It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Spinal Cord Disorders Message Board

  • Myelomalacia

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 03-09-2015, 07:21 PM   #1
    xrox
    Junior Member
    (male)
     
    Join Date: Dec 2006
    Location: CA
    Posts: 26
    xrox HB User
    Myelomalacia

    This term seems to be ambiguous rather than specific.

    If you look up the word MYELOMALACIA on the interent you find info telling you it is a progressive disease ending in paralysis and/or death.

    In reality it actually seems to be a more of a general word radiologists like to use on MRI reports to say that there is an area of increased signal. This could mean any of the many causes of light spots on the cord including MS lesions, myelitis, infection, bruising, bleeding..etc

    My neurologist said it just means there is a white spot on the MRI of the cord.

    Is this accurate?

     
    Sponsors Lightbulb
       
    Old 03-10-2015, 06:27 AM   #2
    teteri66
    Senior Veteran
    (female)
     
    Join Date: Nov 2010
    Location: USA
    Posts: 9,154
    teteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB Userteteri66 HB User
    Re: Myelomalacia

    Are you having any symptoms?

     
    Old 03-10-2015, 08:22 AM   #3
    xrox
    Junior Member
    (male)
     
    Join Date: Dec 2006
    Location: CA
    Posts: 26
    xrox HB User
    Re: Myelomalacia

    I am actually only looking for some feedback on the possible ambiguity of the terminology. Is what my neurologist said correct?

    The term is on my MRI report so either I am going to slowly be paralyzed and die or it just means they found a white spot on the cord. It would help to confirm or clarify the terminology.

     
    Old 03-10-2015, 12:41 PM   #4
    ChuckStr
    Veteran
    (male)
     
    Join Date: Apr 2014
    Location: seattle wa USA
    Posts: 406
    ChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB UserChuckStr HB User
    Re: Myelomalacia

    It shows up on one of my radiology reports as well and if accurate has been there almost 10 years. I'm not planning on going anywhere soon, and I'm not paralyzed so I'm not sure about the paralysis and death thing.

    I've had several neurologists, spine surgeons and neuroradiologists look at the images and they all use the term to mean non-specific t2 hyperintensity on mri. That's it. Secondly, it is not uncommon for motion artifact or other issues to appear similarly which is what everyone other than the single general radiologist read.

    I would listen to your neurologist. Now if you are having symptoms like gait disturbance, incoordination, bladder issues etc. Then that spot may be signify some damage to the cord. This is why that finding (and all others for that matter) on mri has to be correlated with clinical signs abd symptoms.

     
    Old 03-10-2015, 01:08 PM   #5
    xrox
    Junior Member
    (male)
     
    Join Date: Dec 2006
    Location: CA
    Posts: 26
    xrox HB User
    Re: Myelomalacia

    Thank you for confirming that the term is often used that way.

    I am definitely having issues and that is why the MRI was done in the first place. No weakness anywhere though. Just paresthesia and urinary urgency that comes and goes over the last 6 months. The weird thing is that they alternate like a switch. When I have urgency I have no other symptoms. Then a switch goes off and I have paresthesia in both hands and feet and no urinary issues. Very odd.

    FYI - My neurologist suspects my issues are from Humira use (demyelination) or MS. I personally think that my issues could be from positional stenosis. When my neck is extended the canal is only 8mm wide at one point with sharp points indenting the CSF and possibly barely touching the cord.

    I had an MRI Jan 8th which shows no lesions on T1 or T2. I then had a whole spine MRI on Feb 22 and that is where they say a "questionable myelomalacia" was found on T1 (T2 was not done).

    I am now going to have another MRI of just the neck with GAD and T2.

     
    Closed Thread




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 03:13 PM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!