It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board

  • Newly diagnosed hypothyroidism, lots of questions

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 01-21-2005, 07:15 PM   #1
    Mellybean
    Member
    (female)
     
    Mellybean's Avatar
     
    Join Date: Jan 2005
    Location: State College pa
    Posts: 92
    Mellybean HB User
    Question Newly diagnosed hypothyroidism, lots of questions

    Hi, I am a 19 year old sophmore in college, this past monday i went to the gyno at the college health center because i hadn't had a period in 3 months but i was sure i wasn't pregnant. He did an internal ultrasound and found several cysts, gave me the diagnoses of pcos but also decided to take blood work. I got a call on tuesday telling me that my TSH was abnormally high (8.13) and that i should make an appointment with a regular physician at the health clinic. Had that appointment on wednesday where she told me i had hypothyroidism but there was no point in doing the T3 or T4 test because my TSH was so high. My glucose also came back high, but my cholestoral was normal (don't remember the numbers but will have them monday). Is it normal to not do a T3 and T4 test if the TSH comes back high enough? My physician at home freaked when i said I had only had the TSH done, (I am extremely sensitive to medications). I have the medication here (synthroid .05 mg) which i start tomorrow. I am just really confused, could the hypothyroidism have a link to the high glucose? Or is that the pcos? Or does thyroid cause missed periods and cysts? I have an appointment with the gyno monday so i can get something to start my period. Should I ask him to run the T3 and T4 tests? Thanks so much for helping me out!

    Last edited by Mellybean; 01-21-2005 at 08:51 PM.

     
    Sponsors Lightbulb
       
    Old 01-21-2005, 07:24 PM   #2
    Stacia
    Senior Member
    (female)
     
    Stacia's Avatar
     
    Join Date: Jan 2005
    Location: Minneapolis, MN USA
    Posts: 208
    Stacia HB UserStacia HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    I'm new to this too but everything I read and everyone I talk to says that the T3 and T4 are more important than the TSH. My TSH was 393. I know. Out of this world. The synthroid makes me feel a ton better. Just my opinion but I would see a specialist. An Endocrinologist. Thats what they do all day and I think they are better at it. I've had no problems with the synthroid. I think of it as a wonder drug. I am somewhat sensitive to drugs myself. Good luck. You start taking that and hopefully you feel better. It's stange sometimes you don't even know you feel like crap till you feel better.

     
    Old 01-21-2005, 07:27 PM   #3
    Mellybean
    Member
    (female)
     
    Mellybean's Avatar
     
    Join Date: Jan 2005
    Location: State College pa
    Posts: 92
    Mellybean HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    I have an appointment to see a reproductive endocronologist when i go home for spring break (march 6th). The symptoms have been getting progressively worse... theres more hair on my brush in the morning then there usually is... my nails which usually grow fast have stopped, and there is strange dents in them... im so tired all the time and i feel like my brain is foggy... is that normal for hypothyroidism? and im thirsty all the time... which means i drink a ton of water... which means just when i am so tired that i can't move i have to get up and go pee all the time!

     
    Old 01-21-2005, 07:54 PM   #4
    Stacia
    Senior Member
    (female)
     
    Stacia's Avatar
     
    Join Date: Jan 2005
    Location: Minneapolis, MN USA
    Posts: 208
    Stacia HB UserStacia HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    When I started on the meds I lost tons of hair and tons of weight. I was 130lbs and not I am 116. I didn't really need to loose the weight to begin with but I guess I will try and enjoy this in case it comes back. The hair loss should taper after being on the meds for awhile. It took about a good month before I started to feel better. You should start taking your pills right away. I take mine in the morning as they say it's better on an empty stomach. Being tired is very normal for hypo. Foggy brain? You bet. I also had sensitivity to lights at work, really dry skin, muscle cramps in my legs when I would get out of the bath or move in bed at night, puffy eyes. Alll these symptoms I had and I just chalked it up to being 33. It wasn't until I had and anxiety attack that I went to the doc. Unbelieveable how much better I feel. I've been on the meds since September. You should feel better soon. There are quite a few people at my work who have this and only one person says the meds aren't working. But she is kinda one of these people who is looking for problems in her body.

     
    Old 01-21-2005, 08:15 PM   #5
    zekat
    Senior Veteran
    (female)
     
    zekat's Avatar
     
    Join Date: Jan 2003
    Location: Missouri
    Posts: 894
    zekat HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    Just like stacia said, all of your symptoms are VERY typical of hypothyroidism. Brain fog (yuck, yuck, yuck, but I've sooooo been there!), hair loss (I promise it comes back!) and even the poor nail nutrition. I also agree with Stacia that you might want to get a referral to an endo as they should know more about it.

     
    Old 01-21-2005, 08:34 PM   #6
    Stacia
    Senior Member
    (female)
     
    Stacia's Avatar
     
    Join Date: Jan 2005
    Location: Minneapolis, MN USA
    Posts: 208
    Stacia HB UserStacia HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    Just a thought ... My endo is also a diabetes doc. (I think they all are ?)) You mentioned that you pee all the time. That is a trait for diabetics. My mother-in-law was a diabetic. It wouldn't hurt to get checked for that as well.

     
    Old 01-21-2005, 08:47 PM   #7
    Mellybean
    Member
    (female)
     
    Mellybean's Avatar
     
    Join Date: Jan 2005
    Location: State College pa
    Posts: 92
    Mellybean HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    at my pediatrician ( yes i still see a pediatrician) during christmas break i did have a urine diabetes test which came back negative... but my blood glucose test which i just had came back high.. But the doctor said it has to do with the polycystic ovarian syndrome... I go back to the gyno on Monday so i'll ask him what i should do about the glucose... I do have an appt for the endocronoligist in March, I can't go right away because im away at college ( about 4 hours from home). At the gyno should I ask for the T3 and T4 test? or is the 8.13 TSH good enough for a diagnoses?

    Last edited by Mellybean; 01-21-2005 at 08:48 PM.

     
    Old 01-21-2005, 08:58 PM   #8
    Stacia
    Senior Member
    (female)
     
    Stacia's Avatar
     
    Join Date: Jan 2005
    Location: Minneapolis, MN USA
    Posts: 208
    Stacia HB UserStacia HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    The TSH is a good enough diagnosis to tell you something is going on, however, you need the T3 and T4, specifically the free T3 and T4, to help understand what it is that is going on. Having symptoms as well is a diagnosis in itself. I ask for it all. Why not? Don't you want to know that everything is at normal levels? I've also been told to ask for an antibody test. I'm going to make sure next time I go in I get that done. I'm not sure if they've done that on me before and just haven't shared. I also get copies of all my results to compare. If your gyno won't test the T3 and T4 I'm sure the Endo will.

     
    Old 01-22-2005, 10:57 AM   #9
    Mellybean
    Member
    (female)
     
    Mellybean's Avatar
     
    Join Date: Jan 2005
    Location: State College pa
    Posts: 92
    Mellybean HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    last night i had a weird dream that i went to a hotel... and they took my thyroid out... so weird... anyway i started the .05 mg of synthroid today... so on the road to feeling better i guess... how long does it take to start working? Also Thank you Stacia for helping me out whilst i was freaking out yesterday, i will definately ask for the free T3 and T4 test and ask to get the numbers back from my glucose and pituitary tests.

    Just realized i had more questions, a couple of years ago i had an ex- boyfriend who was stalking me, and i started having panic attacks. I have always been a really anxious person, i worry about everything. I went to a psychiatrist who said I had Obsessive Compulsive disorder and put me on 3 SSRI's which led me to be hospitilized for Serotonin Syndrome (If anyone isn't familiar with this I will explain, it's not really common). I still have a slight tremor and if i get startled i will have spasms in my neck and stutter. Could the anxiety and panic attacks have been related to the Hypothyroidism that was undiagnosed at the time? Or did i develop it after that? The whole fiasco was about 2 years ago. Is it usually slow developing?

    Last edited by Mellybean; 01-22-2005 at 11:03 AM.

     
    Old 01-22-2005, 01:41 PM   #10
    Stacia
    Senior Member
    (female)
     
    Stacia's Avatar
     
    Join Date: Jan 2005
    Location: Minneapolis, MN USA
    Posts: 208
    Stacia HB UserStacia HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    I do know that anxiety and panick attacks can be part of your thyroid not working. It's hard to know whether or not that is why you have them. For me it was the anxiety that brought me to the doc. The first doc treated me for that without even checking into anything. She gave me zoloft. I know how aweful anxiety and panic attacks are. Very scary. You feel as if you are going to die but you know you won't. When I started getting them I did a lot of reading about them and how to control it. All the books say you can't die from it, you are not going to have a stroke or heart attack. Even though at the time it feels like it. After of about two weeks I was still having chest pain from the anxiety. Went into the ER cuz I wanted to make sure it was still the anxiety and not something else. They checked me all out and found that my thyroid wasn't working. Now when I look back I think that my thyroid had been getting bad for a long time. I'm not someone who goes to the doc because I'm cold all the time or because I have leg cramps etc. I know I started getting leg cramps over two years ago. Now that I'm on the meds I haven't gotten a cramp in months. The thyroid is a weird thing and can affect so many parts of your body. It's amazing. When they told me I had a thyroid problem I didn't even know where my thyroid was in my body. I do believe your thyroid can be slow developing. I had a really crappy year. My mother-in-law died (57) and my husband had a stroke (34). I'm sure when the first doc heard my story she assumed the anxiety was all stress related. And it certainly can be. But like I said, when I look back, I think it has been developing for me for a long time.

    You may want to also ask for a antibody test. I know I'm going to next time I go in. I guess the anitbody test is very important as well. Post your results when you get them back. I'm not so sure I am the one to analyze them for you but there are some really educated people out here who could.

    I know you will be fine and feel better soon. I'm a little surprised at the small dose they put you on but maybe that's enough for you. Then again, they threw me on 200mcg which made me go hyper and loose tons of weight. I'm on 100 now and it seems to be right. Don't get discouraged either. They say it takes a good two months for the stuff to totally get into your system. It could take some time to get you regulated and on the right dose. Patience is needed with this. I guess I got lucky in a sense cuz I've only been on this stuff since september and I feel like my dose is a good dose for me.

    I'm thinking about you and hoping you feel better soon.

     
    Old 01-22-2005, 02:08 PM   #11
    Mellybean
    Member
    (female)
     
    Mellybean's Avatar
     
    Join Date: Jan 2005
    Location: State College pa
    Posts: 92
    Mellybean HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    The anxiety and panic attacks have been gone for over a year (YAY!). I still get seasonal depression but this year i got a sunlight lamp which i have been sitting under for 1-2 hours each night. I really think it's helping. The doctor i saw (actually i think she is a nurse practitioner) wanted to put me on a higher dose saying she hasn't seen any college student with a TSH as high as i had. Well she said usually she sees cases of hyperthyroidism not hypothyroidism. I just took my first pill today and i feel a little funny, but im probably making that up, just wanting to feel something! I'm just worried more about the PCOS and the Glucose test now, although i really would like to get a T3 and T4 test done. It's hard for me to get all the info to all of my doctors at home and at school. The leg cramps you had, where they mostly at night? I woke up several times last year with these horrible cramps in my legs which my boyfriend attributed to lack of some sort of vitamin ( he made me eat bananas). i've also had pains in my legs while walking to classes, but i just attributed it to a larger campus ( i recently transfered to the main campus of penn state from a smaller campus). I kind of just want all of this to go away, but i also want to feel better. It's frustrating! Thank you for your support though!

     
    Old 01-22-2005, 03:44 PM   #12
    Stacia
    Senior Member
    (female)
     
    Stacia's Avatar
     
    Join Date: Jan 2005
    Location: Minneapolis, MN USA
    Posts: 208
    Stacia HB UserStacia HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    I only got the leg cramps at night. At night and when I would get out of the bath tub. They were mainly in my calfs. I don't think the pill is making you feel funny, honestly. It takes some time for it to even get in your system. You'll do fine and be amazed at how wonderful you feel. I think the depression will get better for you too. I guy I work with went to the doc because he said he was sad all the time. Not depressed just sad. They did a thyroid check and sure enough, hypo. He feels much better now. Don't freak out about the thyroid thing. It's sooooooo common and so treatable. After I was diagnosed I couldn't beleive how many people at my work have the same thing. Relax. You will feel better soon and enjoy college life. THis should be the time of your life. And when your 33 like me you will look back and say I was right.

     
    Old 01-22-2005, 05:55 PM   #13
    Mellybean
    Member
    (female)
     
    Mellybean's Avatar
     
    Join Date: Jan 2005
    Location: State College pa
    Posts: 92
    Mellybean HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    No you are right, i am so allergic to most medicines that i tend to look for something wrong right away so i dont take another pill and then wind up in the hospital (wound up doing that the first time i went to my boyfriends house while i was on sulfa drugs). The depression only comes in the wintertime mostly because i like the sun and hate the cold. Which is worse because recently i've developed a real cold intolerance. Also i've been having this weird ache in the sides of my neck. Where exactly is the thyroid located? I think i just might be sore from having so many doctors rub my neck looking for swollen something or others. Did it take you a long time to get the medicine stabilized at the right dose? Do some people get off medication at some point or are most people on it for a long time? Thank you so much for answering my millions of questions but i was kind of struck dumb at the doctors office.

     
    Old 01-22-2005, 06:29 PM   #14
    LuvMyLilDoggie
    Senior Veteran
    (female)
     
    LuvMyLilDoggie's Avatar
     
    Join Date: Aug 2003
    Location: USA
    Posts: 3,436
    LuvMyLilDoggie HB UserLuvMyLilDoggie HB UserLuvMyLilDoggie HB UserLuvMyLilDoggie HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    What you need to ask for is FREE t3 and FREE t4. These are very different from T3 and T4. T3 and T4 are bound to proteins and then some of them seperate (become FREE) and that's what you're cells use. The rest is discarded with the protein. If you have T3 and T4 checked, it's only measuring the bound form. You need to be tested for what your body actually will use.
    Barb
    __________________
    Live, Love, Laugh.

    Last edited by LuvMyLilDoggie; 01-22-2005 at 06:30 PM.

     
    Old 01-22-2005, 07:46 PM   #15
    Stacia
    Senior Member
    (female)
     
    Stacia's Avatar
     
    Join Date: Jan 2005
    Location: Minneapolis, MN USA
    Posts: 208
    Stacia HB UserStacia HB User
    Re: Newly diagnosed hypothyroidism, lots of questions

    The Thyroid glad is in the middle front of your neck and is shaped like a butterfly. I asked my doc if my thyroid would start working again on it's own once I was on the meds and he said no. Once your on them your on them. Not so bad though considering you'll feel better.

    I was dumb struck myself when I was diagnosed. I didn't even know where my thyroid was in my body. The first GP doc I saw I felt like I was ran through a car wash. "You have hypothyroidism and high choloesterol. Here's some drugs and we'll see ya in a couple of months." He told me nothing about the disease. Everything I learned I learned from reading. It was after that I decided to go see a specialist. My Cholesterol was high because of my thyroid. I did take that med cuz it gave me headaches. My Cholesterol now is fine and I've done nothing to drop it. Now that my thryoid is more normal it dropped on its own. Thats partly why I swear by specialists.

    I was pretty lucky cuz it didn't take me long to get stablized. The first GP doc overdosed me which actually jump started me into feeling better. But then I went hyper for awhile. I'm pretty stable now and feel real good and I've been taking the meds since September.

    I don't mind answering your questions at all. I remember when I first found out I didn't know about this board and was somewhat on my own. My doctor didn't tell me a thing. All he said was "I can't believe you can even function". Yeah thanks.

    Bosmom is right about getting the free T3 and free T4. Thats more important that just the T3 and T4.

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Newly diagnosed with hypothyroidism pdmgtal Thyroid Disorders 3 11-15-2008 12:47 PM
    Questions about Hashimoto's for newly diagnosed (male) patient Rickerus Thyroid Disorders 2 09-16-2008 01:49 PM
    I am newly diagnosed w/RA and have lots of questions! lori_e Arthritis 3 04-20-2002 04:57 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 06:26 AM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!