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tsh levels and symptoms

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Old 12-27-2006, 04:51 AM   #1
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jdn5764 HB User
tsh levels and symptoms

I'm wondering. I have tsh level of 2.92, which I have been told is okay, yet I'm having what I think are hypo symptoms. I have read on here that some of you have tsh levels higher. So I'm wondering can someone have a reading like mine yet have symptoms like others who have really high levels.

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Old 12-27-2006, 06:20 AM   #2
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Re: tsh levels and symptoms

Hello JDN! I am still in the beginning process of understanding thyroid issues also so I am definitely not an expert but I have a TSH of 1.14 and have hypo symptoms. It is not surprising that you may be having symptoms at 2.92. The new lab ranges have changed to .3-3.0 and you are very close to that cut-off. There are a lot of doctors who like to keep TSH under 2.0. You may need to find a doctor who is aware of the new lab ranges in order to get treated but I would continue to pursue it. What are your symptoms?

Old 12-27-2006, 08:05 AM   #3
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Re: tsh levels and symptoms

always tired,
sleep at night but never feel as if I've had any sleep at all.
"world of my own" feeling "daydreamy"
swollen eyelid on one eye, decreased vision, very blurred can't see in dark.
Dark vision on that side of face also.
have bouts where hair comes out.
can't lose weight
feeling cold, always have cold feet,
wake up at times when I can't swallow very scarey think i'm going to die with that.
loss of libido.
This has been going on for 4 years now, eye problems worse, but I would say that it started back in 99 when I used to wake up with a feeling as if a pea was stuck in my throat, which would wear off during the day, I then had a bad ear infection which left me with dizzy spells and tinnitus. All I want to do is feel better and get my eye right. But I have read that with hypo there are eye problems.
This is the 2nd dr I've been to in the UK but not having much luck. The lab range at my GP is 0.5 - 4.00. At times I feel as if I'm banging my head up against a brick wall. It is putting a strange on my relationship with my partner (due to the loss of libido and also the fact I'm always tired and falling asleep - I'm not working which he puts down to being lazy but like he says ifthe GP can't find anything wrong obviously there isn't). GRRRR

Old 12-27-2006, 04:51 PM   #4
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Barbara_Ann HB UserBarbara_Ann HB User
Re: tsh levels and symptoms

hi jdn definitely can be hypothryoid with your normal range readings.

I was very easily diagnosed and so was my mother by going to our GP's and getting simple blood workup. That doesn't work for many people.

My sister on the otherhand had worse symptoms then my mother and I combined - she was a wreck. She went to her regular family doctor complaining of a multitude of symptoms for over a year and half. Her blood work always came back showing her thyroid in the normal range. FINALLY, they recommended and endoctrinologist and she went and they found she was hypothyroid also.

She showed in the normal range but is having to take a higher dosage of the same medication I'm on and I was showing a tsh level of 11.93 when first diagnosed.

You need to get to a endoctrinologist. Your thyroid is part of your endoctrinal system. Your insurance may require that your regular doctor recommend a specialist. Ask about doing that.

I read a book called Hypothroidism 101 and the Dr. that wrote it said there are 100,000's of people walking around who are hypothryoid but not aware of it because their blood work is not showing up right.

Good luck

Old 12-28-2006, 11:17 AM   #5
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pattyriddell HB User
Re: tsh levels and symptoms

Im hypo and have blurred count is 6.36.patty

Old 12-29-2006, 07:29 AM   #6
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jdn5764 HB User
Re: tsh levels and symptoms

Does your gp think that your eye problems are related to you hypo.

As mine is adamant that it can't effect your eyes unless you hyper.

I notice my dim eye gets in the way of my good eye at times anyone else have this.

Old 12-29-2006, 12:19 PM   #7
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Location: Derbyshire, UK
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skim... HB User
Re: tsh levels and symptoms

Hi jdn,

I'm in the UK also & really struggling to get my GP to listen to me.
I started off with a TSH of 136, then 40, then 23, & then 2.86.

When I first saw this doctor he gave me a speech about how some doctors treated by numbers & the patients still feel crap etc etc. However as soon as I got to 2.86 - he said you're ok now - why do I still feel terrible then?
He then went on about it's probably not related to the thyroid etc.
Well then why is it then when I up the dose
He just kept saying that I was alright.

Anyway my last test 2 weeks ago showed I was a TSH of 4.11 & again he said I'm alright even though I told him I do not feel alright.

I took it on myself to up my dosage & it's the best I've felt for a long time.
I'll tell him next time I see him & take it from there. However I would recommend you do the same - it's your decision to do what you feel best for you.

Old 12-29-2006, 05:38 PM   #8
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Re: tsh levels and symptoms

It seems to me that doctors don't understand that what is "normal"for someone, may be way too high or low for someone else! Wouldn't it be nice if we all could have been tested when we felt our best, before we had any symptoms, I wish I knew what my normal was..before I went hyper. I told my 2 daughters to get tested. one was 1.30 or lower maybe, and the other was 2.31. Both have NO symptoms right now they feel fine.So it goes to show you..2 sisters and look how different their tsh is and they're both okay, it's what's normal for YOU.I'm guessing mine was more like the first ones before I went hyper, but Im 52 and she's 27, who knows? It should be a routine test, I don't know if mine was ever tested before I got sick.

Last edited by Bran'sNana; 12-29-2006 at 05:40 PM.

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