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    Old 02-17-2004, 04:58 PM   #1
    mydestiny
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    Got my 7yr olds labs!

    I FINALLY talked to the doctor today (both of us to blame...really she kept getting my husband who...you know).

    Destiny's TSH
    In July when she was only showing elevated antibodies (they stop couting over 70)...
    TSH
    July 1.78
    Feb 16.53

    Whats normal? I didnt jot that down!!! I just remember being so stunned about how high it seemed while on the phone...will go research after this post.

    T4 I did write down this normal range that she gave me! .71-1.85
    July .87
    Feb .71 so she was borderline of being low.

    Didnt talk about T3 much.

    I dont have Oct labs with the endo, they didnt send copies to her reg doc (we are military, use a military hospital...except for the endo at the childrens hosp)

    She started .125 mg synthroid last tuesday. Seems to be doing well on it.
    Doc explained to me more about how children usually do take higher doses and it goes by weight....like we all figure out here last week..thanks!

    All is well, game plan is to do labs the week of march 22 (will be 6 weeks). So I will have recent labs on hand to hand carry to the ped endro in early april. She also suggested that I do bring those pictures in that I showed her...she said that it shows a better light on her weight gain...verse the scale that shows 12 pound gain....which is large for a little girl.

    Anyway, thanks so much! Just wanted to share my relief of having the lab results...time to research what normal TSH is.

     
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    Old 02-17-2004, 05:23 PM   #2
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    Re: Got my 7yr olds labs!

    Normal TSH ranges vary from lab to lab. The American Association of Clinical Endocrinologists new guidelines for TSH are .3-3.0. I don't know what is optimal for a child but a woman's should be less than 2. Most labs have a range up to 5.5 but anyone with that high of a TSH will usually (not always) experience some symptoms. Your daughter's TSH is DEFINITELY too high and that's in response to the t4 that is so low. I am so happy that you've pursued this as far as you have. Your daughter has a great mom!
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    Last edited by LuvMyLilDoggie; 02-17-2004 at 05:24 PM.

     
    Old 02-17-2004, 07:41 PM   #3
    mydestiny
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    Smile Re: Got my 7yr olds labs!

    Thank you! I just feel so relieved for my daughter I am feeling we are finally understanding it all, and its starting to be under control. It felt like a LIFETIME from July when her goiter was felt by a NurseP and her labs done...those just showed the elevated antibody....but the whole referral process and appt for the ped endro took from July until late October...I swear it felt like a lifetime, then stunned that the labs came back fine then. Now she has a wonderful ped who listened to me and was concerned also when I went to her worried about my daughters weight gain. I just cant explain how relieved I feel at this point. She is also a slow reader and I am hoping this may help her to.

    Who knows why her thyroid went off so fast. I am just happy that we caught it when it did instead of waiting til who knows when..her 20's. The endro said after april if her labs were still ok we would only test every 12 months...because often it wont start to fail until adulthood.

    My only wish is that I could be inside her body to know exactly how she feels, how she felt before meds, and how she is feeling now. I noticed the sluggishness but figured it was wintertime and we all stay in and be lazy with the snow. they key thing was with her weight gain for me.

    I am thinking that TSH range was very similar to what she/doc told me...I was just shocked when she loudly emphasized 16.53...and then that is all I could hear for a few minutes and couldnt remember what she said prior, I was stunned. And then she teased me about how worried I was in her office that the labs would come back normal again...I wanted a answer on what to do then about her weight She gave me my answer.

    Anyway, I really thank you all for all the support and info you have given me. I will be around from time to time...especially if we notice any side effects or whatever may come her way.

    Thank you!!

    I wish you all sucess in controlling you levels to! I dont envy you all.

    I have a long story myself but I havent been diagnosed and my levels are fine. Put it this way, I did Atkins for many weeks, hardly lost a thing....answer to that from the experts was...get your thyroid checked you are definatly medo resistant! Yea, I am 30 pounds over weight, slow to gain but cant drop a pound. My only alert and waking moments is when I have coffee pumped into me, its like I have to depend on it to function period and thats not all that great anymore. But hey, all my labs come back fine...even with mom, grandma, and daughter with Hashi. Who knows...maybe its time to look into alt meds. I even developed eczema this past summer?

     
    Old 02-17-2004, 11:16 PM   #4
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    Re: Got my 7yr olds labs!

    Hello again, 'Destiny's Mom'!
    I'm so happy for you that your instinct led you to find the right doctor and treatment for your daughter. She sounds like she's well on her way to good health thanks to your persistance.

    However, don't be so quick to dismiss your own problems with weight, energy, concentration, and skin. Way-y-yy too many doctors look at labs and pronounce them "normal" without having a clue about the proper interpretation. Your numbers may be within the "normal" range, but they might not be optimal for you. (We hear this story here from new members at least twice a week.) Your family history makes me believe you may well have the problem, too.
    I encourage you to get copies of your "normal" tests and let someone here take a look at them. (Don't forget to post the reference range along with your results.) With Hashi's, the TSH will frequently be well within normal range while the free T4 will be low in the range. When free T3 is tested, it's usually low too. If symptoms and antibodies are present, it's practically guaranteed you have Hashi's.

    Now that you have Destiny's problem under control, it's time to concentrate on yourself. Please double-check what they're calling your "normal" thyroid status.

     
    Old 02-17-2004, 11:40 PM   #5
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    Re: Got my 7yr olds labs!

    I second that! The longer you wait, the worse it'll get if you have Hashi's and the longer it will take to control. With a 7 year old, you need all the energy you can get. If you keep getting worse, it's going to get more difficult for you. Please get your lab results and ranges and post them here. Many doctor's interpretation of normal is actually considered high. I've read posts here where people have said that their doctor wouldn't prescribe meds because with a TSH of 10, they were considered "borderline" hypo! There are people here who will tell you that they would be one foot in the grave with a TSH that high or even less. Please keep us posted on you as well as your daughter.
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    Old 02-18-2004, 06:44 AM   #6
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    Re: Got my 7yr olds labs!

    Good to hear your daughter is doing well. I have two kids 13 and 16, and I know how awful this must have been for you.

    Now, it's time to think about you. Get your "normal" tests and post them. I suffered for YEARS with "normal" levels. It makes me angry to know I should have been treated years ago. I was diagnosed with a TSH of 3.0 and lots of hypo symptoms. My TSH needs to be below "normal" range for me to feel good. It is now 0.004 (.350-5.50), but only the right doctor knew that. Don't let anyone tell you that your symptoms are not to worry. I complained about depression, fatigue, memory loss, lack of concentration, hair loss, and all they did was to put me on prozac. The only medication I need is Armour, and I feel good today, still battling weight (I lost 14 lbs and I am stuck), but at least I got the right diagnose and the right doctor.

    Mintchoc

     
    Old 02-18-2004, 08:06 AM   #7
    mydestiny
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    Unhappy Re: Got my 7yr olds labs!

    Oh my, you all are sooo sweet! I just made my day waking up to read that people care and understand me! I have three kids which makes it extremely hard to handle everyday tasks, my other two are under 7. Its getting to the point where they dont ask me for things because mom sleeps her life away, moms to tired to do it or doesnt feel like it. Husband is so frustrated with everything, I told him he needs to come with me to the doc because they dont believe me, they need to understand a day in the life of me.

    Now I am going to whine for a moment about how I have tried to get diagnosed. First I am prior service and my husband is active duty army. I only have military hospital to use. We are assigned a doctor but that doesnt mean anything. Its shocking to see the same doctor two times in the ave 3 years in one place, its not like I have someone following me. Every appt I make its with someone different.

    I have asked for my thyroid to be checked nearly every visit for many years...my mom with Hashi's trained me to do that. Everything comes back normal. The only diagnosis I have is depression...every health symptom I have every doctor says...well its probably just depression. Well, I am so frustrated I can scream. Paxil, I have seen a relief with anxiety issues on it...my jaws relax when I am on paxil. I dont feel much better and I SLEEP even more drink a pot of coffee a day on them just to handle normal tasks like dishes and laundry..I stopped taking them last week. I slept all weekend but have felt better the past two days. I am trying to wean myself down from all this coffee right now also...it was making me feel sick but I drank it when my kids needed clean socks, ya know.

    OK, when Destiny's antibodies came back elevated...that gave me the ammo to push for them to run ALL of the labs on me...including antibody. To my suprise...normal range! That was the same time I developed eczema out of no where to. Doc felt a little nodule though so I had a ultra but they couldnt find a thing..I think the doc was just trying to make me feel better by checking it more that day.

    So, I am Depressed nothing more according to the docs. I dont hear alarm clocks next to my head. I just graduated from a size 12 into a 14. I live my life dazed and confused in an out of it state. I am always tired except between 10pm and 1am...good thing my stores are open then. I just struggle constantly to sleep normal and function normally.

    This weekend we went to my in laws, they know how I am but are no longer convinced that I am just lazy. I went to bed when everyone else did around 11:30. Well, they left me alone and I slept until 11:30 am. DH dad was like you need to go to a sleep clinic, he recently went one and found out he has nasal problems...anyway, he urged me to start telling the docs what to do and make them let me see a sleep specialist.

    One other thing, for many months I was seeing a civilian counseler (that we can do off base if we are a spouse) but I had to see the base shrink (sorry cant spell the right name) to start some meds. After, good thing with him is he sees you as a whole person and looks at medical to. First thing he said was you need to get your thyroid checked...told him I just did and they just said they were normal... he didnt pursue but even the shrink thought it may be.

    OK, since I am really rambling now.........the one thing that comes back off in ALL of my labs is my WBC white blood cell count. Its always a bit high. Over the years, they said well, you must have been fighting a little something. Here where we are now, they didnt take my ezcema as an excuse and ran labs again..again high WBC. Well, I am told by them that having a high WBC history is just MY normal levels.

    My Mother in Law who had most of her thyroid removed a few weeks ago...and who is finally seeing a specialist and going thru her own problems. Basically finally seeing an edro and not just a lab test once a year to adjust the meds.They are all realizing how the thyroid is, along with my DD.

    Well, she gave me her old script before surgery (we are not pill popping type people she was just wanting to help me feel better) its unithroid .1mg...yes, I have almost 30 pills in my hot little hands...I so want to take these but I am afriad to. I only has this many but will I feel worse when they run out...if I go back to the docs, I am sure my levels will even be more normal if I am sneaking these...Its just not like me to consider someone elses pills but I just feel so desperate.

    I am not even so desperate to lose weight I just want to have the energy that people 20 years older than me have...I serously would get tired just watching people in my neighborhood playing with thier kids. As far as losing weight, I have done atkins well, several tries since the late 90's when I first started putting on pounds. First few times were a great sucess, I lost a pound a day. In the past year I tried twice for almost a month on it and only lost 3 pounds after several weeks in ketosis...that is like not normal on that diet. They say have your thyroid checked if you didnt lose at least 6 pounds in two weeks... I couldnt even lose 6 pounds in 4 weeks.

    OK MY LABS, I dont know how to get ahold of them...they ALL stay in the hospital computer! The docs check and compare on them. Even my labs from alaska didnt get printed and put in my medical records...the ONLY ones that did were from my pregnancy. All else is in the hospital computers...I have tried checking out my records and trying to do my own online research but no labs to be found.

    Well, I am going to make one more appointment, I had given up months ago and just gave into the depression excuse. I believe I am depressed, depressed from living like this, funny I DONT cry though, cant cry, but I KNOW it/depression cant be kicking my butt this bad....its something that is not just in my head. Dont worry, I wont take these pills yet...maybe only if they tell me its all in my head again

    I have wrote a novel, thanks for reading. Sorry, it was like laying all my problems out...sorry...Its just my family seems to be falling apart because of my unknown health problem. I feel helpless but try to ingnore it to keep myself out of a depression if you all understand that.

     
    Old 02-18-2004, 08:22 AM   #8
    mydestiny
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    Re: Got my 7yr olds labs!

    Forgot to say, I am also suffering from hair loss...I am almost 29...I started greying at 26 during my 3rd pregnancy. My bang area is so thin now that I cant stand looking into the mirror...I recently started coloring it because being grey and bald at my age isnt cool. I dont know if other people can see my scalp like I can though but its gotten so bad that it really bothers me and I am not trying to be a beauty queen, I just want to look decent sometimes, not like I just rolled out of bed.

    Also memory loss! I posted for the first time last week on the depression board because two freaky things happened to me one day...and as far as the docs say, I am only depressed. Normal to me is I cant repeat something someone just said to me...but I did get the point...I have that ditzy memory...but last week, I took my DD to her bus stop 20 min early, thought we missed the bus, woke up my other kids and took them to the car...THEN the Bus comes! 20 minutes of not being able to remember what time the bus comes, to the point of draggin my kids from sleep into the snow! Scared me! Later that night reading the bottom notes on CNN, said something about a lady being mauled by her pet leapord....for the life of me for several minutes I couldnt picture what a darn leapord was!!! Closest thing I could come to for a while was a reptile...I was fighting with my brain saying you know this, darn it.

    Anyway, thougt it may have also been from the paxil...and as I said in the first post...I quit taking it late last week. Still slow on things but at least I know when time the bus comes and what a leapord is

     
    Old 02-18-2004, 09:43 AM   #9
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    Re: Got my 7yr olds labs!

    Oh my dear... I'd bet the farm you have hypoT! Those of us here will just have to energize you into pursuing the diagnosis.

    In the private sector, we are entitled by law to copies of our lab results. Is the military that much different? Look into that, first thing. I'd dearly love to see what your "normal" numbers really are.

    As for antibodies, the noted thyroid expert, Ridha Arem MD, says 10%-20% of Hashi's sufferers don't have them. That's a minority, but it happens.

    If you can't get anywhere with the military MDs, could you perhaps afford a consultation with a private MD at least once? If you could at least get a diagnosis and trial med, it would give you ammunition to take back to the military to show them their mistakes, wouldn't it?

    Please, please don't give up yet. Your kids and husband need you to be the healthy person you have inside you.

     
    Old 02-18-2004, 11:57 AM   #10
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    Re: Got my 7yr olds labs!

    Oh girl, I'm convinced-you got it! Let me tell you a little about anxiety, depression and hypo-t. First hand experience. In December of 2002, my nerves were sooo rattled. Anxiety was ME! Depression was ME! I left my dear husband in one of those anxiety ridden depressed states. I stayed away for three months. In that time, I was given the diagnosis of anxiety, PMS and depression. I don't recall what I was taking for the anxiety but I had Prozac for the pain of PMS and Xanax for depression. I was taking them at the same time and still the depression was there. Nothing helped it. I went to the ER one night crying and telling the doctor I was having chest pains again (this happened 3x). I told the doctor what meds I was taking and what they were for and that I had numbness in my right hand. She put 2 and 2 together and asked me if I had hypo-t. I said I didn't know and was tested right away. My TSH was 8.6. Some doctors consider that "borderline". I was FULL BLOWN HYPO! It was so bad I was ready, willing and able to kill myself. Depression is a very common symptom of hypo. I was also diagnosed with sleep apnea which is another symptom of hypo-t. So maybe a sleep study wouldn't be a bad idea. And I know the frustration of a husband who doesn't understand. It put such a strain on my marriage that we almost divorced after 16 years together. The best advice I can give on that is don't expect him to understand. The truth of the matter is that no one can understand unless they've gone through it themselves.
    Wow! Three kids 7 and under. One has hypo-t. A woman who is totally healthy would be stressed under those circumstances.
    Do whatever you have to do to get those lab results. You deserve to be healthy and your family deserves a healthy you.
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    Old 02-18-2004, 01:30 PM   #11
    mydestiny
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    Re: Got my 7yr olds labs!

    You all are so supportive! Its like getting cyber hugs and the motivation again. I had this motivation last fall but just gave up...and let my life slip away over these months.

    I have an appointment for 9:30 am tomorrow morning! DH is going with me and will make arrangements for someone to get my school aged children on and off the bus.

    I have a little update on my destiny Not really with her but we live in the Chicago area and her referral to the ped endro was having us drive up to Milwaukee Wis to the childrens hospital, it was within the 45 mile network provider limit. Well it dawned on me while on the phone making my appt...that we moved even furter away over the holidays (hated the base schools) so now we are well over 60 miles from her specialty doc. Now, I AM keeping this appt we have in early april (had to book it 6 months in advance!) and will drive it without complaint...but now that she is hypo, we will be needing to see one more often. So, good news is they are working to find us a local non network provider....most likely at a chicago childrens hospital.

    Well, I read your posts, took a shower, put my 2 1/2 year old down for a nap. I was struggling with myself on how I need to really explain and be FIRM to a doc...I was like writing a letter to the doctor (in my head) about how whatever this is has effected my life (keep in mind I try my best to ignore it, focus on other things like my 7yr health, and just try to maintain so I dont get to depressed)...but for the first time since this past summer, I CRYed! I really let it out. I have trouble crying and this was so good for me. I was weeping and called my husband to see if he could take tomorrow off and handle the kids so I can see the doc. We really talked, I cried and he listened and enouraged me to go, and wants to go to make sure my points get across...he is far from a passive person. For the first time in weeks he said he loved me and will be here for me. He listened to me rage about how tired I am of being tired, trying to pretend for the outside world that my family life is normal, for those who get to know us better...I am tired of those people thinking I am lazy...I am tired of being told that all of my symptoms are from depression...and so on. He wants to read more about the thyroid and this board later. He has been understanding more since his step mom just had surgery and his dads discovery that his mom isnt lazy she has a thyroid problem...and so on. And hearing from his dad how serious it can effect one has also helped him start understanding more about our daughter.

    I got off the phone, called in and perfect, one appt open in the morning. The way they do it here, is you have to call the day of or the day before to get an appt. They even offered me one this afternoon but I am now 1hr away from this hospital but less than that 45 mile rule..darn)

    I will DEFINATLY update you all tomorrow because I WILL bring my old labs home with me tomorrow...and I am sure I will get more done again to. If I am not satisfied tomorrow i am taking my medical records home with me to take to a civilian doc out of pocket!

    I was telling my husband, take a look at every visit page I have in my records...its all about me not feeling well, feeling tired and not right, groogy you name it for years, every single visit.

    More later but I MUST do something in the house today. Thank you all sooo much.

     
    Old 02-18-2004, 02:41 PM   #12
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    Re: Got my 7yr olds labs!

    Wow! We're neighbors! Well, not really. But close. I live in Crest Hill. That's near Joliet. Is your husband stationed at Great Lakes?
    Is that Children's Memorial Hospital you were speaking of? That's a GREAT hospital. It's affiliated with Northwestern University Medical Center. I've heard they have some of the best ped endos in the country there.
    Good luck with your doctor's appt tomorrow. I'll keep my fingers crossed!
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    Old 02-18-2004, 03:10 PM   #13
    mydestiny
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    Re: Got my 7yr olds labs!

    Hi!...we recently moved to Hoffman Estates, I am very close to the whole Schaumburg shopping area (the IKEA store)... We did live on Great Lakes NTC but we were misserable in that area...now we are closer towards you. He is really stationed full time at a Army Reserve Headquarters in Arlington Heights.

    My In Laws are down in Peoria so we travel thru that way a lot.

    Well, I am not sure where she will start being seen...seems Pediatric endro are hard to come by. The one that they sent us to when we lived on base was up at the Children's Hospital in Milwaukee(is that the one you are talking about or the chicago one?) which was very nice. I imagine we will be going to a similar one in Chicago. That is good to know they are good My DD years ago went to both of the nationaly known ones in St. Louis...because she studdered for a few months when she was 3. Its so different when you are at a place that specializes in children! Wonderful!

    I keep hopping on the computer! I am feeling better...need to finish floor mating my floors! I LOVE that thing. I cant believe I am having at least 12 adults here and as many kids on Friday morning! After living like I have...I have LOTS of house work ahead of me...and my day tomorrow will be spent up at Great Lakes Yeiks, a lot going on here

     
    Old 02-18-2004, 04:07 PM   #14
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    Re: Got my 7yr olds labs!

    You live very close to my nephew. He's in Schaumburg. He works at Kohls. He's so close to work he can almost fall out of his bed and be there.
    The hospital I was refering to (Children's Memorial) is in Chicago on the north side. It's maybe 30-40 minutes or so from you concidering traffic is good. My son was there once when he was a baby. It's a teaching hospital so your daughter will get great care there. They leave no stone unturned. I have high praises for them.
    OMG you have a lot to do. Are you having a party or something Friday?
    Good luck and I hope everything goes very well at the doctors.
    And kudos to your dh for being so understanding and wanting to learn all he can about thyroid issues.
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    Old 02-19-2004, 03:11 PM   #15
    mydestiny
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    Re: Got my 7yr olds labs!

    HI, I dont have much computer time today but I just arrived home from my doc appointment and a few errands while up that way.

    I did NOT bring my old labs home with me....but I read over the docs shoulder while he looked over all my labs done since last summer. My TSH was running 1.87 normal was up to 6. something, in thier system. My T4 was .97 in the same normal range that was given to me by destinys doctors. Like Destinys was borderline low to them at .71 being the lowest.

    However, he is going to (we did) test it one more time but he said he thinks we are barking up the wrong tree with it.

    He found more interest in my high white blood cell count history. He mentioned several posiblities all very odd things that I hadnt heard of, lots of questions about countries I have been to and the like. Mentioned cronic infection with several way different from each other posibilities...and we all know when you have high WBC count it throws everything off but he found one interesting...and mentioned parasites. Asked me a lot about skin problems, you name it.
    Basically said we will rule out everything else and its good that he as a doc found my case to be interesting...especially if my WBC comes back high again.

    Anyway, I left his office and went up to the lab... urine, FOUR tubes of blood, looked like 7 total tests for me on the screen..one was thyroid. I am also going back in on Tuesday to do that 3 hr glucose level thing like I did with my pregnancies (BTW, I had gestational diabetes with my last preg.)

    I also had to get a chest x ray...on that request said chronic high wbc eval...

    He also wants to do a TB test but since its thursday I have to wait until monday.

    He said after all these tests are back he will strongly consider a sleep study as a second step.

    I dont know if all these tests are to teach me a lesson make me feel like they care....but my hubby was there and he was pleased that they are running many tests...and seemed like they will get me answers this time.

    But as far as thyroid, he really said mine was perfect in the past and since I dont feel to much worse then before when I had those done...we are probably barking up the wrong tree. Of course I dont know but I am satisfied today that they are running many tests including thyroid again and my feeling is my WBC will be high again causing them to further test me and get to the bottom of this. I feel relieved but I am tired, it has been a non stop exhausting day for a tired person.

    The people coming tommorrow is for...dont laugh...its a coupon meeting I enjoy coupons, sales, saving money...getting stuff for free or almost free all of the time is a little thrill that I get. Partly, even though its time consuming when I can manage to keep up...Its also an addiction...but frankly, I have that addictive type of personality and I figure this is SAFE, I am not at the bar or casino...I clip coupons!

    Anyway, there are over 100 people in the Il good deal loop (online alerts tips emails) and we have become friends and help each other save. We are getting together to swap coupons, stock piles, stories and such.

    My mom laughs at me and says she is sending the news to my house tomorrow! LOL
    She thinks its nuts but I have comfort in the fact I am not the only nut So many people are coming and more would if they lived closer.

    I partly offered up my home to help get me out of this rut, needing a reason to deep clean...forcing me to get my house and life together for a few days. I think I over did it this time though.

    Time to veg for a few, start come coffee so I can get this house together.

    Oh KOHLS! Yes, been there a few times! I am less then 2 miles from it...I am on the line of HE and Schaumburg (I have a Schaumburg zip) ....

    Thank you all so much!!! Sharla

     
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