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Spinal Cord Tumor

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Old 06-18-2001, 06:02 AM   #1
Join Date: Jun 2001
Posts: 3
mcarver HB User
Spinal Cord Tumor

I'm 46 years old and have what my Dr. discribes as a rare inoperable lipoma tumor resting on my spinal cord at T8-T9. When found a year ago it was already about 270 degrees around the cord. Tomorrow I go for a yearly agent MRI to monitor the progress of this slow grower. I've been dealing with a lot of pain for so long now and pain is slowly getting worse. I have been all over the net looking for someone to talk to. I'm afraid of what may come. Is the pain going to get worse, or am I going to wake up in a wet bed I can't get out of? In time I can handle anything that comes my way, but this.... I need to know what to expect. No one knows how I feel inside. I try to make lite of it so not to worry anyone. If I voice my fears everyone is worried. I remain forever positive but I sure could talk to someone who has anything close to what I'm facing.
Thanks and good day to all.

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Old 06-19-2001, 12:24 PM   #2
Junior Member
Join Date: Jun 2001
Posts: 12
Braindead HB User
Re: Spinal Cord Tumor

I can't help you much, but I can tell you that I'm the daughter of someone with a condition similar to your's. My mom has Syrengomyelia (sp?) which is a condition in which a cyst destroys the spinal cord as it grows. I know, it's disgusting. Anyway, I don't know much about the tumor, but I do know that it's not right that you can't talk to your family. They shouldn't be scared, but should be supportive. I hope that yu won't "wake up in a wet bed that you can't get out of" but I'm not a doctor. I know I didn't help you much, but, though I don't suffer from anything, I'll always listen. It's just not right that you should have to face this alone. And whatever happens I know the Lord is watching over you. <IMG SRC="">
By the way, I'm glad you have such a positive outlook, and I think that the constant pain is likely the worst part of it all. (So my poor mother says. But she still does a lot with us. I couldn't ask for anything more from her.)

Old 06-19-2001, 04:42 PM   #3
Join Date: Mar 2001
Location: Florida
Posts: 0
Southerngirl HB User
Re: Spinal Cord Tumor

Hi M Carver,
Sorry to hear about your SCT. I'm also and SCT survivior. We have a SCT website and would be glad to have you come by. Also you will find some with the same type of tumor. I hope this will help you. ~Southerngirl <A HREF="" TARGET=_blank></A>
Best wishes to you!

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