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  • Bilateral Cerebellum Stroke

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    Old 09-11-2013, 12:57 PM   #1
    MissSP
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    Bilateral Cerebellum Stroke

    Hi Everyone

    My dad had a bilateral Cerebellum Stroke on the 17th of July 2013. His neurosurgeon did a crainotomy immediately and my dad made it though the operation. The doctors advised us that a stroke on both sides of the brian is very rare and they were not very optimistic that he would pull through it but he did. He woke up 3 days after the opertaion once the induced coma wore off and he was able to move both sides of his body and communicate. A few days later his blood pressure started to increase and it almost reached 300 at one stage so the doctors put him into an induced come again just to get the situation under control. He woke up from that coma and was also doing well but a few days later he became unresponsive. His CT scan showed fluid on the brain. The neurosurgeon inserted an external VP shunt to drain the fluid (he could not do the permanant shunt into his stomach as they discovered an infection in his brian so it was risky as the infection might spread to the rest of his body). He woke up after the op and he was doing well again but then became unresponsive again. Another CT scan showed fluid elsewhere on then brain. The neurosuregon inserted another VP shunt, this time a permanent one as the infection cleared. He woke up again and was doing well then became unresponsive again. Since then he has needed another crainotomy and had had 5 VP shunt operations. The shunts were blocking and the fluid was not draining, two weeks ago the neurosurgeon removed the valve from the shunt to prevent blockages and this seems to be working as the last 2 CT scans were good, he had one done yesterday. He alos had a tracheotomy as he stopped breathing at one stage. Last week my dad was doing very well, managing to sit and even breathe on his own for extended periods of time. But on Sunday he became very sleepy again. He opens his eyes for seconds and nods his head that he hears us sometimes but that is about it. Originally we though that there was fluid on the brain again and that is why he had a CT scan done yesterday but that was good. He had a peg instered into his stomach on Monday night to feed him as well so he was under anestetic again so I understand him being tired after that operation but even today he is just much more tired than last week. He has also developed another infection again but we are still waiting for the blood results to indicate where the infection is. The doctors think it is in the chest. This has been a very difficult journey as it has been full of ups and downs. It is also very difficult to see your father so helpless and suffering. Fortunately his vital signs have been stable most of the time and he keeps fighting every day so there is hope. He is only 54 and had a heart bypass last year so he was looking after his health and getting regular check ups. My question is it normal for him to sleep all the time for 3 days now without there being any fluid on the brain? The doctors keep saying they don't know what to do anymore but they are still trying. He is not in a coma as he does respond and his scores on the Glasgow Coma scale were 9/10 and 10/10 today (since he is on the trachea the score is only out of 10 and not the 15). Any feedback will be greatly appreciated. I have struggled to find information on bilateral cerebellum strokes as they are so rare.

    Last edited by MissSP; 09-12-2013 at 12:53 AM.

     
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    goingtorun (09-12-2013)
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    Old 09-12-2013, 12:39 AM   #2
    goingtorun
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    Re: Bilateral Cerebellum Stroke

    G’day MissSP ,
    I’m saddened to hear your father is going through such a rough time. I wish to welcome you to our family of stroke survivors. Your father has just had a couple of enormous to hits to his brain to say the least. No two strokes are the same, but do share a lot in common.
    Sleeping is very common in stroke patients; I know I slept quite a bit in the early days of my stroke recovery. I suffered a clot in the brain stem, which is different to your fathers. I to was 54 and had the stroke on18th of March 2010.
    The initial months are the most taxing on patient and families. Recovery is a long and hard road, you have to stick to guns and never give up.
    I hope I was help to you.
    Please keep in touch.
    God bless you, your dad and all your loved ones.
    George...........

     
    Old 09-12-2013, 01:06 AM   #3
    MissSP
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    Re: Bilateral Cerebellum Stroke

    Hi George

    Thank you for your post and the encouraging words and support. It is a difficult time but me and my family will always be there for my dad and we won't give up supporting him though this. I am sorry to hear about your stroke, can you please tell me more about your recovery process? It is almost 2 months since my dad's stroke and I though he would be on a road to recovery now and out of ICU. On a positive note his infection markers came down slightly today. Once again thank you for your feedback.

    Kind Regards
    Sylwia

     
    Old 09-14-2013, 08:33 PM   #4
    goingtorun
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    Re: Bilateral Cerebellum Stroke

    G’dayMissSP ,
    Hope you and all your loved ones are well and in good spirits. I’m still on the long road of recovery, If I make a full recovery no one knows, but it won’t be from lack of trying. Three years on I’m still making very slight improvements. The recovery rates varies from person to person.
    Its difficult for me to time line the past three years due to my memory not being what it used to be. In any case I basically stuck to all the therapy I was told to do and then sum.
    It’s hard to compare strokes, one must listen to the therapist and act on their advice.
    I have learned to walk and talk I’m not back to where I was before the stroke and one day I’m going to run again. One must not give up.
    I hope I was able to help, my previous posts are a good record of my journey.
    God bless you.
    George.

     
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