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Endo? Maybe not? Please help!

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Old 08-05-2003, 05:48 PM   #1
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Join Date: Jan 2003
Location: Pawleys Island, SC, USA
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samrhett2 HB User
Unhappy Endo? Maybe not? Please help!

I have been sick for 4 years, since the birth of my child. I am at my wits end! I have been unsuccessfully treated for bi-polar. After scouring the internet, I began to suspect thyroid might be the real culprit. I had been diagnosed as hypothyroid over a year ago after I became Lithium toxic. I never knew what my test results were. (Never knew it was important to know), but I do know that the only tests ever done have been thyroid panels.
I was on Synthroid for over a year. But never felt any better
My symptoms are:
Extreme fatigue, Lethargy, Weakness, Anxiety, Depression, Inability to lose weight (even on less than 1,000 calories a day and I am overweight, thinning hair, heartburn and constipation, bloating, severe itching generalized, but worse on my palms and bottoms of my feet, night sweats, intolerance to cold and heat, feeling 100 years old.
I am so depressed I want to die.
My psychiatrist agreed I should have a physical. My OB/GYN refused to do a hormone test or blood work. My MD refused to do blood work of any kind and only changed my medicine to Armour. Immediately my bloating became worse and I got constant diarreah.
My psychiatrist got upset when she found out he put me on Armour. I guess it is somewhat of a debate in the medical world. I quit taking it for a few days and my stomach immediately got better. She switched me to Levoxal (sp) and a small amount of Cytomel. Immediately my stomach started acting up again. Apparently the T3 makes my stomach react. I also notice an eye twitch that goes away when I stop taking the T3.
I have asked my P. doc to set me up with an Endo. because I thought that they were specialists in this area, but now I have read some posts that make me think that I am going to get nowhere with an endo, because the basic tests are going to come back "normal". I don't have the money or time to waste and I can't take one more time of getting my hopes up only to be disappointed again by one more doctor who doesn't listen or doesn't care. Please tell me what to do.

There is a web site someone mentioned where you can locate good doctors who can help. There is only one doctor mentioned in my area. There is only one recommendation for him. He is an Internal medicine doctor. The comment just said he seemed eager to help, not that he was actually able to help this person.

Please try to give me some guidance and thank you for taking the time to read this long post.

Also if you go to an endo. is it true that they make you stop taking all thyroid meds for 30 days before you see them? If so, won't I have to feel awful for 30 days?

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Old 08-05-2003, 06:05 PM   #2
Join Date: Jul 2003
Location: New Orleans, LA
Posts: 95
CheriP HB User

I am sorry you are going through this. I am disgusted that I'm reading so much about women who start to have issues postpartum and then don't have the support from the medical community to help them out. Disgusted! I'm going through this too and while our stories aren't really similar, I feel for you because I am suffering too. I hope we get better soon. Take care! The people on this board seem very supportive and knowledgable...maybe they can help you with your questions...

Old 08-05-2003, 07:36 PM   #3
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dea4 HB Userdea4 HB Userdea4 HB Userdea4 HB User

I have never heard of an endo making you stop meds for 30 days prior to seeing them, that would stink, you do however have to not take your meds within 8 hours of getting bloodwork because it can affect the results.

It makes me so angry when someone is obviously having a problem and the doc refuses to do bloodwork, fire that idiot and get a new doc.

I really think you need to see a good endo, you need your T4 free, T3 free as well as TSH checked. Be sure to discuss with the endo the fact that T3 meds seem to affect your stomach, you probably should just be on a T4 med and take selenium to help your body convert the T4 to T3.

I hope you can get some answers, don't give up, it is frustrating but many many people on this board have been through frustrating situations and you just can't give up till you get answers.

Good luck

Old 08-05-2003, 07:40 PM   #4
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Join Date: Jul 2003
Location: Temecula, CA USA
Posts: 123
kael HB User

First of all - don't let yourself down and give up on your health - you deserve to feel well, and there is a doctor out there who can help you accomplish that. I am amazed that with your symptoms none of your MDs will order a blood test - what's the risk to them in checking it out? Because of your sensitivity to T3 - please do find an endo, because if you get one who knows their stuff and they can help you feel better - which is their job!!!- it will be money well spent. I can't imagine them not immediately running a complete blood panel on you so that they know how to treat you and then you will know exactly where you stand and how much of what you are feeling is attributed to your thyroid. And the answer to your last question is NO - not all endos make you go off of all your meds before they treat you - mine certainly didn't. So, please - find a good doctor in your area - if that internist is your only choice, call and ask some very specific questions to see if he is willing to help you determine your optimum treatment - if so, great - GO! If not, look a little farther away and DRIVE!

Life is too short and too precious to feel cruddy! Besides, you owe it to your little angel to be a feeling good Mommy!!!!

Hugs and Good Luck -
Post your results!!

Practice Compassion...Heal The World

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