It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board

  • Just quit taking my medication & would appreciate feedback

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 08-17-2005, 05:22 PM   #1
    cjFTWORTH
    Senior Veteran
    (female)
     
    cjFTWORTH's Avatar
     
    Join Date: Nov 2004
    Location: Los Angeles, CA
    Posts: 1,221
    cjFTWORTH HB User
    Just quit taking my medication & would appreciate feedback

    I've posted here a few times and yall have been great. But I mainly post on the lyme board... ticker thought I might run some of this by yall again...

    About a month ago I took a food supplement (intended to make cells communicate better, has great track record for some very ill people...) that clearly caused my doxycycline to work in ways it had not previously, and maybe/probably better than it had been previously working. The clear indicator was that I became photosensitive for the first time on it and burned severely... peeled for three weeks. Also became very ill, this was also within first week of taking it... I began having increased heart irregularities and they became severe... skips, extra beats and racing... along with lightheadedness, shortness of breath, pressure/discomfort on chest... not going into all of that but did have a doctor friend monitoring me and he gave me a temporary, as needed beta blocker...

    As the real intense heart irreg's tapered off, I was left with still feeling lightheaed when standing, fatigued, short of breath, etc... and noticed an increasing sense of adrenaline rushes... like I was plugged into something, on diet pills or whatever.

    A week ago, I first split my 60mg dose of armour thyroid into two doses, a.m./pm... still taking in between cheek and gum. by third day, I noticed a big difference but still felt raced up. Also during this time... a lot of UNUSUAL muscle fatigue in last few weeks... went to walk dog, came back after one block and for two days following felt sore/week like I'd been hiking... and have complained that when I do much of anything around the house that requires standing, by back burns like as if it can't support me... and I've I've lost about 7 lbs over this ordeal and have never lost weight without WORKING AT IT in my life...


    Last Saturday, I quit the eveing dose and then went to a new family physician on Monday. Gave him history, so wanting to find local doc for basic stuff and hoping he could handle thyroid stuff too. It was diagnosed by out of town lyme doc. He said I could stay at 30mg...and do labs in 6 weeks. He also said that the meds could actually me causing the symptoms and that I could stop taking them. It didn't require a tapering off...

    I reminded him of:
    the fact that first doc said she felt a goiter and I had complained of throat discomfort/pressure, and difficulty swallowing and that med had helped that... that I'd also felt better after beginning thyroid treatment...

    He nodded, I was to come back in 6 weeks.

    Then Tuesday a.m., I AGAIN, woke a bit after 5a.m. and no going back to sleep... becoming a pattern. About 7:20, all of the sudden, BAM, I'm plugged in like lightening hit.. like all systems have just been kicked up a few notches... that was it. No more meds for now. Sure enough, today I haven't been PLUGGED IN, thank God... I don't feel like myself yet (as in before I took the supplements the 2nd week of July)... but I'm not racing...

    I don't know if it is the dosage (which wasn't high), the brand, (which I did fine on for two months) but heart irreg. had started building up more frequency but will minor in affect, or if I'm having a toxic reaction or.... if my adreanl functioning is off and taking thyroid med and brought it to light... Have just read a tiny bit of info that indicates taking thyroid med with untreated adrenal dysfunction can cause such symptoms...

    I have no idea... I just know I feel like my heart has been thru the ringer... and it still isn't right. I'm just 24 hours off meds...

    And I have to contend with the fact that I may indeed need/require thyroid medication...

    One thing I'd never noticed, even though I'd posted results both here and on lyme board is that my numbers weren't really 'out of range' when doc diagnosed me.... I know that most would commend her for not being totally by the books and she is very much, 'medicine is an art' kind of doc... but i know that something was terribly wroing with my body and currently consuming the thyroid medicine I was on...

    There is probably more to this that might help, but it is a getting to be long as is...

    This doc on Monday checked throat and felt nothing and I felt as if he questioned whether or not I ever had 'anything'...


    I so want to be able to stick with this guy for a family doc... when I mentioned the adrenal problem possibility, his thought was to run a cmp in 6 weeks to check potassium because it is going to be off if adrenal functioning is off... my question is... why wouldn't he just test cortisol level??? i just don't know... i so want to build back trust in medical prof.

    I've read so many of yalls posts today about nodules and antibodies and hashimotos and I just wonder what all this means... that my labs weren't really off, I complained of neck stuff that was helped with meds, and felt much better in general after starting them but then, two months later, I'm sicker than a dog and it appears the med is a direct correlation... IDEAS???

    Whatever comes to mind... please share. I was trying to avoid another specialist... I have a referral for a cardiologist (which I'm holding to see how I feel 5 days or so off thyroid med) and a referral to orthopedist for a frozen shoulder... plus lyme... and no insurance... been denied a few times...

    Thanks in advance for feedback... cj

     
    Sponsors Lightbulb
       
    Old 08-17-2005, 07:38 PM   #2
    julied
    Member
     
    julied's Avatar
     
    Join Date: May 2003
    Posts: 83
    julied HB User
    Re: Just quit taking my medication & would appreciate feedback

    I would be interested in seeing what your labs are currently. Free T4, Free T3, antibodies, etc. This might give you an idea about how your symptoms correlate to your current levels.

    I wanted to add that I was found to have adrenal defficiency and my potassium was within the low normal range. I guess I had not understood that there was a correlation between adrenals and potassium. I think that I would still push for a cortisol saliva test to understand more clearly the functioning level of your adrenals currently.

    My sister had lyme disease and was quite ill from it and continues to struggle with fatigue a year later. I know it must be very hard for you but sounds like you are advocating for good treatment.

     
    Old 08-17-2005, 08:46 PM   #3
    cjFTWORTH
    Senior Veteran
    (female)
     
    cjFTWORTH's Avatar
     
    Join Date: Nov 2004
    Location: Los Angeles, CA
    Posts: 1,221
    cjFTWORTH HB User
    Re: Just quit taking my medication & would appreciate feedback

    thanks julied for your post...
    do regular labs like quest do saliva tests??

    and why do docs ask for free t4 but not t3? or visa versa... serious question, what is their usual rationale? antibodies test more for potential disease??

     
    Old 08-18-2005, 05:43 AM   #4
    midwest1
    Senior Veteran
    (female)
     
    Join Date: Jan 2003
    Location: Missouri, USA
    Posts: 12,925
    midwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB Usermidwest1 HB User
    Re: Just quit taking my medication & would appreciate feedback

    Quote:
    Originally Posted by cjFTWORTH
    ...and why do docs ask for free t4 but not t3? or visa versa... serious question, what is their usual rationale? antibodies test more for potential disease??
    Not julie here, but I can tell you that the FT3 test is usually much more expensive than FT4, so insurances often balk at MDs who order it. Also, many MDs think that it's unnecessary in the first place... that everyone perfectly converts enough FT4 to take care of the body's needs. Of course, that's not so. Wish they'd get a clue.

     
    Old 08-18-2005, 08:11 AM   #5
    julied
    Member
     
    julied's Avatar
     
    Join Date: May 2003
    Posts: 83
    julied HB User
    Re: Just quit taking my medication & would appreciate feedback

    My thoughts exactly about why doctor's are reluctant to test free t3 - $$$$. I ordered my saliva test privately and it was quite a reasonable price. Might be a good thing to consider....

     
    Old 08-18-2005, 10:51 AM   #6
    cjFTWORTH
    Senior Veteran
    (female)
     
    cjFTWORTH's Avatar
     
    Join Date: Nov 2004
    Location: Los Angeles, CA
    Posts: 1,221
    cjFTWORTH HB User
    Re: Just quit taking my medication & would appreciate feedback

    Quote:
    Originally Posted by midwest1
    Not julie here, but I can tell you that the FT3 test is usually much more expensive than FT4, so insurances often balk at MDs who order it. Also, many MDs think that it's unnecessary in the first place... that everyone perfectly converts enough FT4 to take care of the body's needs. Of course, that's not so. Wish they'd get a clue.
    meaning if FT4 is good, then all should be well... it should cover FT3shortages/overages or that if FT4 is good, it is assumed FT3 is as well??

    i'm paying out of pocket...
    i wonder if most docs/my gp will know what meaning to give if i ask for the ft3 to be added...

     
    Old 08-18-2005, 11:01 AM   #7
    cjFTWORTH
    Senior Veteran
    (female)
     
    cjFTWORTH's Avatar
     
    Join Date: Nov 2004
    Location: Los Angeles, CA
    Posts: 1,221
    cjFTWORTH HB User
    Re: Just quit taking my medication & would appreciate feedback

    Quote:
    Originally Posted by julied
    My thoughts exactly about why doctor's are reluctant to test free t3 - $$$$. I ordered my saliva test privately and it was quite a reasonable price. Might be a good thing to consider....
    that didn't sound md-ish...
    do i go thru a health food store or what? is there a cheaper but still reliable way to do it?

    thanks much

     
    Old 08-18-2005, 01:26 PM   #8
    cjFTWORTH
    Senior Veteran
    (female)
     
    cjFTWORTH's Avatar
     
    Join Date: Nov 2004
    Location: Los Angeles, CA
    Posts: 1,221
    cjFTWORTH HB User
    Re: Just quit taking my medication & would appreciate feedback

    yep, sure enough... thyroid panel II included those tests and the code you offered gave 10% discount. yall are great...

    i don't get it but will read site to see how it works... MUCHAS GRACIAS!

     
    Old 08-18-2005, 07:54 PM   #9
    kgent
    Junior Member
     
    kgent's Avatar
     
    Join Date: Nov 2004
    Posts: 23
    kgent HB User
    Re: Just quit taking my medication & would appreciate feedback

    cjFTWORTH,

    "About a month ago I took a food supplement (intended to make cells communicate better, has great track record for some very ill people...)"

    I'm pretty sure I know what product you are talking about. I started it about two months ago, and have noticed nothing from it other than I have a pronounced irregular heart beat. I even went to a Cardio doc, had to have stress test, and everything. The results were high pronouced T waves on EKG.

    I have also switch to armour during this time... so there could be alot of different things causing my issue. So in the list of things, this one could have made it worse, just don't know.

    I'm not sure if I'm going to continue taking the product? besides not being a reasonably priced product.

    Just thought it was interesting that you mentioned this.

     
    Old 08-19-2005, 06:52 AM   #10
    cjFTWORTH
    Senior Veteran
    (female)
     
    cjFTWORTH's Avatar
     
    Join Date: Nov 2004
    Location: Los Angeles, CA
    Posts: 1,221
    cjFTWORTH HB User
    Re: Just quit taking my medication & would appreciate feedback

    interesting...
    so did you switch to armour from a different thyroid med???
    had you cardio stuff in the past? none or less severe??
    what did doc make of pronounced 't waves'?
    did they make any correllation to supplement?
    i do think it quite possibly does make meds work better as i recall people lowering doses and/or getting off certain meds in presentations i've seen...

    i just don't know that i can afford for that type of adjustment to be taking place right now...

    i keep thinking i'll be able to get back on it but i don't know...

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Help-just started taking Cytomel HashiHypo21 Thyroid Disorders 8 08-05-2009 11:15 AM
    Just got labs, feedback appreciated... jennifer35 Thyroid Disorders 11 12-28-2007 03:06 PM
    Quit norco habit, started Suboxone worried & confused about best method jamesmzrt Addiction & Recovery 2 01-23-2007 09:48 PM
    Dr Just Prescribed Topomax & Imitrex-have ?'s sweeterthan Headaches & Migraines 14 08-05-2006 03:46 PM
    Anyone taking Lexapro? ILCovergirl Panic Disorders 7 01-21-2004 08:38 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 03:19 AM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!