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After spinal cord tumor removal

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Old 06-03-2013, 08:24 AM   #1
Join Date: Jun 2013
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AmandaIsaacs82 HB User
After spinal cord tumor removal

I had surgery Feb 1 2013 I had a tumor removed from inside my spinal cord in my neck since the surgery its been a downward spiral I woke up numb and tingly on my whole left side my balance is off both of the bottoms of my feet are tingling all the time my neck is stiff and painful still its almost been six months The doctors assume Im getting hooked on the pain pills someone please help the pain is hard to explain and its constant. Seriously in a "successful" operation I have all these symptoms that were never an issue before the surgery. Im usually a shy quiet person but enough is enough this pain and confusion is ridiculous. Im not a depressed person well atleast I wasnt before all this...I am a 30yr old mother of 5 am I healing or is this it am i truely confined to a wheelchair and walker?? Any thoughts anyone?????

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Old 06-03-2013, 10:11 AM   #2
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Re: After spinal cord tumor removal

Welcome to the board.

I am sorry you are having issues with your recovery. I read your other post on the other thread, but wanted to respond to it here. First, your surgery wasn't that long ago,more like four months, so it is difficult to tell if this is just a trauma from the surgery, whether a nerve was damaged either prior to surgery from the tumor, or during surgery, and finally, if there is damage, will it be permanent or gradually get better.

I would suggest you get another opinion from a spine specialist in an entirely different practice or clinic. The trick here may be that no one else will see you yet since you are still recovering...but, it wouldn't hurt to make a call and see if you can get in.

Is it the surgeon who is telling you that it may be due to the pain medications?

The medical definition of "successful" is an interesting one...and one the patient doesn't usually agree with. I assume the purpose of the surgery was to remove the tumor while causing the least amount of trauma to the surrounding areas...and I'm guess in medical terms, this was accomplished. Depending on where the tumor was located, there is bound to be some "collatoral damage." Hopefully the nerves were just aggravated during surgery rather than permanently damaged...but I think it may be too early to tell.

I would think they might do an EMG/nerve conduction study eventually to see what is going on...but it sounds like you'll have a hard time convincing this particular surgeon that something is wrong.

Are you in physical therapy? It may be that the nerves that were affected will need to be retrained and that there are exercises you could be doing that might help. I can tell you that nerves heal VERY slowly. I had a complex lumbar fusion three years ago, and the nerves in my feet are still improving.

Don't lose hope. I would suggest you try to find another surgeon that is a bit more sympathetic to your needs. Good luck.

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