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  • My numbers are all over! What is going on with me?

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    Old 09-17-2021, 11:54 AM   #1
    3t2m6a
    (female)
     
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    Join Date: Sep 2021
    Location: Port Republic, MD
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    Unhappy My numbers are all over! What is going on with me?

    Right now I am untreated, and I am feeling it. I am loosing my hair, can not sleep, very tired, my nails are freaky, my skin is itchy, dry and disgusting, I am gaining weight, even though I barely eat. And, I don't eat because I am hot, very hot! I was recently (in Aug) diagnosed with Afib, and informed that my heart is beating a little to fast than it should be. I have been place on medication for both.

    My endocrinologist office told me to stop taking my Methimazole 10mgs at the end of Aug 2021. Next appt I could get with my endocrinologist was at the end of Sept 2021. I do email him/the office, through their portal. I have never been seen in person, due to COVID, so using the email has been a normal way to communicate with the office, and has worked, expect lately. Since I have gone off the thyroid medication I really haven't been able to get any help. His latest email just said "you have Graves' hyperthyroidism, and have been taking methimazole." Well I know that because his office diagnosed me with that in March of 2021 and placed me on the methimazole then. And then told me in Aug to stop taking it. But what am I suppose to do now? Just sit like this until the end of time?

    So I am reaching out for help, guidance on what my next step should be.
    Here are my numbers, can someone please tell me what is going on, and what I should do or maybe even say to my doctor?

    All in 2021

    Sept 13: t3-502, t4 Free-4.72, tsh-0.09
    Aug 30: t4 Free - 1.03, tsh-2.430
    ****stopped taking methimazole Aug 22nd*******
    Aug 19: t4 Free-0.12, tsh-139.00
    Aug 13: tsh-157.00
    May 14: t3-95, t4 Free-0.28, tsh-2.710
    ****April started taking methimazole********
    Mar 13: t3-433, t4 Free-4.32, tsh-0.005, thyroid stim immunoglobulin-24.00
    Jan 19: t4 Free- 3.08, tsh-0.005

    I just want to feel better, so any suggestions is really appreciated!

     
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    Tags
    graves disease, high t3, high tsh, low tsh, thyroid



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