all....
    ~~gentle Hugs....
    Sky

     
    Old 01-20-2009, 07:13 AM   #14
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    Re: Whats normal post op

    Thanks Sky, Mine comes up to almost the entire back of my head & the pads run into the ears. By know we know its just to big & Everyone who I have asked said with my size I should have been measured pre op. I could live with it if the dang thing was not contributing to my pain. I will take your advice & just keep bending the tabs & if anything take it back in & let them modify it. Yes I have changed the pads but funny you should mention it the my chin is just starting to feel irration skin wise so I will try some tshirt material & maybe some extra padding. I am not happy but what can I do. My husband is laid off or he said he would just pay for a new one. I will try to do somethings different today, the area where the shoulders & neck meet is so painful & that is where this collar sits. Both arms are to sore to move to get in the shower this morning. I stay in the shower collar abit after but its not any better. I have learned a lesson any more surgerys where I'll need devices I want measured first. Heck I can buy shoes out of kids department & clothes. I am just not your average small, like Marcia, whom I believe is even smaller then I.
    I will be spending more time in bed or the recliner & maybe this is gods way of slowing the hyper side of me down,lol.
    Good luck with you therapy, must be nice to drive yourself, I cant wait to drive again. Sammy

     
    Old 01-20-2009, 08:43 AM   #15
    feelbad
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    Re: Whats normal post op

    okay sammy. JUST for you,i am as we type actually wearing my miami J, just to see how this really is for me and my neck? i also did a G on the aspen collars and i can totally see how if you do not have an exactly perfect fit, it could cause you problems. it looks just like another brand called 'stiff neck" that is totally ment just for short term and no long term wear. even the pics of people wearing that aspen just for that pic are way too big on some of them. it looks to me more like a trauma collar? and not a good collar to have to wear for a good length of time. that philly is also a trauma collar. they are considered more trauma just becasue they are much easier to place on a trauma victim who is 'down'. since it lies flat(the aspen) it is also easier to store in anyones rig too. this sucker looks to be just horrid really for anyone to have to wear any longer than having your c spine cleared post accident. more short term vs long term like post op?

    with the aspen that i can see vs my miami j, that "fit" within your individual neckspace has to come exactly between your shoulder(base of neck), and UNDER your chin. and not above it,or your ears. i had the same "numbness' issue that sky did on the back of my head with that dang philly the first go round but did not have that with my miami. that aspen just 'looks' way too 'straight' to me for any real comfort too. the thing is,any collar is really suppose to give stability,but not be so uncomfortable that you have to constantly move it around,or it just is actually torturing you. it should be at the very least 'tolerable' thruout your day,you know what i mean? in other words,you should at elast be able to "get used to it". i am sitting here,and put this sucker on about an hour ago(just for you hon and no one else) and it feels not totally comfy but i am not feeling anything digging into my shoulders and nothing is actually touching my ears either,and that chin area is ALL under my chin but comfy. it is for the most part,tolerable and livable,not painful in the least. that is how your collar should just fit hon,tolerable. if this was indeed the right fit,your body would have somewhat just accomadated it by now too. it just would not be as noticable as it currently is.

    what you have been describing is not by any means,tolerable. you just have to obtain a better fitted collar hon. i would really work on your surgeon and really tell him just how really totally uncomfortable you are right now,just where the worst areas are. if he can somehow order this for you, because it IS compromising your surgical area and the outcome,that may work. i did notice while looking thru collars that there are places that have them for under 100? some even less than that. if you could somehow just get a miami j peds, i know you would feel that difference as soon as you placed it on around your neck. if you can find pics of the miami vs the aspen,you will know what i mean. right where the back and the front come together with the miami, there is a space that drops down right where your ears are,the collar for me does not even come close to touching them with this thing. any good collar will also come up kind of high on the back of your head,at least around the base of your skull? it should be rather "cradled" then come up the back of the head some. that is exactly how mine is right now.

    one big thing that i am concerned about for you,and this would totally depend upon how that collar feels to you? is if it(the areas between the base of your neck and your chin) is feeling "overly stretched" like too pulled up,it could also be pulling the fusion site so those bone ends are not fully up against that bone graft so they can attatch themselves to each other? in order to just fuse,those ends have to be touching and kind of tightly pushed into each other for the best possible fuse.

    one way or another you just need a much better fitted collar. it IS in your best interest to. but you already know that. i would just work on your surgeon HARD or see if you can find the miami j peds online? you just have way too much other crap to deal with right now and your collar should not be one of those things. your surgeon can move mountains for you if he chooses to. they do have some pull with the orthotics places and other certain people like your ins co too? if HE requests a new collar for you personally to them, that would be a huge thing he could do for you. if this is termed an absolute medical need for you,that kind of changes things a bit with them. this just should have been done right from the very beginning for you and it obviously was not done,at all. from what i could actually see with the aspen,i really cannot imagine just how they realistically could have 'modified' this thing in any ture way that would be enough to rid you of the problems you are having. i do wish you soo much luckwith this hon and hope your surgeon will choose to help you. this just isn;t right and needs to be corrected. okay,i am taking off that collar now. the one thing i did notice while wearing this thing again for about an hour is that it should be holding your neck enough that when you would like normally turn your head,your upper body should be turning too,you know what i mean? if its not,that is just another sign that the collar is not tight enough inthe right places. you should have some amount of 'play' with it but not enough that you can simply move your whole neck without your upper body having to move some too.

    good luck sammy,i do hope you can get this changed out very very soon. hang in there hon,Marcia
    __________________
    3-22-01,herniated C-6-7
    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
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