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  • Please tell me I don't have anaplastic thyroid cancer!

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    Old 12-05-2015, 04:15 AM   #1
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    Please tell me I don't have anaplastic thyroid cancer!

    OK, I am so terrified. Try to not focus on this but I can't help it.

    Two weeks ago today was the first time I felt anything. The day before I was at the doctor for a check, she felt my thyroid and she felt nothing. The next evening I felt something very small, and I swear since then it just keeps getting bigger.

    Went to the doctor the Monday after I first felt it (first felt it on the 21, went to the doctor on the 23). She felt it - because it is right there! She did lab work - TSH was in normal range, but on the lower end. Free T4 and total T3 were also both in normal range but on the higher end of normal. Thyroglobulin was 49, with normal being less than 50, but thyroglobulin antibody was 25, and should be less than so I know that Thyroglobulin test isn't accurate. My anti-thyroid antibody is over 800 and it should be less than 5.61. Had an U/S on 11/30 (with Thanksgiving in there I couldn't get in anywhere until then)

    The U/S showed for nodules. Three of them clustered together on my left thyroid lobe, sizes: .4cm, .8cm and 1.01 cm. The endo I saw on 2nd said they look almost like psuedonodules from Hasimotos. The looks of them were more worriesome because of the shape, but she felt like they were really nothing to worry bout. The guy on my right lobe is the one that she is worried about. He is 3.01cm. She did say he is very well encapsalated, and honestly looks like a nodule that looks just like the thyroid itself. She said "He needs to be biopsied and come out" She tried very hard to get me in that day to have someone biopsy it but the earliest we could get in anywhere was this coming Monday (two days from today).

    I swear it is getting larger by the day - I know it could be in my head - but I swear it is. Since wednesday my throat has started to hurt and it always feels like there is something in my throat that needs to be swallowed. By the end of every day my neck aches all the way up to my ears. Added to that, I think I am actually catching something (high allergy season here right now), my ears hurt and itch, sounds like water in my ears, having severe virtigo, lymphnodes in the back of my neck swelling, when I do swallow I hear this clicking noise when the nodule hits the trachea (it moves with they thyroid when I swallow) and I am pretty sure post nasal drip down the back of my throat (always sticky nasty that needs to be swallowed). Added to that this horrible taste in the back of my mouth - metallic tasting almost. Logically, I know it is probably all related to the post nasal drip causing ear issues, and probably the bad taste in my mouth. . .but I am scared! My mind keeps going to it being anaplastic thyroid cancer and it spreading like wildfire! I do logically know that is the least likily thing to have happen - but my mind just can't get beyond it.

    Really would love to hear something from anyone else who has gone through something similiar.

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    Old 12-05-2015, 10:18 AM   #2
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    Re: Please tell me I don't have anaplastic thyroid cancer!

    Well, I haven't been through anything like that, but I do understand you'd be worried and how imagination can do a number on a person. I recently googled myself into thinking I had lung fibrosis and would be dead within 5 years. Turned out to be acid reflux. So be careful of letting your emotions rule your head.

    If I were in your place, I'd find a lot of comfort in the fact that anaplastic cancer is mostly a disease of old men. Maybe it would help to repeat that to yourself over and over until you get a firm answer.

    Your biggest hurdle might be finding professionals willing to ignore the holidays and to put their work first.

    Do try to calm yourself by whatever technique works for you. Maybe music, exercise, a long walk, a hot bath... Really... There is no use to worrying before you know what to worry about.

    Let us know how the biopsy goes.
    Hugs to you.
    "We can complain because rose bushes have thorns, or rejoice because thorn bushes have roses." Abraham Lincoln

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    Old 12-05-2015, 04:43 PM   #3
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    Re: Please tell me I don't have anaplastic thyroid cancer!

    Thank you Midwest. I keep going from "More than likely it is nothing or if it is Thyroid cancer most of them are very curable" to "OMG this is going to be my last Christmas with my babies!" I know it isn't realistic. Even before this I have been very anxious the last two months (like wake up in the middle of the night and run to work to make sure I did something I didn't remember doing). Until this nodule thing I just thought I was in peri-menopause (had my uterus removed several years ago - but I still have one ovary and last u/s of that showed it was very small and looked like it was slowing down).

    I just hate this waiting game. I want to have my thyroid removed yesterday and am very frustrated with this, "we will see you next week" attitude.

    Thank you again. . .

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    Old 02-18-2016, 10:04 AM   #4
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    Re: Please tell me I don't have anaplastic thyroid cancer!

    I am waiting to get in for an U/S with biopsy as well. I have had multiple doctors feel my thyroid but all of a sudden there it is, enlargement. I feel it choking me everyday a little more. I know it's in my head. Just trying to get through. How are you now?

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    Old 02-18-2016, 10:39 AM   #5
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    Re: Please tell me I don't have anaplastic thyroid cancer!

    I know it's hard not to panic, I was there 6 months ago. I felt my neck noticed a HUGE lump, which we assumed must be a goiter, but the doctor said it was not a goiter but a nodule of some kind, and then "rushed" me in for an ultrasound. Being the NHS that meant 2 months wait. 2 months of HELL while pregnant wondering if I had cancer. Then the scan showed a 6cm nodule and I had to wait another 6 weeks for the biopsy. They removed 50ml of fluid (with 5 very painful needles) and told me it was fine, not cancer. But the 50ml of fluid refilled overnight.

    6 months down the line I see the ENT hoping to get it removed because it is very uncomfortable and not easy to eat, and when I lie down I feel like I'm choking, but he refuses and says we should keep draining it. But at least it's not cancer. now my tsh is very low, so I'm waiting to see him again. The fact that your TSH is on the lower end and with the other nodules really means it's likely just a benign nodule as cancerous ones rarely affect the tsh (or so I read). SO anyway, you are more than likely just fine, they just want to remove it because it's big. stastistics are really really on your side. Hugs and keep us posted

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