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    Old 10-15-2004, 09:30 AM   #1
    Stacey82
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    Unhappy Depressed&Giving up hope :(

    Hi everyone.. I know there's alot of wise and supportive people here that I really need some words of wisdom...

    I've been hypothyroid for about 5-6 months now. I am 22/female and I am currently taking a combo of 50mg & 75mg Synthroid.

    My first month of treatment brought my TSH from 11.93 down to 2.65. My doc increased my dosage just a tad and now I fell from 2.63 to 0.01.

    She just re-adjusted me because she doesn't want me to be too low.
    If my TSH is "low" how come I still feel like CRAP everyday. All my hypo symptoms are still bothersome everyday.. I'm always cold, tired (even though I sleep 10hours+), I can't lose weight, I have no appetite, the thought of exercising makes me sick....... I'm just depressed.

    My last numbers were
    TSH- 0.01 (0.30-4.70)
    T3 total: 2.1 (0.7-2.1)
    T4 Free: 18.5 (9.1-23.8)
    Free T3: 5.4 (2.5-5.7)


    So besides my TSH being a tad low- my free numbers seem fine??
    but I feel so crappy???

    I don't know what else to dO??? I went to see a nutritionist about 2 months ago and I've been eating a healthy diet, exercising as much as possible, I definitely get enough sleep...

    I am just fed up that none of my hypo symptoms seem to be improving??

    My doc is useless... all she cares about are where my #'s are and she's happy. She doesn't seem to listen or care that I'm telling her how tired I feel all the time. Is there ANYTHING I can do?? I'm started to get very worried..

    Stacey
    xoxo

    Last edited by Stacey82; 10-15-2004 at 09:32 AM.

     
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    Old 10-15-2004, 11:12 AM   #2
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    Re: Depressed&Giving up hope :(

    Just bumping you up
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    Old 10-15-2004, 11:26 AM   #3
    Stacey82
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    Re: Depressed&Giving up hope :(

    Thank you

    I'm just so worried- when you live side by side someone else everyday and see how healthy they are- it really makes me see how badly you feel.

    My fiancee and I eat the same foods (I even eat a tad better than him), same sleep patterns, etc.. After 8hours sleep he is up running around like the energizer bunny... and I'm still laying in bed exhausted and dead to the world...
    He looks all bright and glowing complexion... I look like I just pulled an all-nighter after drinking 4 bottles of vodka.
    It's so depressing

     
    Old 10-15-2004, 11:30 AM   #4
    west end girl
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    Re: Depressed&Giving up hope :(

    Hi , I'm sorry you feel so bad . Sorry I can't help re numbers but just wanted to say thinking of you {{{{{hugs}}}}}

    All I can say is I have been through some really bad times with Hasi/Hypo and I do have some good times too . Please never give up just hang on in there , it takes a really long time to get sorted ...... and yes it is a constant battle but worth it ...
    Sara xx
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    Old 10-15-2004, 11:31 PM   #5
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    Re: Depressed&Giving up hope :(

    Stacey82,
    I know how you feel. I turned 26 this week, but I have less energy than my girlfriend's grandfather who is in his 80's. I see everybody around me with bundles of energy. I can barely make it through each day doing things that most people take for granted.

     
    Old 10-16-2004, 12:24 AM   #6
    txcntrygrl
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    Re: Depressed&Giving up hope :(

    Stacey..it is tough but you can get through it. It took me a bout a yr to get my #s at a good range and for me to start feeling better. Even then I still have down days and I have had to have my Synthroid raised up to 100mcg. It takes time. Yes I know it can be very depressing. I have Hashi's/Hypo. I have hard times getting out of bed in the morning and I look like I have pulled an all nighter. Sometimes I do pull those all nighters. I do not get the amount of sleep like you do but I do eat healthy and exercise regularly. I have a 3 and 4 yr old so it is hard for me to keep up with them. I stay home with them and I am glad I do because to be honest I don't think I could get up early and get them ready and myself ready for work and make it on time. I am just too tired. I am glad they get up late (9am). It is still hard on me but I have to do it. You will get good days and believe me they are great days. Look into getting b-12 shots to help you with energy. Those had really helped me. I need to get back on them. Also you mentioned your dissatisfaction with your dr. Are you seeing an endocrinologist? If not then try to find one. I good one will listen to everything you say. I notice I have a really hard time when I have to change from a lower dose of Synthroid to a higher dose. I feel like death just walked into the door. My dr worked with me and now whenever I need to go up on my dose I alternate my lower dose with the higher dose until I can handle the higher dose. She is willing to try anything with me. She says every patient is different and it helps when the patient is willing to research on their own and come back with ideas of ways to try something new. Not all patients have the ability to do it but she says it does help. I am constantly doing research on here and if I find something I copy it and give it to her when I see her. One of the things I had to stop using was soy products (food and beauty).

    Please know that you are not the only one out there that has felt the way you are feeling right now. I have been there and on occasion have broken down because I hate that i have to go through this. I wasn't happy to know I had to take a pill every morning for the rest of my life for my life and just this Wednesday I just got news I have to take another pill every night for my asthma. I was a little upset about it when I was told this. To top it off I have to give myself shots 3x a week for the next 5 yrs for my allergies. So yes...I am not happy right now. The only good news I got was from my endo telling me that my lab work came out fine and to stay on the 100mcg. Which sounds about right since I have been feeling fine lately other than not being able to get up in the morning. (which is a norm for me)

    Just hang in there hun it will get better.

     
    Old 10-16-2004, 03:01 AM   #7
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    Re: Depressed&Giving up hope :(

    Hi there, I just wanted to add that maybe it's time to try something else.

    I was diagnosed with hypo about the same time as you and put on thyroxine. Even at 125mcg I was still feeling like crap and had had enough. I asked my specialist if I could try adding some Armour. He was a little phased that I wanted to switch so soon, but I think he saw how fed up I was. And thank god, he agreed.

    I've only been on Armour a couple of weeks but I feel like a new person. The brain fog has gone, I have energy again, I can drive without fear of killing someone and I am sleeping through the night.

    I know this doesn't help you now, but I just wanted to say that you don't have to accept feeling like crap and that there is hope.

    Ok, Armour isn't the answer for everyone and maybe if you were on thyroxine for longer, you may start getting better. But maybe it's time to try something else if your current regime isn't working for you.

    good luck,

    felix x

     
    Old 10-16-2004, 09:53 PM   #8
    Stacey82
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    Re: Depressed&Giving up hope :(

    Thank you everyone for your encouraging words! I know it takes some time.. I just feel like it's not going to get better because I cannot increase my dosage anymore. I'm already at my complete limit with Synthroid because my #'s go hyper very easily... Before I was treated my TSH was at 11.93 and within the first three weeks of taking 50mg Synthroid my TSH dropped so rapidly (so soon!) yet my symptoms had not improved.
    I just feel my body is very sensitive to Synthoid- so maybe natural dessicated thyroid would be a better option for me??
    I am in Canada so unfortunitely I cannot get Armour- but maybe I can ask about trying Parke-Davis natural thyroid?

    I also am going to take the advice of going to see an Endo!! My doctor is great- but I do feel she is not treating me 100% because she is only a family physician- not a specialist for Thyroid disorders.

    Does anyone think adding T3 (cytomel) to my Synthroid would help at all? Or because my T3 #'s are fine, it's probably pointless??

    Thanks again for the ideas and encouragement!! It's nice to know that others have been where I am- and that it DOES get better!!

    Love
    Stacey

     
    Old 10-16-2004, 10:26 PM   #9
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    Re: Depressed&Giving up hope :(

    Stacey,
    When I began treatment, I was given .075 mg Synthroid. It made me hyper [TSH went from 6.98 to .02 and the free Ts were high.] within a month's time. The dose was reduced to .050, but the hyperT continued. The endo told me to stop the med and "wait". I didn't wait, but instead saw another doctor who Rx'ed a low dose of Armour. It didn't make me hyper, and the dose was gradually increased to the present 90 mgs without the hyperT ever once returning.
    Why the Armour worked when the Synthroid didn't is a mystery to me. You'd think that adding T3 to the mix would've caused my T3 level to soar, but it didn't happen that way.

    I tell you my experience so that you won't fear trying something else. If what you're doing isn't working, it's time to try another approach.

     
    Old 10-16-2004, 11:09 PM   #10
    Stacey82
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    Re: Depressed&Giving up hope :(

    Hi midwest... funny I was thinking of you in regards to my situation.. I remembered you saying you were very sensitive to the Synthroid meds... and I am beginning to think I am the same way...
    I remember when I started my first dosage of 50mg and I felt like my hypo symptoms were getting worse and worse... as soon as I upped to 75mg I became extremely hyper- not only #'s but also very bad heart pain, palpitations & anxiety... Once my doc realized 75mg was way too high- I was put on the 50 & 75mg combo... I was taking three 50mg pills & four 75mg pills/each week... My TSH was still in hyper-range at about (0.01).

    As you can see even the slightest adjustment in dosage my TSH/#'s seem to soar to extreme cases either being too hypo or too hyper...

    I think I may be a good candidate for natural thyroid too!

     
    Old 10-17-2004, 12:24 AM   #11
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    Talking Re: Depressed&Giving up hope :(

    Quote:
    Originally Posted by Stacey82
    Thank you everyone for your encouraging words! I know it takes some time.. I just feel like it's not going to get better because I cannot increase my dosage anymore. I'm already at my complete limit with Synthroid because my #'s go hyper very easily... Before I was treated my TSH was at 11.93 and within the first three weeks of taking 50mg Synthroid my TSH dropped so rapidly (so soon!) yet my symptoms had not improved.
    I just feel my body is very sensitive to Synthoid- so maybe natural dessicated thyroid would be a better option for me??
    I am in Canada so unfortunitely I cannot get Armour- but maybe I can ask about trying Parke-Davis natural thyroid?

    I also am going to take the advice of going to see an Endo!! My doctor is great- but I do feel she is not treating me 100% because she is only a family physician- not a specialist for Thyroid disorders.

    Does anyone think adding T3 (cytomel) to my Synthroid would help at all? Or because my T3 #'s are fine, it's probably pointless??

    Thanks again for the ideas and encouragement!! It's nice to know that others have been where I am- and that it DOES get better!!

    Love
    Stacey

    hi there,

    i'm canadian too, and i think it's called Merck thyroid here, not Parke-Davis (i know parke-davis recently sold the patent to someone) ... anyway, it's just called desiccated or natural thyroid -- enuff quibling ...

    i've had good luck with a naturopath .... she gives me licorice (it works) for my digestion, a liquid vitamin, B12/folic acid shots, and i'm considering getting some thyroid from her next week ... i've also read that a strong symptom of hypO is anemia, so i'm taking some liquid iron (yes, i know i should have my ferritin level checked, and i shall at my next GP visit in a couple of weeks but in the meantime) ...

    i didn't know this, but when you do have a blood test, you should have a ferritin test, as well as a CBC [complete blood count] (ferritin is the amount of iron stored in your tissues, and the amount measured in a CBC is just the amount in your blood) ... heck, i just began taking liquid iron and don't feel better yet, but am looking f'wd to the day i do ...

    you never know just what specialty can treat your illness (my GP does, my two endos are hopeless -- even my eye doctor is better than they are ), but i do recommend a naturopath ... where do you live? maybe i can recommend one ... BTW, neither of my endos would consider desiccated thyroid, and neither does my GP, except he gave me my cytomel eventually AND he's treating me symptomatically -- so at least he's somewhat enlightened ...

    i too have a suppressed TSH (>0.05), as of 21 sept, my t4 free was 18.7 (range 9.1 to 23.8), and my fT4 was 4.7 (2.5 - 5.7) ... these are the best numbers i have had (and i felt LOUSY at the time), so i'm now going to branch out on my options here -- i have to feel better before my daughter has a baby!

    i think you could try T3 if a doctor would consider giving it to you (i ordered mine from mexico b/f my GP began giving it to me), but why don't you go the natural route? i think that might be the better option ...

    sorry you're feeling like this ...

    jb
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    Old 10-17-2004, 07:24 AM   #12
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    Re: Depressed&Giving up hope :(

    I would definitely go to an endocrinologist. There are a lot of other hormones out there besides the thyroid ones, you could have some other problem going on in addition to your thyroid. It also might be something infectious going on, have you been tested for mono? Or it could be something autoimmune. I would suggest going to an endo, an infectious disease specialist and then a rheumatologist (in that order).

     
    Old 10-17-2004, 11:13 AM   #13
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    Re: Depressed&Giving up hope :(

    Hi Stacey! Sorry you're feeling so poorly. I just wanted to caution you that many endos don't specialize in thyroid disease. Most concentrate on diabetes. So just because they have the word endocrinologist behind their name doesn't neccesarily mean they know more about thyroid disease than a GP.
    Just curious, was your pituitary gland and hypothalmus checked when you had your CT scan? I'm no doctor but it is possible, though unlikely, that something is going on in another area in addition to your thyroid.
    Take care and I hope you begin to feel better soon.
    Barb

    Edited to fix my never ending typos......
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    Last edited by LuvMyLilDoggie; 10-17-2004 at 11:14 AM.

     
    Old 10-17-2004, 11:26 AM   #14
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    Talking Re: Depressed&Giving up hope :(

    Quote:
    Originally Posted by Concerned Male
    Stacey82,
    I know how you feel. I turned 26 this week, but I have less energy than my girlfriend's grandfather who is in his 80's. I see everybody around me with bundles of energy. I can barely make it through each day doing things that most people take for granted.
    i know just how you feel! altho i'm 59 (must seem like a great age to you), i spent some time this summer with my 82-year-old aunt, who could actually hop up to the cottage from the dock when i had to have help even to get half-way up ... and i felt relatively good!

    now, of course, i'm back to feeling awful again, so if i were to holiday at the cottage now, i couldn't possible -- they'd need a litter to get me up ...

    jb
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    Old 10-17-2004, 11:27 AM   #15
    DimkaSh
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    Re: Depressed&Giving up hope :(

    Hi Stacey! I also think that you may have some other problem in addition to your thyroid. But anyway you SHOULD know that there are NO problems which couldn't be solved. Never give up and everything will be fine with you!
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