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Spinal Cord Disorders Message Board

Weird sensations


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Old 05-17-2013, 05:06 AM   #1
kitti4778
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Weird sensations

Hi, this seems a really active and informative board so thought I'd ask your opinion. I was diagnosed with C5/6 and C6/7 cord compression / flattening in 2004 after suffering severe neck pain and numbness and pins and needles in both arms. I have EDS which causes vertebral instability but I think a charity parachute jump put the tin hat on things! I was 41 then. After rehab physio and several sessions with an osteopath the pain eased considerably.

Over the subsequent 9 years I have been rereferred for physio a further three times - on the last occasion the physio said there was nothing she could do as the symptoms are caused by the pressure on the spine. Over the last six months to a year the symptoms have worsened my both arms go dead, the slightest jarring sends shooting pains down my back and I have started getting weird sensation in my feet - my toes going dead, pines and needles in my feet, burning sensation in the soles of my feet and most recently the feeling that my lower leg and left foot are vibrating - sorry that's the best way I can describe it. I don't know if I have any gait changes as I have a pronounced trendelenberg gait from have bilateral dysplasia which is causing severe subluxation (EDS related) - seeing a surgeon about this in two weeks.

I went back to my GP who just wanted to send me for yet more physio and prescribed tramadol. Are the symptoms concerning or should I just stick with the tramadol for a while and see how it goes - particularly with pending hip surgery?

 
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Old 05-17-2013, 12:09 PM   #2
WebDozer
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Re: Weird sensations

Find a doc who will send you for cervical AND lumbar MRI's. You need information, not PT and drugs....

 
Old 05-18-2013, 08:49 AM   #3
kitti4778
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Re: Weird sensations

I have pushed back at my GP surgery but I can only be referred to an intermediary musculoskeletal clinic where I now have an appointment in early July. Apparently GPs can no longer refer directly to orthopeadic surgeons. The new clinic has been set up to try to reduce the number of orthopeadic referrals by requiring that all patients try conservative approaches (physio / pain specialist etc) for a few months first. I've been told I have to do ~three months of this first and only if that fails will I be referred on. No idea what the referral time is for an orthopeadic surgeon but it could be another ~18 weeks. All very frustrating! On the plus side I do have a copy of my 2004 MRI (if not the report) with the radiologist's scribbles and circles on so I can show them that and see if that expedites things...

Last edited by kitti4778; 05-18-2013 at 08:52 AM.

 
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