It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Spinal Cord Disorders Message Board

  • Unending neck problems

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 04-06-2011, 07:01 PM   #1
    Busted100
    Newbie
    (female)
     
    Busted100's Avatar
     
    Join Date: Apr 2011
    Location: Canada
    Posts: 9
    Busted100 HB User
    Unending neck problems

    Not sure if I've got the right board, but here it goes, I'll try to keep a very long story very short:
    Vehicle rollover (passenger) in 2009 while at work. The roof was touching the headrest! Suggested it was whiplash, but I think it was caused by the roof forcing my head down. Pain in neck (around C3), on the left side, came and went (mostly came), Sharp stabbing pain at that location periodically for months after, which diminished to an almost dull ache most of the time. Had Physio for about 2-3 months.
    Quit my (very) physical job for an office job in early 2010 (the ache was driving me bonkers, and the driving). Went back to physio because the ache was getting worse. Last October (2010) I started getting a pull to the right, which got worse for a while (had to stop working). I couldn't look forward, never mind turn left. Had some occasional finger numbness, scalp numbness, nausea, dizziness. CT, MRI, X-ray all clear. Initial diagnosis was Cervical Dystonia/Torticollis. Got a TON (400units) of botox (no EMG guidance), mostly in the SCM (left), trapezius and levator scap (right) in November-December. It has mostly worn off now I believe. On top of it there were the medication "trials" starting at diazepam and diclofenac, through the L-Dopa (BAD!!), and finally on Baclofen and the occasional celebrex.
    Saw a neurologist in Feb. He said it isn't CD, though believes like the other Drs that it is from the accident (workers comp isn't agreeing yet). He wants me to see a movement disorder specialist for which I have an appointment in (ack!) July, but thinks it may be a conversion disorder (this late after the fact?). He also thinks the botox did no good (he didn't see me at my worst)
    Things have eased off now, and I'm at a major plateau in any recovery. I can look straight forward, but can't look left easily, and it often hurts to do so. The muscles on the right side of my neck are prominent (normal), and on the left it looks like they are half the size. Still going to physio and doing my exercises and stretches. I've got decent anatomical knowledge from previous education, and have looked further into neck anatomy. From what I understand about what I'm experiencing I believe there is a (significant) problem with my right Splenius capitis, everything fits, from the problems turning, to the pattern of headaches and where my neck pain is (still around C3).
    I can manage working for 4 hours now, for 3 days a week. Headaches are a little worse, tension and ache is a little worse, ROM is a little less, still clicking, clunking and crunching when I move. But it overall feels better for me than sitting at home! I don't feel I'm getting the help I need now because just sitting there I look "normal"....just don't ask me to turn!
    Finally, my questions: Could I be right about it being the Splenius Capitis? If so what kind of prognosis is there for strengthening this muscle back to normal?
    What kind of specialist should I be seeing? The movement disorder doc is another neurologist, is that who I should see? Perhaps an orthopedic Dr? A good start would be someone who could give me an actual diagnosis instead of throwing more drugs at me!
    How much damage could the botox have done? my SCM was tugging hard, and was a solid knot at the top, but I think it may have inhibited the splenius capitis.
    I'm in the middle of nowhere here, so specialists are hard to get to and referrals take forever. But if anybody has suggestions I would HUGELY appreciate them!
    Sorry for the length of this, but if you can believe it, I actually left a bit out!

     
    Sponsors Lightbulb
       
    Old 07-06-2011, 10:59 AM   #2
    nochange
    Senior Veteran
    (female)
     
    nochange's Avatar
     
    Join Date: Jun 2008
    Location: United States
    Posts: 1,404
    nochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB User
    Re: Unending neck problems

    busted100, I just saw your post. I had a severe whiplash(neck)and suffer from chronic neck pain. (car accident).me

    I have been to many doctors but I can tell you there is not much to do. Only medication to relax the muscles. or narcotics. that's all.

    let me know if you read that. I actually feel for you. I suffer 24/7

     
    Old 07-23-2011, 10:18 PM   #3
    Busted100
    Newbie
    (female)
     
    Busted100's Avatar
     
    Join Date: Apr 2011
    Location: Canada
    Posts: 9
    Busted100 HB User
    Re: Unending neck problems

    hi nochange,
    It is starting to look like I'm going to have the same chronic problem as you. I just wish that I could get a diagnosis which would say definitively whether it was from the accident or not. It was an accident while I was working, and it got worse a year later, so compo is trying to say it isn't related.

    My physio actually mentioned the possibility of basically lifelong pain to me the other day since it has been over a year and a half since the accident. I've managed to get up to 5 days a week at 5 hours a day, but by the end of the week I'm aching pretty much continually. The pain isn't horrible all of the time, but it is there, and it drives me nuts. If it is going to be chronic an actual solid diagnosis of that (instead of sending me to movement disorder specialists that don't understand why I'm there in the first place), would make a bit of a difference to my mindset. It might make a difference to my treatment too....who knows, its been a holding pattern of "it'll get better" for so long.

    Did you get that too? the "it'll get better" how long did it take before someone finally said that this is for sure (barring miracles), the way it is going to be?

     
    Old 07-24-2011, 08:54 PM   #4
    nochange
    Senior Veteran
    (female)
     
    nochange's Avatar
     
    Join Date: Jun 2008
    Location: United States
    Posts: 1,404
    nochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB User
    Re: Unending neck problems

    Quote:
    Originally Posted by Busted100 View Post
    mostly in the SCM (left), trapezius and levator scap (right)
    I can look straight forward, but can't look left easily, and it often hurts to do so. The muscles on the right side of my neck are prominent (normal), and on the left it looks like they are half the size. From what I understand about what I'm experiencing I believe there is a (significant) problem with my right Splenius capitis, everything fits, from the problems turning, to the pattern of headaches and where my neck pain is (still around C3).

    Finally, my questions: Could I be right about it being the Splenius Capitis? If so what kind of prognosis is there for strengthening this muscle back to normal?
    What kind of specialist should I be seeing? The movement disorder doc is another neurologist, is that who I should see? Perhaps an orthopedic Dr? A good start would be someone who could give me an actual diagnosis instead of throwing more drugs at me!
    I'm in the middle of nowhere here, so specialists are hard to get to and referrals take forever. But if anybody has suggestions I would HUGELY appreciate them!
    Sorry for the length of this, but if you can believe it, I actually left a bit out!
    Hello Busted100. How are you. First of all I want to tell you that I also have pain in the left side of the neck radiate (that is sometimes )to the head also headackes(left side) Also the left ear hurts me(not all the time). I have pain that radiate from the left side towards the front of my neck, do you have anything like that?But the pain in the left side of the neck is ALL OF THE TIME - It is like I have a knot plus severe pressure - horrific pain and drives me nuts. I was referred to a physical therapist - Honestly, there is nothing they can do to even help neck pain but that she never told me. I was also "accused" by a doctor ,I do not go to anymore, that this "very good" physical therapist could not help me. SHe helps everyone only you do not respond. Then the neurologist told me that nobody dies from pain in the neck and it is not possible I suffer so much plus I told her I cannot sleep at night cause of the pain and she said she has never met cases like that after whiplash of not being able to sleep at night and even cancer patients are able to sleep and told me it is psychological problem!!!!!!!!!!!!!. ALso I was told cancer patients suffer from pain more than me.

    I hurts me moving my neck to the left or to the right and I only do so when I really have to.

    I also feel the muscles on the left side are half the size compare to the right size. Never heard about spelenius capitis, what is this??? help!.

    I don't think doctors really understand much about neck. HOnestly.
    I even went to a orthopedic surgeon (nice one with a lot of experience)and he said that I am not for surgery(I have 2 minimal bulging disks but no doctor knows if that is the reason for the pain). and that is all he said.

    I cannot rest my neck on the pillow at all time, not on the left side and not on the right side - Imagine life without resting and without sleeping. It hurts badly. I need to put ice packs before I do so. Only started that recently and hate that. I want to be what I used to be. But how. Where are all the researchers???

    Again what is spelenius capitis, nobody ever told me I have that.

    Last edited by nochange; 07-24-2011 at 09:17 PM.

     
    Old 07-24-2011, 09:09 PM   #5
    nochange
    Senior Veteran
    (female)
     
    nochange's Avatar
     
    Join Date: Jun 2008
    Location: United States
    Posts: 1,404
    nochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB User
    Re: Unending neck problems

    Quote:
    Originally Posted by Busted100 View Post
    hi nochange,
    I just wish that I could get a diagnosis which would say definitively whether it was from the accident or not.

    My physio actually mentioned the possibility of basically lifelong pain to me the other day since it has been over a year and a half since the accident. it drives me nuts. If it is going to be chronic an actual solid diagnosis of that (instead of sending me to movement disorder specialists that don't understand why I'm there in the first place), would make a bit of a difference to my mindset. It might make a difference to my treatment too....who knows, its been a holding pattern of "it'll get better" for so long.

    Did you get that too? the "it'll get better" how long did it take before someone finally said that this is for sure (barring miracles), the way it is going to be?
    Yep, I got the "it will get better" also by many doctors. I went to alot of doctors and asked them if that will ever go away....THey said it depends on my attitude, huh.

    My current doctor said that if a pain doesn't go away after 6 months then it is for life. I am very miserable.

    I went to the pain clinic and it was hell. I was told it is muscles spasms. But I also have bulging disks and they said this is nothing to do with the pain.

    Some people after whiplash gets better and some not.

    I have this for 5 years. and it is only getting worse and drives me nuts cause it is constant. 24/7.

    There is a new machine in the market called: MCU, never tried that one. Please check about that and let me know what you think.

    Other than that, I was thinking about that ketamine treatment.....(in germany???)...I am losing my mind. As years go by my memory...I do not remember anything. Hard to concentrate cause of the pain...
    But my memory...I need my memory. I am 40 years old but memory of a 90 years old(not that I have anything against 90 years old). and recently I am starting to shake. Never had that before.

    In another words, if it is chronic - Then the situation will get worse. Most people who had whiplash had to do a surgery years later(even 10-15 later) and that does not mean it takes the pain away. (by the way, even if your MRI is great - it does not matter - years down the road situation will get worse).

    I will look into MCU and please look also(check out some videos)and honestly will check into ketamine treament - it resets out the mind and everything should be back to normal. I suffer too much. It is not a life. But why do they want so much money for that ketamine treatment?

    And remember, if it chronic - you will get worse as years go by.

    I forgot to mention that many people who have neck pain or had whiplash cannot sleep at night - so if you can sleep at night now it does not mean that years later you will be able to sleep. One day you will not be able to rest your neck on the pillow(like me!!!)and you will need sleeping pills.

    So it is not just a neck pain - It is everything.

    What job are you able to do with this neck pain, please tell me. I am just wondering. I want to go back to the job market, but not sure what should I do. University graduate but that means nothing when you suffer constantly and your memory is GONE.
    Let me know what are you going to do.

    My doctor, by the way, told me it is better to work if you have chronic pain so you do not think about that all the time.

    Last edited by nochange; 07-24-2011 at 09:16 PM.

     
    Old 07-24-2011, 09:44 PM   #6
    Busted100
    Newbie
    (female)
     
    Busted100's Avatar
     
    Join Date: Apr 2011
    Location: Canada
    Posts: 9
    Busted100 HB User
    Re: Unending neck problems

    My pain is nowhere near as bad as yours is right now. It is a constant ache, and the occasional stabbing pain (this is if I don't do anything "stupid" meaning work on my car or anything I used to do. It has gotten a little bit better. Physio twice a week helps a lot I think (making us broke, but its keeping me going), mainly acupuncture and massage, plus exercises/stretches. I haven't gotten bulging disks (yet), not that they have seen.
    I used to have a very physical (and fun) job, but now I work in an office. I've been told to absolutely not have a headrest on my chair, to keep the muscles working while I a there (I think it causes me to work less hours, but it is helping to keep the muscles stronger).
    I do sleep now, but not well, I attribute that partially to my meds (Baclofen mainly) though, they make me constantly dozy, but don't let me sleep either.
    I'll definitely look at those treatments you mentioned, I don't think I need any of that yet, but down the road it is likely. I expect it to get worse as I get older, and I'm not looking forward to that, I'm only 33 and its really destroying so much in my life.

     
    Old 07-25-2011, 07:13 AM   #7
    nochange
    Senior Veteran
    (female)
     
    nochange's Avatar
     
    Join Date: Jun 2008
    Location: United States
    Posts: 1,404
    nochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB User
    Re: Unending neck problems

    I really think you should ask your physical therapist for this MCU machine.
    If they send you to a chiropractor say no no no. Never go to any chiropractor to fix your neck.

    Please let me know what your physical therapist told you about this machine. I watched videos of that and all those people say that it gives them their lives back.

     
    Old 08-17-2011, 03:28 PM   #8
    alina30
    Junior Member
    (female)
     
    alina30's Avatar
     
    Join Date: Jan 2008
    Location: TX,usa
    Posts: 30
    alina30 HB Useralina30 HB User
    Re: Unending neck problems

    Hi busted I am so sorry to hear about your struggles. I had whiplash two and a half years ago and am frustrated myself. Now my limitation is I don't have insurance, moved and couldn't find a job to support myslef that offered any. Anyway, when I first began treatment after the rear end I went to a chiro and physical therapy, and the chiro suggested massage but it was cranialsacral/myofacial and the therapist was amazing. I won't do it any justice by trying to describe it, but if you look it up you may find it helpful. The therapist straightened me out-literally, more than anything the chiro or pt was doing. It is also amazing for your state of mind because one of the principles is that our bodies hold on to trauma, whether mental or physical and with this type of therapy you work on releasing them from wherever they are "stuck." It helped with the pain, and my anxiety. He even realigned my jaw and skull! I would have kept up with it (and wish I could now) but the accident coverage ran out and I cant afford it. But you might want to check it out. Hope you are doing ok today.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Orthopedic Surgeon or Neurosurgeon for chronic neck pain??? nochange Spinal Cord Disorders 26 09-24-2010 06:03 AM
    Headache with Left arm, back and Neck pain jbsim Spinal Cord Disorders 8 07-30-2009 04:43 PM
    Is this muscular or related to spine-neck, thoracic? Wymom94 Spinal Cord Disorders 3 10-30-2008 05:46 PM
    Facial tingling from neck problems? Jenny R. Spinal Cord Disorders 19 10-01-2006 08:18 AM
    question about neck stenosis/neuroformen??? jayboy557 Spinal Cord Disorders 5 09-26-2006 11:45 AM

    Tags
    neck, neck trauma, torticollis, whiplash



    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 08:44 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!