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  • 30 year old female needs advice/help with thyroid issue.

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    Old 04-06-2016, 03:17 PM   #1
    Bree888
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    30 year old female needs advice/help with thyroid issue.

    okay so i am a little worried....back in Jan my primary doctor found out I had hyperthyroidism and sent me to an endo (who I really do not like but I live in a small town and don't have much of a choice) anyway she put me on hormone blockers and told me I do not have graves disease (which is good) since being put on the blockers in late Jan they have adjusted the dosage so many times (which I understand why) anyway I have had two periods within 13 days of each other before being put on this meds I was always a couple days late (no more than 3) or right on time. this scares me should I call her office and fight with her? all she will say is that she knows what she is doing that's the only answer I ever get from her when I ask questions. or is this pretty normal if I go from hyperactive to hypoactive due to the hormone blockers? like I said I never had 2 periods in one month before. any advice or help would be appreciated.

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    Old 04-07-2016, 09:28 AM   #2
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    Re: 30 year old female needs advice/help with thyroid issue.

    I can't comment on your doctor's treatment regime, but I do know that I would object strenuously to any doctor playing god and refusing to discuss treatment at length.

    One thing I might suggest is that you obtain copies of all of your blood tests, past and future. This will allow you do your own research and to get a better sense of what is going on. This might allow for more productive conversations with your doctor.

     
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    Old 04-07-2016, 09:43 AM   #3
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    Re: 30 year old female needs advice/help with thyroid issue.

    i have asked her on 3 visits for copies and she says she keeps forgetting to send me copies of my lab tests and my ultrasound/biopsy/and uptake results I talked to my sister who took law in school for a couple years and she said I might have to go right to the records department and get them there instead of the doctors office if my doctor is being that "forgetful" so next time I am at her office in the hospital (a couple more weeks) ill try that since records is a few hallways down. my biggest concern right now is why I went from being almost normal menstrual cycle to having one cycle for 5 days then waking up to another 13 days after the first started. I called her office today and talked to the receptionist I said I need her to call me back I am worried about this issue and was just told she will call me back with in 48 hours.

     
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    Old 04-07-2016, 10:31 AM   #4
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    Re: 30 year old female needs advice/help with thyroid issue.

    As long as your thyroid levels are in flux, your periods are likely to be atypical.
    It's not the thyroid med that's causing trouble; it's the thyroid condition itself.

    In the meantime, take appropriate BC precautions, if that's a concern. Your cycle may be 'off' for quite a while.

    Edit to add: It's a shame you're saddled with such an arrogant endo. Is there perhaps a partner in the practice you can switch to if switching practices isn't possible?
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    Last edited by midwest1; 04-07-2016 at 10:32 AM.

     
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    Old 04-07-2016, 11:27 AM   #5
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    Re: 30 year old female needs advice/help with thyroid issue.

    the practice with in the hospital has 2 other doctors after meeting the endo I was referred to and not liking her right away since she is pushing radioactive iodine really hard not understanding that is not possible for me at the current time since I have a 2 year old and am a single parent I looked into switching to one of the other 2 in the practice one was 100% booked for about a year the other one was a herbal thyroid MD (or something like that) and having low income state insurance she does not accept that. I can go out of practice but I am looking at about an hour drive out of my way to do so. I am meeting with an oncologist on the 12th to go over radioactive iodine and "see if im a fit" (which I wont be like I said single parent of a 2 year old) the next step after that according to my endo is referring me to a surgeon (which is fine will be less of a hassle) however I am nervous about that as well cause I am unsure if this endo is also testing my T3 and T4 levels since I have not been able to get my hands on my blood work yet. I feel 100 times worse on meds than I did not taking them so I know something is going on and this endo just keeps saying to trust her she knows what she is doing and that its just my hormone levels adjusting to the blockers.

     
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    Old 04-07-2016, 03:30 PM   #6
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    Re: 30 year old female needs advice/help with thyroid issue.

    I dislike your doctor, too, just going by what's she's saying and doing. If she's saying it's not Graves', but she's pushing hard for Graves' treatment... Why? If it's not Graves', it might be something temporary that she wants to fix with permanent destruction of your gland. Don't buy it.

    Doctors are wrong a lot. Trusting one without question is the worst thing anyone can do, IMO. In my life, I knew a doctor who told my SIL that her fifth baby's eyes just had blocked tear ducts. (Fifth baby - a mom knows the score!) It was not blocked tear ducts; it was congenital glaucoma that would have blinded the baby within a year or two.
    Another MD told my dad he was "just depressed" and should snap out of it, when it was actually a metastatic brain tumor that was slowly paralyzing him.
    I had a doctor tell me that my platelet count of 33 was "completely normal" when the standard reference range is 150-400.
    And I had a young friend, age 22 at the time, who was undergoing an invasive lung exam (bronchoscopy) in the MD's office instead of a hospital. She suffered an allergic reaction to the local anesthetic and died on the spot. He didn't even have a tank of oxygen on hand, let alone resuscitation equipment.
    I have stories about thyroid imbeciles that I won't even go into now.
    All examples of why you need to do your own homework so you'll know if you're being led in the wrong direction.

    If you can possibly swing it, get a copy of Thyroid for Dummies by Dr. Alan Rubin. Read it cover to cover. You'll discover that you don't need to have RAI unless you're fighting thyroid cancer. Your condition can be managed with anti-thyroid drugs, but you have to be patient and give them a chance. The dose will need to be adjusted often. Most endos are impatient with the process. That's why they push RAI or surgery so hard.

    If you can't get the book, at least read our "Thyroid Symptoms List... " sticky thread.

    RAI and surgery will render you permanently hypothyroid. Then you'll be dependent on that dictator of an MD to allow you enough thyroid hormone to keep you healthy. Don't assume she'll do that well if she can't manage the original condition first.

    It might do you well to make the drive to a different doctor.
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    Old 04-07-2016, 03:46 PM   #7
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    Re: 30 year old female needs advice/help with thyroid issue.

    when I went in for the thyroid ultrasound I had a very nice tech I asked him if he could give me any information after the ultrasound cause I was having issues with getting answers from my endo he said he should not but I would find out anyway and told me from what he could see I had 3 nodules and he looked at the uptake test results also and said that from the uptake test they appear to be non cancerous but toxic (not really sure what that means but I was thankful to him for that information) the next time I saw the doctor she ordered a fine needle biopsy (which HURT and I will not go through that again) but never gave me the results so I assume they are not cancer just producing way to much hormones from what I read on what information I got from the ultrasound tech depending where the toxic thyroid nodule be able to get just some of my thyroid removed and not all of it. but like I said before I agree to any treatment im going to see all my test and lab results and make sure she is also running my t4 and t3's and not just TSH.

     
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    Old 04-07-2016, 05:06 PM   #8
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    Re: 30 year old female needs advice/help with thyroid issue.

    "Toxic" nodules are producing their own supply of hormone, which creates an excess. Toxic (aka "hot") nodules are extremely rarely cancerous. There was no real need to biopsy them.
    I would be questioning every single thing out of the woman's mouth. Although, the fact that she's not telling you much is even worse.
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    Old 04-07-2016, 05:32 PM   #9
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    Re: 30 year old female needs advice/help with thyroid issue.

    yeah like I said I was at my leashes end I hate that she is not telling me much and giving me a run around about test results and pushing radioactive iodine when I told her I have a 2 year old at home and am a single parent (I lost my partner about a year ago to a car accident) so I have no one I trust enough to take care of my child for three days afterwards one day or possibly two I can manage having her stay with my father or sister but any more than that and I would become paranoid. but she seems to either not care or listen to my problems. I am going to see what the radioactive iodine specialist says and hope he will agree with me and will make this a whole lot easier. my endo does not want me to stay on methimazole for more than 6 months and I was put on it late Jan so that time frame is almost up. I am also upset that I feel worse since being put on it than I did when I was hyperactive and diagnosed I have a couple close friends who are frankly worried about me because I have been getting angry easy then will be down in the dumps for a couple days then will be fine but tired I have told my endo about the mood swings last time I saw her and she said that's normal till we can get the hormones correct but when I was not on meds I was never that manic in my moods. I feel bad that I have snapped on a few friends for checking in on me but they are close and said they understand when I apologize. I am close to stopping the meds and just leading my life as hyperactive unless I get really bad symptoms the only reason I was even diagnosed was cause I was tired a lot (no other symptoms) and now on top of being tired all the time I am gaining weight have irregular periods and am manic mood swings. never mind the itchy spots I randomly get from the meds.

     
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