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daveb73 05-17-2013 03:40 PM

C5 C6 severe cervical stenosis
I am a male, 5'11", 166 lbs., who has been getting steroid injections at C5/C6 to control the side effects of C5/C6 cervical stenosis, all of which I have seen listed here: pains all over my body, neck and face, bottoms of my feet, my ankles, etc.

While getting shots, I tried repeatedly to get the sort of pain meds that I CAN take, not that which makes me worse, from my pain manager. He refused me narcotics. NSAIDS are out, as they cause me, with IBS, to suffer terribly with digestive pain. Neither are herbal concoctions good for those who suffer with IBS.

Finally, after several years seeing this pain doctor, he ordered a cervical MRI, which, had I not pointed out to him, he would have completely overlooked the obvious staring him right in the face! Written boldly was SEVERE spinal stenosis at C5/C6! At last, the proof he needed. Immediately, he wrote out for me a script for hydrocodone 10 mg., 500 acetaminophine and directed me to a neurosurgeon who will look at my chart and determine if he finds me a candidate for surgery.

The suffering over the years has been almost beyond endurance, for which I was prescribed nothing more than Lyrica and tramadol. Lyrica causes me a near total loss of short term memory. While on it, words don't come to me, and because I work a position where many people rely on me.

The neurosurgeon is very popular, obviously, and does not have an opening until mid July 2013, so until then, I have injections and meds to get me through. The meds I may still have to take following the surgery, I don't know. Who knows until it is all over, huh?

Any information members here feel I should have, please share it as I am reading all I can to inform myself. Down time following the operation, I was told, will be six to twelve weeks. That seems long to me. I'll have to take time off work if I am considered a candidate for surgery. The word "severe" should be enough to get me in, I suspect.

WebDozer 05-18-2013 06:28 AM

Re: C5 C6 severe cervical stenosis
Downtime from WHAT operation? I guess you're talking about an ACDF? If so, the downtime varies quite a lot, but six to twelve weeks sounds quite much too long.

As for the pain doc, he should be collecting garbage.... in jail. Absolutely inexcusable behavior, imo, although you allowed him to get away with it.

0055 05-18-2013 08:11 AM

Re: C5 C6 severe cervical stenosis
Have you had an MRI ? Did they give you a number in which you r spine is compressed ? Do you have an autoimmune disease?? Your other symptoms sound a lot like me .... Which is an autoimmune disease with the spinal commpression .... I had an ACDF in dec. I was off for 6 weeks which was very necessary.... It is a slow healing process.... I was so severely compressed I had spinal cord damage so I will probably never be without some pain...and to be honest most not like to give pains I have experienced... I quit taking the ones that made me forgetful ... I could not take it.... Best of luck!!

roadiez 05-19-2013 12:20 AM

Re: C5 C6 severe cervical stenosis
I am sorry for your pain that you are having....

I do have a couple a questions for you.
Also do not think I am criticizing you beyond what you should be doing to your own self....

1. Why did you go to the PM doctor for more than 6 months without any relief?

2. Why didn't you ask for a CT, a MRI, even a set of x rays?

A competent PM who does injections I would think like mine did ask for me to bring in my most current set of images. Whether MRI or CT scan.
If not within 6 months to a year he would have sent me for new images as the scheduling personal told me.
Also when I did have injections done it was done under "Fluoroscopy"(live x-ray). With monthly injections without the use of the fluoroscopy... Basically a tune up or additional injection until another procedure is scheduled.

3. Also you mentioned that you have IBS & cannot take NSAIDS... The first thing my PM did was to take me off any & all anti inflammatory meds because he said that receiving injections & taking those are counter productive & if you are a candidate for surgery you will also need to have those out of your system.

4. With the IBS you also need to watch out taking the pain meds as they can give you some massive constipation!

5. You could ask to be switched to NORCO. Basically it decreases the amount of acetaminophen. That can be a benefit to you later in life.

6. Also to save you some money & has a lot of the same effects. You could ask to switch to gabapentin.
It is basically the same as Lyrica.
But the costs between the two are BIG!
My own insurance preferred the gabapentin over the Lyrica as well.

** I am not a medical professional but am only stating some of my personal experiences.
**I do encourage you to seek another consultation as well.

**Best of LUCK there!

Do some research. You will find a lot of information out there.

amilie 05-27-2013 09:09 AM

Re: C5 C6 severe cervical stenosis
i am so sorry for what you are going thru. i have cervical arthritis and i know where youre coming from. i had 2 operations neck is so stiff they couldnt get the tube down and there was bleeding in my lungs for 2 days. now, 3 years later, im at it again.i cant take any more operations. the injections make me sicker. the pain pill dont work, so i stopped. the dr would give me morphine patches, but i dont want to get into those kind of find that myolastan(2 pills at nite)- 50 mg. work for me. you really cant take tit during the day because they make you sleepy. si i sleep and wake up to more of the same. in the spring and summer its worse with the humidity. the winter is better. so im seeing the neurosurgeon june 11.myolastan is not a narcotic. why that works and the strong narcotic pills dont is a mystery to me, but i say WHATEVER WORKS....i ask no questions anymore and im glad i have that. at least i sleep well.its a very inexpensive pill. even the pharmacist was surprised that that works so well because its not a heavy pain killer and the others were a waste. im not allergic to pills per se, but to get something to agree with me is a wonder in itself, so im glad i have it. i inherited this arthrtis from my mother. she died last june and her problem was mainly the back. mine is the neck.i cant do sany more surgeries. 2 in the neck and my hands. i could go on, but i think you see where this is headed. it seems like my whole body is being made over. i always dread the warm weather because of the humidity. we have an air conditioner, but then you go out---

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