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Now I'm scared!!!!

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Old 08-17-2003, 06:29 AM   #1
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Location: Wall, NJ USA
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doyle5 HB User
Red face Now I'm scared!!!!

I just read the post from Courtney28 and I'm mad and scared. She said that she had her thyroid removed because of Hurthle cells found.
My story, I have been complaining for 21 months of not feeeling well. All the symptoms are the same as everyones elses on this site. In April of this year they found a lump on my thyroid. Went for ultrasound. Was told a tumor was on my thyroid. Went to ENT Doc and was told it was in my thyroid. He did a Fine-needle asperation. Was told by him all came back good the nodule was benign. Told the ENT to send results to my Intern Doc and fax me the same. Went there in July and was told that ENT said everything fine benign. I asked about the lab report wich I had with me it reads:
1 of the three smears submitted is hypocellular showing scant mixed Lymphoid cells, scant Colloid and rare degenerated Hurthle looking cells (see note). The remaining 2 smears are acellular. Note: Findings may represent Lymphocytic (Hashimoto's) Thyroiditis, however sue to very limited cellularity definitive diagnosis can not be rendered. Recommendations: suggest clinical correlation and follow-up as clinically appropriate. If Hashimoto's is excluded on clinical grounds repeat aspiration is suggested since specimen is hypocellular and findings may not be representative on the patient's lesion. My question is they mentioned Hurthle cells, what does that mean and does the nodule or thyroid need to be removed like Courtney28 has done. I'm very confused and scared. My Internist did do a antibodies test and the Antithyroglobulin is in normal range but the TPO is elevated. She said no treatment till the thyroid is not working is is burnt out by the antibodies. How long does that take and do I really need to feel horrible till this happens? Sorry but I'm getting no help from the doctors and everyone here is so knowledgeable. Thanks for amy help!!!!!!!!!!!!!!!!

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Old 08-17-2003, 06:46 AM   #2
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dea4 HB Userdea4 HB Userdea4 HB Userdea4 HB User

O.k. did I understand that correctly, they will not do treatment till the thyroid is burned out by the antibodies? If this is the case get a new doc fast! You can suffer for a very long time before this can happen, a lot of people are treated on the presence of symptoms and antibodies alone (me included) you just have to find the doc that will do it, they are out there.

As for the Hurthle cells, I have no idea but I would question the doc a little more about that, don't be afraid to ask anything you want to know, they have to tell you and you have the right to know.

Perhaps someone else will have more info about the Hurthle cells that they can share with you.

Good luck!

Old 08-17-2003, 06:52 AM   #3
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Location: Wall, NJ USA
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doyle5 HB User


Thanks so much for the info. I'm new to this and it's really scary. If I didn't happen to come upon this sight I don't know what would have happened. I'm so impressed with how much everyone knows. I bout Living Well with Hyputhyroidism by Mary Shomon and The Thyroid Sourcebook yeaterday. I used to be a fast reader but I get so tired so quickly and my eyes are now sensitive to the lights that It's going really slow. Thanksfor being patient with me. It's nice to know I'm not alone. ( I used to think that was crazy to say when I heard Oprha say that, but I do feel better knowing I'm not crazy) and if I am you're all crazy with me LOL.

thanks again, Annette

Old 08-19-2003, 08:20 PM   #4
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courtney28 HB User

Hello Annette, I am sorry that my post earlier made you mad and scared. It seems to me as though your FNA results were not the same as mine. The advice that the Dr's gave me was to not get on the internet because every case is unique and different. I agree with you, this board is extremely helpful, but please keep in mind that each case is different.

Please do not be worried. It sounds as though the final diagnosis was not a hurthle cell tumor (just that certain components contained hurthle cells). Also, how large is your tumor? Mine was very large which worried them greatly. If it is a hurthle cell tumor, all of the surgeons that I met with said it could not be determined whether it is benign or malignant from a FNA. Since they told you it is benign, you must have something slightly different.

I hope this helps somewhat.
- Courtney

Old 08-20-2003, 05:26 AM   #5
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doyle5 HB User

Thanks Courtney. Hope all is well, Annette

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