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    Old 01-27-2014, 06:10 PM   #16
    Tim025
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    Cool Re: cervical laminectomy

    Roberta, wow YOU SHOULD write a book with all you have been through, you are one tough cookie. How you have managed to stay positive through all that you have been through is truly an inspiration, although, like me, I'm sure you have those moments when you have to ask , "what the hell is going on"?
    I was going to whine about how tough my PT was this morning so I only lasted a couple of hours at work and had to come home to take a nap but it seems like pretty small stuff compared to what you have had to go through.
    I finally got an appointment with my neurologist tomorrow afternoon and with your help I will be "loaded for bear" with all the questions that I can pepper him with about this whole healing process---I can't wait!
    When my pain really gets to me I take 500mg of Vicodine but I try not to take that too often.
    Does the Valium help you to sleep or just relax?
    I take Xanax sometimes when I get pretty tense but it makes me pretty loopy.
    Well it's about time for me to get horizontal for awhile and give my neck a break---pun intended
    Stay strong and thanks again.
    Tim

     
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    Old 01-29-2014, 05:16 PM   #17
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    Cool Re: cervical laminectomy

    Hi Roberta, just thought I would give you a follow up from my meeting with the neurologist yesterday.
    He is ordering another mri to make sure that the decompression in my neck is sound, I'm glad about that but nervous as I hope that it doesn't show that I need anything more done, like a fusion
    He also told me, as you have said, to "listen to my body" and not to allow the PT to put me in so much pain. Consequently I have canceled my next couple of appointments with him to give my neck some healing time as it is not only sore but "burning" really bad since my work with him on Monday.
    Did your physio work include a lot a pulling and twisting on your neck?
    I am concerned that sometimes my guy is doing me more harm than good, but maybe that just my wimpy coming out again.
    Thanks for your thoughts,
    Tim

     
    Old 01-30-2014, 04:45 AM   #18
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    Re: cervical laminectomy

    Oh Tim that is terrible that he has caused you pain. Physio is not supposed to hurt. It was 5 months before I had physio. No one would touch me before that and even then they really only worked on my arms and thoracic area. There were no hands on at all, it was only exercises for me to do at my own discretion. But like I said maybe your operation was different somehow. But when I did start around the 5 to 6 months I would do most of the exercises several times a day and the chin nods as many times a day as I could. My physio explained to me that most of the muscles in my neck are gone now. That is why I can’t hold my head up for too long without pain because the other muscles can only take so much. I am not sure if that is the same with you. But I would expect if the laminae is gone then the ligaments are gone then muscles would be gone as well? I don’t know anatomy that well...lol. But I know I had some of the facets removed as well so my neck isn't very stable. That may have something more to do with it.

    I was going to a rehabilitation center and there they would put me though several different classes in a whole day, Physio, TBI, Neuro Psychologist every week and spinal doctor monthly. It was a big day and I did that for 7 months. I had a MRI as well to check to see if there was cord compression at 7 months after surgery and it was clear but I still have the myelomalacia. That is still the same. The problems with the vertebrae (some are nearly gone) and the discs are fairly flat. They haven’t even started with those. Plus there are some huge spurs growing too. But I’m trying not to think too much about it as long as it isn't hurting me too much. I will see the doctor again soon and will need to get another MRI done because it is coming up to 2 years in June. What was the reason for your operation? Was it the result of an accident or wear and tear?

    I don’t know of the pain killers you have, fairly sure we don’t have them in Australia but they are probably something like codeine and paracetamol? Or maybe endone? I have had those as well but don’t like taking them...but I will if all else fail.  Australia has fairly strict laws about prescription drugs. Even to get a pack of 2mg antihistamine we need to sign and show ID. You asked about Valium. It is okay but only in moderation. It just relaxes me, my mind and my muscles. It doesn't make me sleep but it helps a little sometimes. It’s also okay to take with epilepsy.

    Talking about tablets I nearly forgot mine...need to take them. It has been a busy day. My daughter is going to England and then in 6 weeks comes home to do a short tour singing in all the Australia capital cities. She is a singer songwriter. Catch you soon, Roberta.
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    Old 01-30-2014, 09:48 PM   #19
    Tim025
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    Cool Re: cervical laminectomy

    Roberta, thanks for your concern, I wish I would have asked you about this earlier I just hope that the mri doesn't show any real damage to my neck muscles as the ones on my left side are really hurting me, hopefully it is just a muscle pull or a strain and not a tear.
    My surgery was basically just wear and tear with a little help from a major car accident when I was 14. My dad and I totaled out pick up truck at 70 mph and walked away apparently unharmed, 44 years ago they didn't check us out because we appeared to be ok---no ER, no hospital, no x-rays no mri's, nothing, we road back to town in the tow truck instead of an ambulance like they would do today. Now they are telling me that I probably had a broken neck and should have been in a head halo type of brace for several months because my spine has been growing improperly ever since and it finally caught up to me. Supposedly they only removed the lamina and used the muscles and ligaments to create a "sheath" for my spinal cord, the mri will tell us if indeed that was truly successful---Like Andy, I am hopeful.
    I am surprised about Australia being so strict on prescription drugs as I expected it to be pretty much that same as here, it seems that the docters here are drug happy and will prescribe just about anything.
    Thanks for your info on Valium, I asked my neurologist about it but he feels that there are other drugs that would be better for my issues so he has added Clonazepam to my Lyrica. I hate taking this stuff so I am really counting on my sisters gelatin diet----I'm I nuts or what, lol.
    Wow that is great about your daughter I hope things go well for her, that's very cool
    Thanks for everything, Tim

     
    Old 01-30-2014, 11:09 PM   #20
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    Re: cervical laminectomy

    Hey Tim sounds like you been though a lot as well! It is truly amazing what the body can take especially when we don’t know what is wrong with it. Sometimes I think I would be better off not knowing...lol. When I was 17 a car hit me while riding a bike (you think I would have learnt) and did a lot of damage but being 17 I thought I was invincible and jumped back on the horse (so to speak). That also was the beginning of a lot of my problems.

    The tablets that your doctor has put you on are just a different name for Rivotril (Clonazepam) they are the tablets I was on for 18 years. Both medications you are on I used as anticonvulsants but after reading up they are used for a variety of other symptoms as well. Depending on the amount of the Clonazepam be careful with the driving as they affect you the next day and made you do ridiculous things that sometimes you don’t remember. I stopped driving for a long time as I was hitting gutters and corners even went through red lights, they were definitely impairing my judgement...not good. I used to like to have a drink now and then (don’t drink anymore) but when I did while on those tablets I wouldn’t remember things. So just be careful please.

    My daughter is all excited about going overseas again. She did a trip to Tokyo about a year ago and did a few shows over there. Take care, Roberta.
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    Old 02-01-2014, 05:05 PM   #21
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    Cool Re: cervical laminectomy

    Hey Roberta, thanks for the advice on the Clonazepam, I have already been experiencing some vertigo while taking it so I am being judicious about using it.
    So now my "crazy" sister ( I do really love her ) has just sent me a package all the way from the state of Michigan to me in California that is a product called Osteo Bi-flex WITH GELETIN. She claims that it is better than just plain gelatin alone, so I am switching over to it tomorrow and we will see how it goes
    It has been 5 days since my last visit to the PT and my neck is SLOWLY getting better but I have had to stop all of my exercises as they just seem to aggravate the muscles that he overworked. It seems like 1 step forward and 2 steps back is the order of the day right now but I am sure that with my new super gelatin powder I will be 100% in no time, lol.
    I am waiting for the insurance company to approve the mri but I will keep you posted when I know more.
    As always, thanks so much
    Tim

     
    Old 02-08-2014, 06:25 PM   #22
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    Cool Re: cervical laminectomy

    Hey Roberta, I hope you are doing ok.
    This week, #15, has been pretty good for me as the "buzzing" in my legs appears to have stopped completely, yea for baby steps!
    My neck still hurts and I need to lie down at least once during the day to relieve the pressure but I feel that I am continuing to improve since stopping the PT. My thoughts are with you as I feel every little improvement has a lot to do with the information I have received from you
    On a different subject , we have a friend who is a professional golfer and her trainer, who is also a friend of ours, is from Brisbane. His name is Richard Nizielski and he is an ex speed skater who was on the Australian National team that won the first ever medal in the winter Olympics for Australia in 1994. He was also part of the Australian relay team that won the first World Championship ever for Australia in a winter sport.
    He is visiting here for a few weeks while doing intense training with our golfer friend and we will be joining them for a bbq at her house tomorrow Feb.9.
    He is a nice guy with a lot of great stories, have you ever heard of him?
    Hope your daughter is enjoying her trip to England and you have plenty of support at home
    Always appreciative of your thoughts, Tim

     
    Old 02-09-2014, 05:58 AM   #23
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    Re: cervical laminectomy

    Hi Tim, firstly I must apologise for not getting back sooner but since my daughter left things have been very hectic on my own. I had an appointment with the specialist at “molescan” and needed to have a few removed (10 actually) results next week and also a BCC cut and then had to go back for more to be taken out. So it’s been a traumatic week. I was going to private message you but I am not sure how to do it. I am not that computer savvy and sometimes find it hard to understand all the rules they have on here about what we are allowed to chat about. Anyway, I am glad you are feeling a bit better with the buzzing and I find it incredible that you only have to rest once a day for your neck. How are you with leaning forward? Picking things up? Pulling things, like sweeping, vacuuming, taking things out of the fridge or the oven? Do you have a problem with any of those? I am still having a problem driving for more than 10 minutes. If my hands are at 10 to and 10 past on the steering wheel it really hurts my neck after a couple of minutes and I need to rest my head back on the head rest. I have a little pillow strapped on to the head rest so it fits into my neck so it isn't that bad now. Also have a special pillow to sleep, it’s a memory foam pillow that is concaved in the middle (can’t sleep without it).
    I have heard of your friend but I don’t know too much about him. A friend of mind has a son who was into speed skating as well. He has just been accepted into a high school in Canada and is being trained over there for ice hockey. He is very good and maybe you will be hearing of him soon.
    How is the gelatin going? My sister swears by New Zealand green-lipped mussels and Rose Hip oil. I don’t know much about them. I’ll have to do some reading, but she says they work really well for her aches and pains. She now doesn’t take any painkillers at all. But when she stopped taking them the pain came back very quickly. But at least they are natural.
    Enjoy your barbie! Chat soon.
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    Old 02-10-2014, 10:36 PM   #24
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    Cool Re: cervical laminectomy

    Hi Roberta, don't apologize for anything. I am not very computer savy myself so I have no clue how to send a private message either, I was concerned for you with your daughter leaving on her trip and any complications that might cause you. Sorry to hear about your traumatic week, I hope that the test results come out ok.
    As far as my neck goes, all of the things you mentioned are difficult as there is a lot of pressure whenever I lean forward at all so I try to stay as erect as possible as much as I can---now people keep telling me how good my posture is, If they only knew that it is because of the pain
    I have been on the gelatin for 3 weeks so it is too early to tell but my right shoulder, which has been hurting ever since the surgery, seems to be getting better but I don't know if that's because of the gelatin or just healing time but I am leaning towards the gelatin because it makes me feel better about taking it
    Take care of yourself and my thoughts are with you.
    Tim

     
    Old 02-21-2014, 09:52 PM   #25
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    Re: cervical laminectomy

    Hi Tim, I havenít been around for awhile. I have been staying down with my other daughter every now and then as I have been feeling a bit yucky (she runs our family music school and canít come here). She sent me to have a CT scan the other day (kids!) and then went to the doctors yesterday for the results. Things aren't that good. I thought a lot had changed more recently because of all the headaches I have been getting and the pain was all the time. The doctor had to give me 2 block needles in the back of my head. (not nice) They were to block the occipital nerves on either side. Needless to say I feel a little strange and haven't slept at all with a lot going through my head at the moment. The report says my neck has ďseverelyĒ (donít like that word) degenerated since the last operation which isn't good and now the disc and endplates have as well. That has also resulted in kyphosis and rotational scoliosis. As well there are upper cervical facet joint problems at C3 and C4. This has all happen since the operation as well as my other problems so no wonder I have been feeling different to before. Doctor has said it will never get better only worse, so I need to think the best plan of action.

    I am feeling quite surreal about it all a little like I did when they first told me about the cord compression, sort of numb and not really knowing what to do. I really don't want a fusion so I can't move my head from side to side, I think the stick with a ball look will cramp my style. :0 They also did an Xray and 3 of the vertebrae C5 C6 C7 have move forward with spurs and are pushing into the back onto my oesophagus (that's why my swallowing has been getting harder). He also explain it maybe the reason why my fatigue levels have changed and I get puffed easily because my anatomy has been changing and everything is pushing down. But he is only the doctor not the specialist so I will wait until I see the Neurologist on the 10th. (Mind you, he explained everything a lot better that the specialists do...and it made more sense). The specialist will probably order the MRI and that is when I will most likely have to do some planning for the future.
    I do hope all is going better for you Tim and please donít take what has happened to me will happen to you as like I said in the beginning not all things are the same. Some are similar. How are things with you? I could really relate to you when you said in your last email about your posture. I canít tell how many people have told me how lovely and straight I stand. But like you, it is because of pain.
    Anyway, thought I would keep you up to date. It is that time to go again. My daughter is coming soon, she wants me over there again. It is nice to be wanted. Take care, Roberta.
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    Old 02-22-2014, 01:43 PM   #26
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    Cool Re: cervical laminectomy

    Roberta, your ears must have been burning because I was getting pretty worried about you so I had planned to write today.
    I am SO sorry that things have not been going well for you, since I hadn't heard from you I was afraid that might be the case. It seems that you just can't get a break I am heart sick for you right now.
    I seem to be on a solid track of recovery at this time. I met with my Neurologist on Monday the 17th to review my latest mri and things look really good. I have full decompression with stable neck support and good disc space at every level so he doesn't think I will need a fusion any time soon ( whatever soon means to a neurologist ). There is no impingement anywhere in my neck and consequently there is unrestricted spinal fluid flow. Although I still have a few symptoms from the surgery they continue to lessen little by little every day with my neck pain while bending over still being the worse and still requiring some resting on my back during the day. The only real bad news is that my spinal cord does show some damage from the compression which is most likely the cause of my continuing burning hand pain. Whether I will get any improvement from this injury is simply unknown at this time but I will stick with Andy's mantra and keep hoping for the best.
    I don't really know if the Ostio Biflex Nutra Joint WITH gelatin ( my sister's magic elixir ) is working but since I have felt most of my improvement within the last couple of weeks I am absolutely going to keep taking it even if it is only nothing more than a placebo effect----I am now a believer that it is helping
    I am glad you seem to be blessed with caring kids who are there to help you which not all people are so fortunate to have. I wish only the best for you and you are certainly on my prayer list ( or if you prefer my good thoughts list ) as you have been a blessing to me when I needed it the most.
    lets continue to keep in touch.
    Thanks, Tim

     
    Old 03-13-2014, 10:19 PM   #27
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    Cool Re: cervical laminectomy

    Hey Roberta, I HOPE you are doing ok and all is well.
    Hang in there,
    Tim

     
    Old 04-11-2014, 05:52 AM   #28
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    Re: cervical laminectomy

    Hi Tim, well it has been awhile and a few things have been happening over here. I have been meaning to write and have been wondering how you have been but with everything happening things just seem to get side tracked. I hope all is still going well for you and you’re still taking your Osteo Biflex with Gelatin?
    I went to the specialist and the doctor put me back on Tegretol for my nerve pain in my head. So I have been trying to get over the side effects of that and the steroids I had as well. Not sure if I will do the injections again as the side effects are were really bad. Hot flushes, no sleep, incredible hunger which of course includes weight gain. Yuck!! Lasted nearly six weeks. Luckily things are slowly going back to normal and the weight is going with the appetite. But the pain in the head is coming back...can’t win. Anyway, will see how things go with the Tegretol. At least I managed to get a few things done in those few weeks. I felt normal...well sort of.
    The doctor is putting me through a series of tests before ordering a MRI. Not sure why, I would have thought it would have been quicker to find out with an MRI. Getting a nerve conducting test done on my hand/arm and one on my foot/leg. Also she wants to find out why I keep getting buzzing in different parts of my body at random times. So weird. I think it is the myelomalacia, the neurosurgeon said I have a lesion in my cord so maybe that is the problem.
    Lele my daughter is on tour at the moment and has already played Perth, Adelaide and is doing Brisbane tonight but it is too loud and nowhere for me to sit and watch. She will continue on and do Melbourne and Sydney and then home again. I am so proud of her. I made her several outfits for stage. I had to take a break from sewing every ten minutes and wear my collar. Hard work but it was worth it to see them on her.
    My eldest daughter is getting married next month so lots of arrangements happening for that as well. So busy, busy, busy. I just need to get through the next month and I will be happy. It’s getting late so time to go. Take care, Roberta.
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    Old 04-11-2014, 01:42 PM   #29
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    Cool Re: cervical laminectomy

    Roberta, SO good to hear from you, you had me worried.
    Yes I am still religiously taking my sister's magic elixir although I'm not sure if it is helping or not but I do continue to heal everywhere but my hands.
    I have been cleared to play golf again and maybe softball soon
    I am truly sorry to hear about your health issues and I keep you in my thoughts and prayers as you will never know how much your correspondence has helped me.
    That is exciting to hear about both of your daughters and way cool that you have made the stage outfits for Lele. Weddings are always exciting but also a lot of work so be careful not to push it.
    I had the honor of officiating ( thanks to the almighty internet ) one of my niece's wedding two weeks ago and it was really cool, I was nervous but everyone said that I did a good job---yea!
    Good luck with everything and take care of yourself.
    Tim

     
    Old 09-09-2014, 11:38 AM   #30
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    Re: cervical laminectomy

    Hi Roberta, it's been awhile, just hoping you are ok.
    Tim

     
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