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myelin disorders, or genertic disorders

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Old 03-11-2007, 12:58 PM   #1
Join Date: Mar 2007
Location: coastal Washington State
Posts: 354
michael178 HB User
myelin disorders, or genertic disorders

I have an adult onset of an unknown leukodystrophy, and I think there are too few people with these diseases for me to suggest a separate board for leukodystrophy, but I think it would be nice if there was a board, or sub board, for myelin disorders, or maybe even better yet for genetic disorders, that way I could at least meet people who are struggling with some of the issues I struggle with.

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