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Old 08-11-2003, 10:01 AM   #1
Join Date: Aug 2003
Posts: 58
Cuibono HB User
Wink New-just say Hi

First time ever on a bulletin board. Found this one and boy am I glad! 2 1/2 yrs ago after being very ill for a long time and no bloodwork done by primary care, I begged for bloodwork panel. TSH was -.01, primary said "Oops!" and sent me to specialist. 5 wks later, TSH was 66.0 and antibodies over 2000. Specialist said, you are hypothyroid (Hashimotos)and have goiter, take this pill & you will be back to normal in six months. 2 1/2 yrs later still hyper/hypo bloodwork sometimes only weeks apart. Recent ultrasound showed solitary hypoechoic nodule and enlarged right thyroid gland. Waiting for scan results. Spec refused to do FNA. Would anyone know why?
Basically, try to keep positive (my faith helps)but it gets lonely. Overjoyed to find this bulletin board, read messages and find I am not alone. Thank you to everyone on this board...I already feel better!

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Old 08-11-2003, 11:42 AM   #2
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Join Date: Feb 2003
Location: Texas
Posts: 2,998
dea4 HB Userdea4 HB Userdea4 HB Userdea4 HB User

Glad you found us and welcome, please come back often. This is a great board for help and support, and I agree with you, we seem to feel better just knowing we are not alone.

Old 08-12-2003, 06:27 PM   #3
Join Date: Aug 2003
Posts: 58
Cuibono HB User

Thank you so much. Have been sick so just checked the board again and found your reply. I really love this board!

Old 08-13-2003, 10:14 AM   #4
Senior Member
Join Date: Jul 2003
Location: Temecula, CA USA
Posts: 123
kael HB User

Hi - hope you don't mind me asking you a question, but since you fluctuate from hypo to hyper so much, what symptoms do you experience? My TSH has been all over the place for the last few months after being in normal range for years - I also have high antibodies - Technically, my free T3 and T4 say I'm hypo, but I have adrenaline rushes, body twitches and many nights of no more than 3 hours sleep. I feel like I want out of my body sometimes!!!

Thanks for sharing!

Practice Compassion...Heal The World

Old 08-13-2003, 08:28 PM   #5
Join Date: Aug 2003
Posts: 58
Cuibono HB User

I know that hyper feeling and really don't like it! First I'll start getting jittery and anxious, can't sleep all night just like you...pretty laid back when in the hypo or balanced stage but definitely more agitated by things when in the hyper stage..I know my body pretty well now and TSH tests always confirmed that I have swung from hypo to hyper again. I also have skin breakouts when hyper. Hope this helps. The doctor says I have a solid nodule that may have "hijacked" the thyroid. Will find out what's going on with that when I get my nuclear scan report back.

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