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  • So tired of being tired ... when will it end.

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    Old 07-18-2016, 04:29 AM   #1
    Laura266
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    So tired of being tired ... when will it end.

    So the long story...my son was born 12 years ago, and shortly after giving birth I began to feel unwell😷. My lovely Dr ran some tests which came back to show my thyroid was overactive, we discussed what this would mean in terms of treatment. The Dr monitored me and repeated the tests two weeks later. This time the results showed that my thyroid was now underactive. I was started on levothyroxine, after a 18 months of treatment I saw a specialist at the hospital. The specialist explained that I had Post partum thyroiditis which normally returns to normal however because of the amount of time I have been experiencing the problem I would mostly likely have to continue treatment for life😕.

    When my son was 3, we moved from Plymouth back to my hometown in the Midlands. I registered at a new GP, and continued to be regularly monitored.

    Previously I had been taking between 125mg and 150mg of levothyroxine depending on the results from regular tests and during this time I felt normal on this dose, I was happy, healthy, I wasn't over weight, I regularly went swimming and to the gym😀.

    After a while with my new GP my dose was lowered to 100mg and then 75mg and then shockingly I was told that I should stop taking levothyroxine as my results showed that my levels were normal and I no longer needed it😱. I was in total disbelief and questioned the GP but he insisted that I should stop taking the medication. During this time I was gradually putting on weight, and finding I had less and less energy😰.

    For, a number of years I continued to suffer. I changed GPs again, and begged to have my thyroid checked. I was repeatedly told that I was within a normal range or its borderline underactive but just within the range so no need for treatment despite my symptoms😤.

    Over the last 5 years my symptoms have progressively got worse. To the point where I can barely function enough to manage normal daily activities😴.

    Last November I was repeatedly seeing different doctor's for problems with sleep and feeling tired, I was close to giving up I was feeling that low and that exhausted by it all 😢. The Dr was about to send me out of the door with a new prescription for some sleeping tablets when I casually said 'do you think we could run some bloods tests to see if there is anything contributing to my sleeping problems?' he responded with...'hmm yes that seems like a reasonable request' and so tests were done...again.

    This time it showed my thyroid was once again underactive 😱. I was started on 25mg of levothyroxine and told to have the test repeated in 2-3 months (My TSH was 6.something). The results of my next test came back higher so my dose was increased to 50mg ( My TSH was 7.something). My third test had spiked even more which explained why I was feeling worse than when I was diagnosed, my dose was once again increased this time to 75mg (My TSH was 9.something). In my next test it showed a slight improvement compared to the previous one but I was still over the normal range so I was told to alternate between 75mg and 100mg as it was feared that increasing too much would send me the other way (My TSH was 8.something).

    During this time my Doctor was also treating me for depression. This became her primary concern, and although I was trying to explain that in my mind I felt like I wanted to get out and do something active and felt excited about things that were happening in my personal life but my body was so physically exhausted I just wasn't able to do the things that I want to do. Her response was that I should give it time and when my mind has healed by body would heal too 😤. I wanted to scream! 😬

    Thankfully at my next review she was off sick. I saw a lovely young doctor, who for the first time in 7 months made me feel like it wasn't all in my head. He listened to how I was feeling and he took the time to explain what was happening to my thyroid gland and why they looked at TSH. He reassured me that we will fix this and I will feel normal again. He increased my dose to 125mg.

    I returned last week to get my results, there has been no change at all even with the new dose (My TSH is still 8.something). He confirmed that I have the Hashimotos antibodies. He has now increased my dose again, this time bumping it up to 200mg in the hope that we can get to the bottom of this and hopefully I can start living my life again😓.

    In the last week, I haven't felt any different but I no it will take time.

    I'm trying to read and research what it means to have Hashimotos and ways that I can help myself.

    I'm in pain most of the time, I'm often kept awake with muscle cramps and back pain, I get awful heartburn that often makes me sick, I'm forgetful, uncoordinated, I often get headaches and feel dizzy, im now at least 6 stone over weight, and I'm emotional and frustrated at feeling like this. I have forgotten what it's like to be normal. I feel isolated from the world. 🙇

    Thank you for taking time to read my story, I'm sorry it's long. I'm sure that some of you will recognise the struggle, and hopefully share some thoughts to no only give myself but also others like me hope.😘

    Laura

     
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    Old 07-18-2016, 09:19 AM   #2
    Sadtosay
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    Re: So tired of being tired ... when will it end.

    I'm so sorry you're going through all of this.

    The doctor who took you off the medication seems to have been one of those doctors who hasn't been fully educated on thyroid issues, which can be complex. The symptoms you describe are classic hypo symptoms. Unfortunately, many doctors treat on the basis of TSH, which doesn't tell the whole story.The fact that your TSH bounced around like it did was a clear signal that you have Hashimoto's and need treatment.

    I understand from first-hand experience how painful it is to know that you are physically ill, yet have medical professionals who should know better treat you for mental problems instead. I got that treatment for almost 20 years before someone finally thought to test my thyroid. Many of us do. Don't believe it, and don't let any doctor pressure you into taking anti-depressants. They can do more harm than good, and they certainly won't help your thyroid disease.

    It does sound as though you're headed in the right direction with the medication and the new doctor. Hang in there. It will take time.

    You mention foot cramps. This could be one of two things; electrolyte imbalance, or a side effect of medication. Are you taking Synthroid? If you go to the Synthroid web site you will see that the manufacturer mentions cramps as an uncommon side effect. I had terrible foot cramps for the 19 years I took Synthroid and had to take Quinine Sulphate to stop them. Once I was on natural desiccated thyroid medication, the foot cramps stopped cold. You might want to discuss this with your doctor.

    Good luck and keep us posted.

     
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    Old 07-19-2016, 09:27 AM   #3
    Laura266
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    Re: So tired of being tired ... when will it end.

    Thank you for your reply and taking the time to read my post I just wanted to get it off of my chest.

    The cramps are not just my feet but legs and arms too. They come and go in various areas. Most of the time my limbs feel heavy and weak as if I'm water-logged! But I get additional aches and twitching too.

    Today, I went to see a nurse through my employers occupational health department.She wasn't a great help as there isn't much more that she can do to help, but she did reassure me that if I need to take time off to help myself recover then I should do.

    I've been struggling on for a while trying to keep up with work commitments as my employer isn't very understanding.

    I keep plodding on, hoping for the best.

    X

     
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    Old 07-19-2016, 11:07 AM   #4
    Sadtosay
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    Re: So tired of being tired ... when will it end.

    Don't give up. Your doctor has increased your medication dose, and eventually the symptoms should start to subside. It just takes time.

     
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