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Newbie Questions

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Old 07-17-2006, 01:54 PM   #1
Join Date: Jul 2006
Posts: 3
gemmyt216 HB User
Newbie Questions

I found out I had an enlarged thyroid when I went in for allergies. Looking back I probably should have known as I had many symptoms but go figure. I was told my thyroid was enlarged, had the TSH test which came back at 8.777. They put me on .55 of Levonthyriox (spelling) and scheduled me for an ultrasound 4 days later. The ultrasound showed the enlargement and nodules. So I had to go off of my medicine for one month. I had an iodine uptake and was just called with the results. Now, I'm expecting to hear if the nodules are hot, warm or cold but what I was told was I have a multinodular goiter (already knew that from the ultrasound!) and that I need to see a specialist. I asked about the nodules and the nurse said she didn't know that I would have to see the specilist. So I wait.
I realize that thyroid cancer is very rare and nodules are common (although in our 7 person office we have an under 40 woman who had thyroid cancer) but I guess my question is why in the world wouldn't my current doctor be able to tell me if the nodules were hot, warm or cold? Anyone else have this type of experience. And yes, I know I must remain patient and I'm really not worried about cancer but I had to be patient for one month waiting for the uptake test becasue they started me on meds that I needed to be off of for a month. Ugh! Help!

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Old 07-17-2006, 02:02 PM   #2
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Re: Newbie Questions

Edit... oops. Just reread your question. Never mind my first answer.

Did the MD himself talk to you on the phone, or did an aide of some sort? The final result will likely be put on hold until the "official" MD can give you the news.

Last edited by midwest1; 07-17-2006 at 02:05 PM.

Old 07-17-2006, 02:06 PM   #3
Join Date: Jul 2006
Posts: 3
gemmyt216 HB User
Re: Newbie Questions

Sorry Midwest, I thought I made it clear I did have the uptake test done and MY DOCTOR HAS THE RESULTS, but they would not tell me if the nodules were hot or cold or warm. They just told me I needed to see a specialist. I have had and completed and they have the results of my blood work, sonogram and Iodine Uptake test.

It was the nurse and I specifically asked her that I thought this test would tell me about the nodules and she just said yeah, usually it does but you need to see the specialist to read that to you.

Last edited by gemmyt216; 07-17-2006 at 02:08 PM.

Old 07-17-2006, 04:44 PM   #4
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Join Date: Apr 2006
Location: CT, USA
Posts: 120
stephanie867 HB User
Re: Newbie Questions

You can go to the place you had it done and ask them for a copy of the results. That's what I did. My doc was on vacation for 2 weeks after I had my uptake and I couldn't wait to see what it said.

Of course, I got it and didn't understand it at all...but then I found this board and read a lot and it all made sense

Old 07-18-2006, 07:29 AM   #5
Join Date: Jul 2006
Posts: 3
gemmyt216 HB User
Re: Newbie Questions

Thanks Stephanie. I guess my main question is doesn't this test show if the nodules are hot, warm or cold? And shouldn't those results have been given to me instead of someone just calling me and saying "you need to see a specialist." UGH! They had put me on thyroid meds on a Friday knowing I had an ultrasound schedled for Monday, the results of the ultrasound led to the uptake test which they would not do until I had been off the meds for 30 days so I patiently waited for this uptake test and am very frustrated that it is done and no one will tell me the results. And the specialist they want me to see is an Eye,Ear Nose and Throat? I live in a town of about 80,000 and we have no endrocronlogist (sp?) here though there is one Dr. in the phone book who list endrocronlogy as an area of expertise. I called that office and they said to have my charts sent to them and they would let me know about getting an appointment with them.
I hate to seem so "bitchy" and I know there are a lot of worse medical problems I could be facing but this is frustrating.

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