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  • I Hurt So Bad, Where's The Relief?????

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    Old 04-22-2014, 06:44 AM   #1
    Mzdaisy1029
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    Angry I Hurt So Bad, Where's The Relief?????

    Hi Everyone, I'm a newbie and would like to know anyone's opinion on my full spinal MRI, specifically MYELOMALACIA. I am familiar with most of the findings, I just wanted other opinions. Considering changing my neurosurgeon, I feel he isn't telling me everything. Just brushes things off to arthritis, which I do know is present, but there are other things going on from what I'm feeling and the findings that he's not even willing to take the time to answer my questions about. What I'm feeling isn't in my head, I live with CONSTANT, DAILY PAIN, and this is just my spine, not including the other areas of my body. Thanks in advance .


    Technique:
    Sagittal T1, sagittal fast spin-echo T2, axial T2 weighted fast spin
    echo and axial T2 weighted gradient images of the cervical spine were
    obtained. Sagittal and axial T1 weighted images were obtained after
    the intravenous injection of 20 ml. of Magnevist from a single dose 20
    mL vial.

    Axial and sagittal T1 and T2-weighted images of the thoracic and
    lumbar spine were obtained without the administration of intravenous
    contrast.

    Findings:
    Cervical spine:
    There is anterior fusion hardware of C4-C5. There is no evidence of
    fracture or subluxation. There is straightening of cervical lordosis.
    The craniocervical junction is unremarkable. Visualized intracranial
    structures are unremarkable.

    There is redemonstration of linear increased T2 signal within the left
    lateral aspect of the spinal cord at C4-C5 with associated mild cord
    atrophy. There is no expansile spinal cord lesion. There is no
    pathologic enhancement.

    There are multilevel degenerative changes of the cervical spine.

    At C2-C3, there is a left paracentral disc protrusion with mild
    flattening of the left ventral aspect of the spinal cord and
    flattening of the ventral left C3 nerve root.

    At C3-C4, there is a broad-based spur disc complex abutting the spinal
    cord and resulting in mild left neuroforaminal stenosis. The disc
    component at this level is smaller when compared with prior MRI,
    abutting the cord without spinal cord compression.

    At C4-C5, there is a broad-based disc spur complex with bilateral
    uncovertebral joint fusion resulting in mild to moderate bilateral
    neural foraminal stenosis.

    At C5-C6, there is a broad-based disc spur complex with moderate
    bilateral neuroforaminal stenosis. There is no significant spinal
    stenosis.

    At C6-C7, there is a broad-based disc spur complex with mild narrowing
    of the bilateral neuroforamina. There is no significant spinal
    stenosis.


    Thoracic spine:
    There is no evidence of fracture or subluxation. Vertebral body
    heights and alignment are maintained. There is no pathologic marrow
    signal. Thoracic spinal cord has normal caliber and signal intensity.
    There is right facet hypertrophy at T4-T5 with mild right
    neuroforaminal stenosis. At T5-T6, there is bilateral facet
    arthropathy with mild right neuroforaminal stenosis.

    Lumbar spine:
    The conus terminates at T12-L1. Caudal spinal cord has normal caliber
    and signal intensity.

    There is no evidence of fracture. Vertebral body heights are
    maintained. There is no pathologic marrow signal. There is grade 1
    anterolisthesis of L3 on L4 and grade 1 retrolisthesis of L4 on L5.
    Alignment is otherwise anatomic. There are multiple levels of disc
    desiccation and degenerative change.

    At L1-L2, there is a mild broad-based disc bulge with mild compression
    of the thecal sac.

    At L2-L3, there is a mild disc bulge with bilateral facet arthropathy
    resulting in mild impression upon the thecal sac.

    At L3-L4, there is mild broad-based disc bulge with small superior
    disc migration eccentric to the left. There is bilateral facet
    arthropathy. There is mild ventral and posterolateral thecal sac
    compression.

    At L4-L5, there is a broad-based disc bulge with inferiorly migrated
    disc protrusion eccentric to the right. There is bilateral facet
    arthropathy with mild sac compression.

    At L5-S1, there is a broad-based disc bulge with inferior migration
    and bilateral facet arthropathy without significant central or
    neuroforaminal stenosis.

    Impression:
    1. Anterior cervical fusion hardware with disc components at C3-C4
    abutting the cord and no longer compressing the cord.
    2. Unchanged linearly increased signal in the left lateral aspect of
    the spinal cord at the C4-C5 level with associated mild cord atrophy
    consistent with myelomalacia.
    3. Multilevel degenerative changes of the cervical spine as described
    above.
    4. Mild multilevel facet arthropathy and neuroforaminal narrowing of
    the thoracic spine.
    5. Multilevel degenerative changes of the lumbar spine as described
    above.

     
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    Old 04-23-2014, 04:18 AM   #2
    istitch4ever
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    Re: I Hurt So Bad, Where's The Relief?????

    Hi Daisy -- I am mortified to hear you remain in such dire pain -- without having relief while you get an answer to your spinal problems. Have any of your doctors recommended a weekly pain patch like Butrans or something to lower your pain level temporarily while this is figured out? Are you also seeing a Pain Specialist besides a Neurosurgeon? I surely hope you are able to see more than one type of specialist to help you....soon.

     
    Old 04-23-2014, 05:04 AM   #3
    Mzdaisy1029
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    Re: I Hurt So Bad, Where's The Relief?????

    Hi Istitch, thx for your compassion and response. Yes, I've been in physical therapy, a pain clinic for almost 2 yrs now, epidural injections, lyrica, GABA, muscle relaxtins and lidocaine infusions, along with oral lidocaine afterwards (which changed my heart rhythm), none of which helped at all. But they insist that I keep taking and my question was, "WHY?" They're not helping and who knows what damage they're doing to my body and my pockets can't and won't keep paying for these expensive meds that don't work! I pray that I find someone who will and can help me soon, this is too much, but it keep the faith. Thx again!

     
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    Old 04-23-2014, 11:55 AM   #4
    istitch4ever
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    Re: I Hurt So Bad, Where's The Relief?????

    Daisy -- I'm not qualified to give you an opinion on your MRI -- but I've thought of one more possibility for pain relief. It sounds as if you have gone thru enough 'hoops' where you might qualify for BOTOX Pain Treatments. You need to have a specialist document all the treatments you have done (they should know how to write up a Case Report) and send it to your primary insurance. Someone in your nearest large city should deal with Botox (maybe a Neurologist) as a pain reliever, given every 3 months. ..or have you already tried this.

     
    Old 04-24-2014, 06:01 AM   #5
    Mzdaisy1029
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    Re: I Hurt So Bad, Where's The Relief?????

    Hi Istitch, no, I've NEVER been presented with this option, nor has it been discussed with me as an option. I sure will ask about it and thank you so much. God bless you!

     
    Old 04-24-2014, 11:35 AM   #6
    istitch4ever
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    Re: I Hurt So Bad, Where's The Relief?????

    Driving Ms. Daisy to Wellness: There's lots of good websites to check out there about Botox injections. Use the well-known ones you know about that have good reputations. also use the 'big' hospital names are across the USA -- the ones that have the clout to be called 'good'. I'm not sure I'm allowed to say their names here -- Anyway, there are lots of good info sites out there about Botox -- it's been around for over 12 years now and has had many a clinical trial done to prove its worth for PAIN control. I'm in the process of having my Case Study report written as we speak and I'm ecstatic....... as my 'hoops' have finally been filled. I'm having some success with the Butrans patch but only for about 5 days out of the 7. Still, that's better than nothing. It gets me out of bed -- and I can do things.....

     
    Old 04-25-2014, 04:53 AM   #7
    Mzdaisy1029
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    Re: I Hurt So Bad, Where's The Relief?????

    Thank you soooooo much, I will surely begin researching and asking my docs about it. 5 out of 7???? Now, that's relief! I pray that all goes well for us all. It's no joke when you are living like this, it's not life and I have a very active 7 y/o daughter who can't wait to go to the park when the weather warms up....ughhhh.....ouch! Pray my strength as I pray yours. God bless.

     
    Old 04-25-2014, 06:44 AM   #8
    teteri66
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    Re: I Hurt So Bad, Where's The Relief?????

    Would you mind describing your pain symptoms...what makes it better or worse? Do certain positions make it worse or bring some relief? I have some thoughts to share with you, but will wait to post until I know more about your symptoms.

    Do you have pain and/or numbness in your feet? Has the neurosurgeon mentioned anything about the spondylolisthesis?

    I would suggest that if you change doctors, you might like to look into finding a fellowship-trained orthopedic spine surgeon for a second opinion.

     
    Old 04-25-2014, 10:30 AM   #9
    Mzdaisy1029
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    Angry Re: I Hurt So Bad, Where's The Relief?????

    Bat 8yrs ago I stood up and fell right back down. The pain in my left hip was new and I couldn't stand. I had recently given birth 5months prior, so I thought it was from that. Never happened again until months later, then I couldn't lift leg to get into the car, go up stairs or walk. Come to find out my hip was gone due to osteoarthritis. My doc did a total bone scan and showed the osteo throughout my body. Had total hip replacement, entire body in pain, muscles ached and sore all of the time, tired, ankles and knees stayed swollen and in pain. April 2012 I awoke to my left hand tingling and numb as if I'd slept on it wrong, it never went away and the pain traveled up my arm, shoulder, neck and back. I eventually went through ER because I thought I'd had a strike. They did a cervical CT scan and told me to call a neurosurgeon the very next day. Before I could call, he was calling me telling me to come into the office. He showed me my CT scan which revealed the disc at c4-c5 was pressing my spinal cord and if I didn't have surgery immediately, I would become paralyzed. Did that after much prayer, but my hand, arm, shoulder and neck symptoms never went away, still have them today. He sent me to physical therapy, prescribed GABA and muscle relaxants, no help. Then sent me to pain clinic, they prescribed lyrica after GABA didn't work, changed muscle relaxant, continued cymbalta, did 3 epidurals, 2 lidocaine infusions and then prescribed melextine (oral lidocaine), ( which changed my heart rhythm), so I stop going. Why go when nothing they done for almost 2 yrs worked and why keep pumping that mess into my body when it did not work or help? So, my back began hurting me so bad recently, I couldn't move, I thought bladder/kidney inf. no, so my pop ordered a FULL spinal MRI and the results were according to the neuro my back is riddled with arthritis and wrote a physical therapy order, but I'm left in the meantime in CONSTANT, DAILY PAIN. Will therapy take that away????? Diagnosed with fibro, cervical spondylosis with myelopathy, cervical radiculopathy. It feels as if my spine is a set of dominos that are stacked on top of one another loosely letting them fall I can't lay on my back, it hurts when I sneeze, cough or inhale deep, constant snapping, popping, cracking (which is painful in itself), my legs hurt sooo bad, when lying on my left side, my entire foot becomes numb. I'm just a painful mess!

     
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