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wxKathy2 05-08-2005 11:24 PM

Re: Worried...trouble swallowing
Hi Hilery,
So kind of you to reply - my report says the mass is a "somewhat nodular soft tissue" but no percardial disease seen....there is also a "nonspecific" nodule in the left lung.

So glad there was no change in your scan!

I'll keep you in my prayers too!! Thanks so much!

Benzi 05-09-2005 08:33 AM

Re: Worried...trouble swallowing
Kathy, Hi let us know about the oncologist appt. I DO think all the iodine will cause swelling. I have been having more swelling after the WBS and all the CAT scans and some rashes also right over the thymus gland and over involved swollen lymph nodes so go figure! I asked Dr.s nurse and she says " nice try " meaning NO the iodine will not cause it. I can't take no for an answer however and looked it up on www and YES it can. Now who do we believe the government or the DR.????? Its all confusing my advice is not to get real worried about swelling until at least 5 days after scans let the iodine get out of the body and your body get rested. The thymus is responsible for sending out T-cells in response to infection, allergy and neoplasms, so to me it stands to reason that it could swell in response to the iodine. To answer your question about what they did with my thymus tissue is that they took it out since it was in my neck with my thyroid gland. I suppose I still have some left in the right location in my chest also. The thymus tissue in my neck was extra! I am still waiting on CT scan results and see an ENT tomorrow for the enlarged lymph nodes in my neck. Hope your Dr's appt comes out well. Kathy lets start a new thread for your oncologist appt. I will post in it also about the ENT appointment but probably not until Wed AM. Hilery do you know when you will get the biopsy?

wxKathy2 05-09-2005 05:13 PM

Re: Worried...trouble swallowing
Hi Guys,
The oncologist did a thorough exam and pretty much ruled out lymphoma! He is not sure what the "thing" is on the CT scan - so Wed I will have an MRI of the chest. I liked him and feel like it was right thing to do to see him. The MRI is supposed to help differentiate this "thing" as a mass or some abberation on the CT scan. He is leaning toward it being thyroid tissue I believe. If the MRI shows that it's a mass or real tissue - he will next do a radioactive iodine uptake scan which I have never had to see if it's indeed thyroid tissue. Since I just had the CT on 4-27, he said I have to wait 4 weeks for the RAIU. Do I have to quit meds for that one too? Anyway, one thing at a time - He also did blood tests for masthenia gravis (sp) for thymoma....So I am going to believe it's thyroid tissue and try to live life. If all those other tests show it not to be thyroid he said he would send me for a sternoscopy/biopsy - but I think I'll just try to cross one bridge at a time, right! So glad you guys are here - thanks so much for your support!! It means the world!
Please let me know how yours come out.....
Best wishes,

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