It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Spinal Cord Disorders Message Board

  • Tethered Cord / Other??

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 03-03-2010, 06:25 PM   #1
    Junior Member
    Join Date: Feb 2009
    Posts: 34
    fuzzy101 HB User
    Tethered Cord / Other??

    Hi All,

    A bit of my background:

    BIO: Apr 2008 - was cracking my neck then sudden onset of head pressure, balance issues, strange head sensations, seizure like + common anxiety symp. (brain fog - dizziness), blood work, MRI brain, CT brain all clear, CT neck found retrolisthesis of c4/c5 – Dr’s say retrolisthesis shouldn’t cause any of this. (also that night I took some ec stacy pills which I regret, but new neurologist doesn’t think that that is the cause) - please dont judge me based on this comment, i was never a "junkie" it was something that i did randomoly about twice a year, which i deeply regret.

    Oct 2008 - Managed to get rid of the anxiety, head pressure gone, brain fog gone, neck pressure remains, slight balance issues remain

    Apr - 2009 - Orthodics fitted to correct pronation of feet (most likely caused from neck pressure sending mixed up signals to my body causing pronation), balance improved significantly

    June - 2009 - Placed on biofeedback program (to eliminate "anxiety" that neurologist suggests), passed, I am not anxious

    Current - still have base of skull pressure and a constant tremor through body almost like a small Parkinson’s or a small essential tremor, also weird sensation when i turn my head left to right like i can feel the back of my head/neck muscles move, hard to detect whether the pressure is muscle, nerve, spinal cord related.

    Have minor visual stuff like patterns for example thin lines together like a stripy shirt my vision seems to cross the pattern over kind of like the patterns are jumping out at me, also floaters and little dots in vision etc. (this is nothing compared to the base of skull presure.

    If I could get rid of one problem its definitely the base of skull pressure/pulling feeling I get. Gets so bad that I feel like a human elastic band because I makes me feel wobbly when I walk.

    I can definitely say its muscle/connective tissue related, either my sub occipital muscles have been twisted so that they are constantly tight or something has happened that now my body is trying to keep correcting its self therefore straining muscles in my neck / base of skull.

    I’ve been cleared for CSF leaks (I’ve had 2 blood patches and a myelogram). Ive lived with this for 2 yrs and I can definitely say its some sort of deep muscle in my neck (base of skull) or a connective muscle that runs down my spinal cord up into the base of my skull that’s causing all of this. Another possibility is also the tremor through my body is somehow related to all of this, my body/muscles are in this constant tremor or spasm which is then causing a symptom of pressure/pulling in base of skull.

    Does anyone experience anything similar? could this be tethered cord syndrome? i used to have really bad flat feet and i have slight scoliosis also.

    Appreciate any feedback.


    Last edited by fuzzy101; 03-03-2010 at 06:29 PM.

    Sponsors Lightbulb
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Baby with tethered spinal cord debsite Spinal Cord Disorders 12 06-27-2012 07:53 PM
    Tethered Spinal Cord and Cavovarus foot MyKidsMOM0122 Spinal Cord Disorders 0 04-23-2009 02:45 PM
    question about tethered spinal cord freedom2dream Spinal Cord Disorders 0 05-27-2008 09:43 PM
    neurosurgeons who specialize in adult tethered cord syndrome ab81 Spinal Cord Disorders 0 01-19-2008 12:22 PM
    Tethered Cord kylesal Spinal Cord Disorders 3 08-14-2006 02:35 AM
    Teathered Cord bwillett Spinal Cord Disorders 15 06-02-2005 06:14 AM
    11-yr old MRI for Spinal Curve progression and possible tethered cord... kippy6 Back Problems 4 12-09-2004 06:00 AM
    CP, Tethered Cord and other rare things too Wisecam Cerebral Palsy 6 06-22-2002 06:44 PM

    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 06:42 AM.

    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!