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  • Thyroid I dont know what to do nobody is taking this seriously

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    Old 05-07-2020, 07:37 AM   #1
    Nunu01's Avatar
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    Nunu01 HB User
    Thyroid I dont know what to do nobody is taking this seriously

    I feel like a sitting choking duck in a very rural area.

    49 yr old female. This all started with pfhlem. I noticed alot of it and always having to hock it out. Then I started waking up at night choking on it. Within a couple of weeks, it progressed to actual shooting pain in the lower neck area, a swelled neck feeling, severe difficulty in swallowing (cant even swallow tiny pills) and the 'something stuck in my throat' feeling, headaches and lots of burping/gas.. I have had very little, broken sleep the past 7 weeks. Everything is even worse when I lay down.
    I call my doctor, have a video appt. Due to the pandemic. She said go to the ER. I travel the one hour to the ER at our small hospital (I live in a VERY rural area, health care is not all that great and very few specialists to speak of). With this pandemic going on, this is especially nerve racking and extremely scary. They did an iv and gave me anxiety med through it because I was hysterical. They did an MRI which showed nothing stuck in my throat, gave me some acid reflux meds, an anxiety med and referred me to a general surgeon for follow up.
    By the time I got into seeing the GS, my anxiety and panic attacks are full force. I literally felt on that day I was dying from being choked. He was annoyed with me. Did not really want to talk to me much and orders upper GI and throat scope and walks out of the room. Results are there is a small amount of acid reflux. There are also 3 stomach ulcers which may explain the need to burp all the time. He puts me on a PPI and sucralfate and not to take aspirin or any other Nsaids. Of course this does nothing for the choking feeling, and seems to help only mildly on the burping. He then ordered a chest xray (came back ok) and a thyroid ultrasound. The ultrasound showed no nodules but the results said inflamed. I then got bloodwork done. Those results came back as normal I just couldn't believe it. Here are the numbers:
    TSH 0.6630 uIU/mL
    (^^ this number was 1.6234 5 months ago)
    Free Thyroxine 1.08 ng/dL
    Thyroperoxidase Antibody 25 IU/mL
    Thyroglobulin Antibody < 20 IU/ml
    Reverse Triiodothyronine 14.2 ng/dl
    I was diagnosed three years ago with subclerical hyperthyroid. At the time, I didnt pay much attention to it. Nothing bothered me. This was diagnosed where I used to live, which is 3 hours away. I called them, they refused referral because they said the numbers where normal. I've been set up with an Endo via video in a few weeks, but not sure if I'll even make it that long without choking out and absolutely no specialist within 3 hours of me that seems to know anything about thyroid or what may be going on here. The Endo I have a video scheduled with isnt even in my state and I am having to wait 3 1/2 weeks and travel to the little hospital to even do a video call ! 😭
    I got a two day break from this...praying it would not return...but now all of it is back, full force. I can't eat, can't sleep, can't concentrate. Noises irrite me. I get sore throats. My hands are shaky. The swelled choking and full of mucus in my throat is horrifically terryifying. I often have a headache. I have water next to the bed and sip it all night long. My anxiety is out of control. When the flare is real bad, I cradle myself and pull my hair and dont realize it until my husband stops me, this is how ridiculous this is. Just my husband walking past the couch sends me through the roof.This feels like an imminent threat to my 'being' and is destroying my life and nobody seems to think any of it is a big deal while I feel like I am choking and going A wall.
    I am going back, again, to my regular doctor today. I dont know what to say other than everything I've already told them. Does anybody, anywhere have any suggestions or insight about this at all 😭😭. Thank you so very much for any advice at all

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