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    Old 05-03-2012, 02:46 PM   #1
    catluvr
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    recent tethered cord surgery

    Hi i am a 28 yr old female diagnosed this year with congenital tethered spinal cord, i was having severe lower back pain and numbness in the legs and groin region along with urinary frequency, i had surgery for this on april 2nd 2012,
    the pain is improving and i have had no numbness at all since the surgery and urinary wise has taken some time but is improving, but after surgery i have had probs with constipation which was never a real issue for me before surgery, i go back for my post op follow up friday may 11th and im very concerned that i may have to take laxative forever to produce a bowel movement is this normal after this surgery does it take time to improve since so many nerves are involved with this surgery?? I was told i was very fortunate and was a very mild case i had no balance or walking impairments and was totally in control of my own bowel and bladder, other than tethered cord i am a healthy active adult and lived my childhood healthy and active. im also concerned that my cord could retether, anyone out there with this problem who has any input would be appreciated!

     
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    Old 05-03-2012, 06:53 PM   #2
    kenzibenzi
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    Re: recent tethered cord surgery

    Are you on pain medication, that can certainly constipate you.

     
    Old 05-04-2012, 03:55 PM   #3
    catluvr
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    Re: recent tethered cord surgery

    nope im off all opiates and been taking fiber, stool softeners, etc

     
    Old 05-05-2012, 10:24 AM   #4
    Moldova
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    Re: recent tethered cord surgery

    First of all, best wishes on your recovery!
    Even if you are not on opiates now, they must of give it to you in drip form or pills after the surgery. It will take some time for your bowel to go back to normal. Dont forget another thing: you are not as active as you were before the surgery, this may cause constipation as well.

    This is common problem for people after any surgery, takes time. And if you do have to take laxatives - just go ahead and do that. Miralax every day is an excellent answer to your issue. Good fiber is great too, but make sure you drink a lot of water with it otherwise it will add more problem to your already existing condition.

    Good luck
    Moldova

     
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    Old 06-14-2012, 10:14 PM   #5
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    Re: recent tethered cord surgery

    I am new on this board, so if I am on the incorrect page you can certainly let me know, but the site's search kept directing me to this page. There is very little out there on tethered cord in adults.
    Now, to catluvr's post. Be so glad you have been diagnosed with tethered cord at a young age. Despite having symptoms from birth, I was only recently diagnosed with lipomas and tethered cord, in October 2010 following an MRI, which was ordered after I fell several times and was experiencing bladder concerns, back pain and numbness in groin and legs, as well as swelling. Within a few days, I had spinal cord surgery at a large teaching hospital. The constipation will likely improve; stool softeners and Acidophilus supplements may be helpful, or more.
    I am willing to share anything about the surgery, recovery and results, with the hope that someone else may be helped or diagnosed earlier in life, before so much damage is done.

    Last edited by Texasgrl4478; 06-14-2012 at 10:15 PM. Reason: spelling

     
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    Old 06-15-2012, 11:26 AM   #6
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    Re: recent tethered cord surgery

    thanks texas realtor for sharing, and thankfully i went to a gastroenterologist for the constipation and they put me on a cocktail that has resolved that issue, but now i do have to go back to see my neurosurgeon due to the bony areas im my lower back the si areas have returned and are prominent with pain so they want to see me back, thankfully i can still sleep through the night without getting up to void and my lipoma size is still small compared to before surgery and i recently found a less physically demanding job so im hoping things will only improve, i hope things get better for you as well

     
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    Old 06-15-2012, 10:12 PM   #7
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    Re: recent tethered cord surgery

    Glad you are improving and know your recovery will continue. I think if I had begun physical therapy shortly after surgery, my recovery may have been easier and quicker.

     
    Old 06-26-2012, 05:54 AM   #8
    Bodeysnana
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    Re: recent tethered cord surgery

    So happy your surgery went well....as far as the constipation issues...I do think it can vary tremendously from person to person so it would be difficult to compare. I am 60 years old and had my detethering surgery in 2000. I have had problems with constipation ever since, but when I think back to when I didn't even realize there was anything really wrong with me, I think I was one of those folks that really wasn't all that regular anyways even though it really wasn't a huge noticeable issue. Just figured it was just the way I was suppose to be.


    Now that I know what was going on with my spinal cord....makes more sense. So, yea, I do have to take stool softeners and dulcolax sometimes to keep things moving....grrr. BUT...I blame that mostly on I'm not able to get around near as well as I used to so that makes a huge difference.


    Since you didn't have issues before surgery and you are still getting around really well....I'd say your chances of the constipation issues going away are really good. Lots of luck and hope all continues to go well for you!

    Hugs,
    Lynn

    Last edited by Bodeysnana; 06-26-2012 at 05:56 AM.

     
    Old 06-26-2012, 08:09 AM   #9
    catluvr
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    Re: recent tethered cord surgery

    thanks lynn, i saw a gi specialist for the constipation and it is resolving, and looking back on it i may have had issues before the surgery the gi dr said she thought i may have ibs because i have both problems at times, yes i feel very fortunate that my problems from the tethered cord are only what they are, but i do have to have a repeat mri because the bony areas in my lower back have returned and are causing me some pain and the neurosurgeon just wants to make sure its nothing to be worried about could just be swelling wear ive been on my feet back to work, but thanks for your comment

     
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