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  • Spinal Hemangioma

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    Old 01-27-2009, 03:15 PM   #1
    tiffany4881
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    Question Spinal Hemangioma

    Although I understand hemangiomas are pretty common and asymptomatic, I need more information. I have struggled with lower back problems for as long as I can remember and ultimately diagnosed with arthritis and a broad base disc bulge. On to the good stuff...

    For the past three weeks, I have had tremendous pain and numbness in my right leg. I finally gave in and went to urgent care and they told me I had sciatica and to see an orthopedic surgeon due to my already documented back problems. So I made an appointment and in gathering documents and films to take with me, I came across something very shocking...to me!

    When I picked up the films and results to my 2007 MRI, I got nosey : ) Maybe this is what has me worrying so much, but that's why I am here! I noticed that my VA medical records clearly stated that I had a hemangioma on one of my vertebra, but no one ever brought this to MY attention. I immediately looked it up and found that it was probably nothing to worry about until I open the CD!!!

    This thing is huge (to me). It takes up about 3/4 of the vertabre and looks like a honeycomb. It's wierd and that does not look normal. I can even see where the disc bulge is even though I have no radiology experience what-so-ever ; )

    The ortho surgeon gave me Methylprednisolone and that has done nothing. I have to go for another MRI in the next few days, but I want more...now. So here's the questions?

    *Although the bulged disc has probably "popped" (I'm thinking that is what they are going to tell me.), can this hemangioma be the problem due to how big it is? Should I worry? From what I hear, if something is blatenly visible that is the text definition of its symptoms, other minute or rare problems that have the same symptoms go overlooked. That is what I am worried about!!!!

    *For the VA not telling me about this hemangioma well over a year ago...Were they just plan out wrong for not telling me or was it for my own good?

    If my grammar and spelling is off, I am sorry! In a rush...

    Tiffany

    -by the way...I am only 27!!!

     
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    Old 01-28-2009, 08:01 AM   #2
    feelbad
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    Re: Spinal Hemangioma

    hi tiffany, this is exactly why i tell anyone and everyone to obtain their very own copies of ANY and all clinic notes(from any docs you have seen) and testing results form anything that you have been seen for that could be an ongoing condition. believe me,you are not the first person to not have everything told to you that is actually a hard finding in any given rad report. this is what also happened to me with another finding. i get EVERYTHING now.

    what you have there in your vertebrae is basically a glob of (veinous fed)blood vessels that formed there probably as you were forming before birth. in order to have this "in" a vertebrae it would have had to have been there. i had one of these little suckers actually show up IN my spinal cord way up at the c7 t 1 level. but thats a whole different thing and cost me alot when it had to be removed becasue it was 'active" meaning it was bleeding off and on. the fact that your is IN your bone would more then likely be causing at least some of your pain. there are alot of orthos and even neurosurgeons out there who actually believe that these cause no pain what so ever,but they do,believe me. the thing is it matters just where it is and what it is affecting as to just how much pain can stem from them. anything having to do with our bones and something being there thats not supposed to be can simply cause pain,and inflammation too.

    so you actually have both the filma and that rad report too? did they happen to try to measure that angioma at all just to give and idea of how big it is? if it is in the bone it would of course be much harder to do that. does your report state ANYTHING about seeing something called 'hemosiderin or staining either at that level or surrounding it at all? if you don't see that in your report it means at least it has not bled on you there. but you DO need to monitor these things with a follow up MRI just to make sure its still stable.

    ideally seeing a neurosurgeon may give you much better info,but it should be one that has had experience in dealing with them. i saw three seperate NSs for my opinions and was told many differing things by them. the only one who actually knew for certain what this ment for me was the head of neurosurgery at the U of MN. he knew everything and he also was the one who told me this sucker had actually bled,twice at least. once before it was found on a routine MRI to find out what disc i had herniated,and after a harware placement surgery that was done almost right at the same exact area as the agioma sat. getting to a good knowledgable specialist,be it ortho or neurosurgeon would be your very best bet here in trying to determine just what this means for you. you just NEED that knowledge and experience in your surgeon to really know what your risks are and whether it needs any type of attention. the reason that thing looks like a 'honeycomb' is that it is actually just made up of very small veinous fed blood vessels. thats why it looks the way it does upon MRI. hopefully you can find that right specialist to help you with this. i do wish you luck,please keep me posted,Marcia
    __________________
    3-22-01,herniated C-6-7
    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
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