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wondering if you could help

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Old 08-12-2003, 11:39 AM   #1
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Join Date: Aug 2003
Location: shippensburg, pa, usa
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kc2ckj HB User
Post wondering if you could help

I have had an underactive thyroid for over 20 years now. Every once in a while it would fluctuate and I would have the medicine raised or lowered, no big deal. Until recently. It all started at the end of May and I haven't been right since. I have never in all my years of having thyroid trouble have I had such symptoms. At first it started with joint pain, wrist pain, swelling of both hands and feet, unbearable pain from wrist to armpit to the point of no sleeping, carpal tunnel syndrome. Went to the doctors, had my blood test taken thinking it was my thyroid. Said everything was fine until I went back to him two weeks later and he told me he "overlooked" my tsh results. Not a happy camper. I was at a 6.8. My range of feeling normal is 2.8. Anyway, trying not to make this long, sorry. I was originally on 112 mcg, he raised me to 150mcg. I personally thought that was way to high. Within a couple of weeks, my heart was beating out of my chest, but the symptoms were gone as far as pain. I called him, we changed it to 125mcg and I recently went back to have the test taken again. I was at .22 of a.4-5.5 miu/ml. Now I'm hyperactive with all my symptoms back. Upon awakening in the morning, I can barely move. My joints are swollen and painful. Went back again, this time he sent me for another test for ana, rf, antidouble stranded dna, ft4, tsh, t4, t3u and basic metabolic panel. Just picked the results up today. Everything is fine except for the thyroid. By the way, they stopped taking the t4 and t3u. They said that the FT4 is replacing all of those. So now my results are: .16 for the tsh, and 1.8 FT4 with a range of .9-1.8 ng/dl. I hope I haven't gone on too long here. I'm throwing up my arms here even though they hurt lol, and asking if any of you have experienced anything like this to this extreme. And now that my rf has come back normal, I don't feel like I have to see the rheumatologist that he has set me up for an appt. with. Any help would be greatly appreciated. Sorry again for making this so long.

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Old 08-12-2003, 12:04 PM   #2
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Join Date: Feb 2003
Location: Texas
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dea4 HB Userdea4 HB Userdea4 HB Userdea4 HB User

Dont worry about making your post too long, sometimes they need to be to get everything in.

I have heard others have the same sort of problems, did great for years and then WHAM, the thyroid goes nuts. I have had trouble with mine as well for the last year.

The increase your doc did on your meds was way too much at one time, he should have increased more slowly as it is easier on your body, the big increases are almost like trauma to your body. Not sure what causes your thyroid to suddenly go haywire but I have a feeling that the dramatic increase of meds didn't help matters any and thats probably one reason you are still having so much trouble.

Be sure that when you get your next set of blood tests that they do a Free T3 and Free T4 as well as TSH, the free tests tell much more about the way your thyroid is functioning.

Old 08-12-2003, 03:26 PM   #3
Join Date: Jan 2003
Posts: 125
windymoon HB User

yes the same thing happened to me this past year. I had all your symptoms plus lost 26 pounds and was so weak! I started on .137 and have been drop down every dose and now on .88 and I have No thryoid anymore. I'm starting to think it due to perimenopause. This past week after being on my new dose for three weeks I have notice how calm I feel. I slept 12 hours the other night, I haven't slept so well in years! To much thyroid medication is dangerous! ~C

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