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  • diastematomyelia-tethered spinal cord syndrome

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    Old 07-06-2001, 10:12 AM   #1
    Join Date: Jul 2001
    Location: hillsboro mo us
    Posts: 2
    bluenotefan HB User
    diastematomyelia-tethered spinal cord syndrome

    i just found out a few months ago that i have Diastematomyelia-tethered spinal cord syndrome. i am a 38 tear old male.i am in a lot of pain all the time now. i was just wondering if anyone else out there has this and if they could tell me what my chances of getting my ssi benifits from the government since i am unable to work

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    Old 07-07-2001, 11:02 PM   #2
    Join Date: Apr 2001
    Location: New York
    Posts: 412
    RageOfAngels HB User
    Re: diastematomyelia-tethered spinal cord syndrome

    My friend, it seems to me that your concerns are a bit misplaced. You have this condition, yet you are worried about SSI benefits? Your first priority should be getting this condition treated, possibly through surgery, before it creates more havoc on your neurological functioning. I just had surgery for a tethered spinal cord on 2/8/01 and filed for SSI disability soon after that, but you need to realize also that the process takes a long time (easily 6 months or more) before a decision is made. There are alot of papers to fill out, they send you on doctor visits, etc. If I were you, I would get the tethered cord looked at by a neurologist/neurosurgeon, figure out what you are going to do about surgery, and then worry about disability. The disability people are going to want reports from all your doctors and surgeons anyway, so if you don't have any, your chances of getting disability are slim anyway.

    Old 07-08-2001, 03:18 PM   #3
    Join Date: Jul 2001
    Location: hillsboro mo us
    Posts: 2
    bluenotefan HB User
    Re: diastematomyelia-tethered spinal cord syndrome

    i have seen a nerosurgen and he told me not to have the surgery you are talking about. i am now seening a pain management doctor to help me deal with the pain i am in. i go to the hospital tuesday the 10th. i have also filled out a bunch of paper work for ssi. i was just wonderingif there was any others out there with a simulure problem that did get there ssi.

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