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    Old 01-26-2007, 11:09 AM   #1
    jodianne
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    Feeling Yucky When Starting Synthroid????

    Hi,
    I had posted sometime ago in regard to my thyroid tests and my alternative
    doctor considering putting me on a low dose of Synthroid. At the time,
    my reg doc disagreed because to her my tests were "normal". My results
    were as follows:

    FT3-302 (range 230-420)
    FT4-1.1 (range .8-1.8)
    TSH-3.56 (range .40-5.50) TSH has fluctuated over the yrs.
    TPA-362 (these antibodies could have been from many yrs ago when I was
    hypothyroid after a pregnancy. However eventually was taken off
    meds because values were good)

    Because of my symptoms, anxiety/depression, joint aches, coldness, thinning
    hair etc, and because the TSH is a little elevated, alternative doc felt I
    should try the Synthroid. I started last Friday (1 wk ago) w/ 1/2 tab of
    Synthroid .065 in the morning. By evening I felt so hyper, I could hardly
    go to sleep. This has continued.

    My question is, does anyone know or have experienced this and eventually
    that goes away or does this mean my thyroid is just not bad enough yet
    to be on medication??? I'm so confused, I don't know whether to continue
    or just give it up. My pulse is around 64 even when I feel hyper it stays
    around that.

    Would appreciate hearing from anyone who could give me an idea of what's
    going on.

    Thanks
    Jodianne

     
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    Old 01-27-2007, 09:48 AM   #2
    jodianne
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    Can Anyone Help Me W/ My Post From 1/26 In Re To Feeling Yucky W/ Start Of Synthroid?

    Hi all,
    I have been checking and checking hoping someone would have a reply to
    my post of 1/26 in regard to feeling yucky w/ just starting Synthroid. Would
    love to know if anyone could help me w/ this.
    Jodianne

     
    Old 01-27-2007, 10:38 AM   #3
    fusionqueen
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    Re: Feeling Yucky When Starting Synthroid????

    So sorry no one replied....is this your first time on synthroid? What is the full strenght of the pill? Maybe they need to have you start out on .25 and work up....?? That is lowest or even half of that. I would agree your TSH is to high for most to feel good. I personally had a hard time with symthroid.....I was on it for 13 years.....need to up it this last fall and I could not tollerate the wired feeling plus nausea and dizziness that would not go away. I hope you are feeling better today......check in and I will respond if I can help!

     
    Old 01-27-2007, 10:54 AM   #4
    Jenny C.
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    Re: Feeling Yucky When Starting Synthroid????

    Hi,

    I am not a good advice person on this board.. But I can try to help you out.
    I had half of my thyroid out back in November, and I had those same feelings you are talking about...I felt like I had tons of caffeine or something...and I felt like I was in high gear.
    It was an awful feeling...but the Dr. told me, it was my thyroid trying to figure out which way to go...it was trying to get back to working properly, so it was swinging back and forth...One day I felt like I was going a mile a minute, the next day I was dragging an inch off of the floor.
    So this may all be, your thyroid, trying to regulate itself.
    I am not familiar at all, with what test results should read, so I am no help to you at all there.
    I do know, that it takes several weeks for the thyroid medication to build up in your system, for you even to feel any affects from it.
    Everything I have been told, and have read, says, it is an extemely slow medication, to build up in your system.
    So this leads me to believe that this is probably your thyroid, trying to straighten itself out...I don't think it is from the medication, since it hasn't been in your system long enough...for you to be feeling affects from it.
    Maybe once the medication kicks in, your thryoid will start to settle down, and you will feel normal again.
    I know I did that back and forth, for several weeks...after my surgery, and now I am on medication, but I am now hypo, so that is the way my thyroid decided to go...So now, I am just dragging everyday...So I am just waiting to get on the proper dosage of medication...but I am no longer doing that back and forth stuff.
    So like I said, I am HORRIBLE at advice, but this is my personal experience, and I wish you the best of luck to feeling better...and please let me know how you are doing.

    Jenny

     
    Old 01-27-2007, 11:08 AM   #5
    ErinBeth
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    Re: Feeling Yucky When Starting Synthroid????

    Hi Jodianne,

    Quote:
    Originally Posted by jodianne View Post
    I started last Friday (1 wk ago) w/ 1/2 tab of
    Synthroid .065 in the morning.
    I read your post, but found it hard to address your questions since I don't know how to interpret this part:

    Quote:
    1/2 tab of Synthroid .065
    Could you look at the Synthroid bottle and then type exactly what it says.

    For example, my current Levothroid pill bottle says 0.125MG, which is the equivalent of 125mcg. I take one of those every morning.

    From what you said, it sounds like you are taking one of the following:
    .065MG Synthroid (half of a .130MG tablet)

    or

    1/2 of .065MG Synthroid

    That confuses me because I don't think Synthroid makes a tablet of either a .065MG or .130MG size.

    Quote:
    Originally Posted by jodianne View Post
    By evening I felt so hyper, I could hardly
    go to sleep. This has continued.

    My question is, does anyone know or have experienced this and eventually
    that goes away or does this mean my thyroid is just not bad enough yet
    to be on medication???
    Can you be specific about your symptoms, please? When you feel hyper, what exact symptoms do you experience?

    It is normal to be symptomatic when you introduce thyroid medication. Very few people just take a pill and then feel better.

    More info would help people here give opinons, I think.

     
    Old 01-28-2007, 12:39 PM   #6
    jodianne
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    Re: Feeling Yucky When Starting Synthroid???? Attn: fusionqueen, Jenny C., ErinBrin

    Fusionqueen, Jenny C., ErinBrin,

    Thank you all so much for replying to my message. It's such a good feeling
    to know there is support out there!! I will try to answer all your replies in
    this one post.

    Fusionqueen this is not my first time on Synthroid. After I had my daughter
    in 1970, I was diag w/ hypothyroidism, put on Synthroid and did well for
    13 years. Then I went hyper and was taken off the thyroid medication, that
    was in 1983. Thought I did well all those years w/o it except in 1984, I
    started with anxiety and panic attacks. Looking back on it now, and reading
    more about thyroid disease, maybe that all came about because I was off
    the thyroid?? No one ever picked up on it and I was nieve. Although my reg
    doc would chk my thyroid levels occas and say they were nl. I have started
    w/ an alternative doc who feels I do have some symptoms of hypo now and
    felt my TSH was on the high side (actually over the yrs TSH has even been
    up to as high as 5.12 but not consistent. Anyway the alternative doc has
    put me on Synthroid (and I have to correct this from last post, brain fog I
    guess) 25 mcg to take 1/2 of the 25 mcg for a month and then be tested
    again. So, actually, I am just starting on thyroid med again after all these
    yrs. Started last week and noticed that by eve I feel "wired" and was
    wondering if this is nl when you start out?? I know it takes 4 to 6 weeks to
    feel differently, but I'm wondering why I feel "wired" (like I had caffiene,which
    I don't take anything w/ caffiene). Thanks again for replying and I will
    keep you posted.

    Jenny C., I guess your answer could be correct that my thyroid is now
    being introduced to something new and a abit confused! Hope you will soon
    be balanced and feeling better. Your situation is a little different because you
    had half yours taken out, I can see where that would throw the thyroid into
    a spin!! Thanks again for your reply and I will keep you posted as I go along
    here.

    ErinBeth, as I mentioned above, I was wrong about the dosage. It's 25 mcg
    and I take 1/2 of that each morning. Again as mentioned above my symptoms
    are (since taking the medication) the feeling of being "wired" or too much
    caffeine. I expected to take the med and not feel any different until 4-6
    weeks, I don't understand why I have this "wired" feeling and I only just
    started a week ago. If it was 4 wks down the road, I would think that maybe
    it swung me to hyper and my thyroid just wasn't bad enough to be on med
    yet. My reg doc disagrees of me taking this at this time. To her (from the
    old school) tests are in nl range. She is afraid I will go hyper and have more
    probs w/ my anxiety. My alternative feels that w/ the anxiety, being cold,
    dry skin, constipation, thinning hair, sometimes depression, sometimes nausea
    that it could be from the thyroid. Reg doc feels my thyroid is burning out, but
    it is not to the point of meds yet. So confused, but I decided to go along
    w/ the alternative and give it a try, but I'm concerned about the "wired"
    feeling, not knowing if this is my bodies way of saying thyroid is not ready
    for med as reg doc said????? I do know that when I started w/ hypo in
    1970, I was extremely tired. It was considered post partum hypothyroid,
    I would have to put my daughter in the crib because I could not stay awake
    anymore. And yet, my tests showed borderline hypothyroidism. Thanks
    for your reply and info and just ask if you need more info.

    Jodianne

     
    Old 01-29-2007, 11:44 AM   #7
    Tamsin
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    Re: Feeling Yucky When Starting Synthroid????

    I think you're probably just sensitive to the meds.

    When I first increased my meds I had a reaction even with a split dosage on a full stomach, but that subsided after a couple of weeks.

    Now I am trying to take the second dose on an empty stomach to try to lower my TSH to closer to 1 for the current 2.1. I get jittery for a couple of hours, but then it goes away.

    Have you talked to your doc?

     
    Old 01-29-2007, 12:09 PM   #8
    ErinBeth
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    Re: Feeling Yucky When Starting Synthroid????

    Looking at your labs and listening to your symptoms, my guess would be that you are hypothyroid. Since you see the fluctuation, I wonder if that might be due to a thyroid under attack from antibodies. It can be really hard to treat someone experiencing ups and downs due to Hashimoto's.

    The dose you are getting is tiny. You may either be just very sensitive to the meds and need time and patience to adjust in tiny increments or your thyroid hormones may be fluctuating enough to toss you back and forth between hyper and hypo, hard to say.

    You have two docs, each with a differing approach. I'm not sure either of them is wrong and I don't think either approach would be dangerous for you. You can either wait for the antibodies to kill the thyroid and keep monitoring it or be treated with tiny increments of the hormone by the other doctor. Either way I don't think you're going to feel really well for awhile.

    Thanks for describing the symptoms. Just reading your post, I don't see anything that sounds life threatening, just miserable. You may want to let the doc know what you are experiencing, however, just to be on the safe side.

    If you experience wheezing; chest tightness; fever; itching; bad cough; blue skin color; fits or swelling of face, lips, tongue, or throat, you should consider those life threatening and seek help immediately. Ditto for chest pain or pressure or fast heartbeat; or difficulty breathing. If the symptoms are just due to adjusting to the meds, which they very well could be, you should feel some better toward the end of a 4-6 week levelling period.

    I'm sorry this is so rough for you. I do empathize, even though my symptoms have been a little different. Treating a thyroid disorder is just no fun.

     
    Old 01-29-2007, 12:36 PM   #9
    ErinBeth
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    Re: Feeling Yucky When Starting Synthroid????

    Just one other line of comment ... given what you have told us ... if I were you, I would continue toughing out the med levelling process. I would be guessing, given all the hypo symptoms, that it was only going to get worse and I might as well get started with the treatment.

    Why?

    Nearly 40 years ago my mother, who was hypothyroid herself, suspected I had the same problem and had me tested. All this was very different back then and doctors were not as willing to treat as some are now. My doctor said I was "borderline." Who knows what borderline then would mean today.

    Anyway, I thought that was my answer for life, so I toughed it out for the next 40 years without being tested again without even considering all those hypo symptoms were actually screaming hypoT. I didn't go to a doctor enough for a doctor to pick up on it, either. My bad.

    Finally, in to see a doctor because of severe swelling in my legs, he did an exam and ordered some blood tests, including thyroid. I love that man and always will.

    In my case I suffered far more and far longer with all this than would have been necessary. So, if I had it to do all over again, I would find a doc to treat me with labs and symptoms like yours and I would tough out the misery of med levelling, even if sensitive, rather than to spend 40 years battling all this without the benefit of treatment.

    But, that's me, knowing what I know now about what was then.

     
    Old 01-31-2007, 04:05 PM   #10
    jodianne
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    Re: Feeling Yucky When Starting Synthroid????

    ErinBeth,
    Thank you so much for your long reply and input. I have decided to
    tough it out and keep going w/ the tiny dose of Syn. I have been told
    many times that I have a very sensitive system. I had contacted the
    doc and asked if this "wired" feeling is to be expected when first starting
    thyroid medication or does it mean my thyroid is not bad enough to need
    the medication at this point. His reply was that my symptoms may or may not be a sign of too much thyroid at any dose, and he won't be able to tell
    until the blood results are back after taking it for one month. He said if
    I can work through the symptoms until blood work fine, if symptoms are too
    intolerable, I can stop the thyroid.

    Daw----------I know the bloodwork will show the results in one month,
    my question was do other people feel "wired" right from the start of taking
    it or does this mean I don't need it. Anyway----------I'm going to try to tough it out but it sure doesn't
    help my anxiety!!!

    I know (just as my reg doc has mentioned) that my thyroid will eventully
    burn out, I guess I'm just in the transition time.

    This is ironic you mentioning your mother had you tested when you were
    younger. In 1999 I urged my daughter to ask her doc for a thyroid test,
    she blamed her tiredness on her job (managing a bank w/ a lot of responsibility). Months went by and she just was exhausted, then I noticed
    her face was puffy, her hair was falling out. I told her if you don't mention
    this to the doc, I will call her. She finally gave in, was tested and her
    labs were terrible. She was so hypo. When she went back to the doc she
    mentioned she was trying to get pregnant and the doc flipped out "she told
    her there is no way you can get pregnant now you have a severe hypoT
    problem that needs to be treated immed. My daughter has thanked me many
    times that I pushed her to mention this to her doc. I was somewhat familiar
    w/ the symptoms from my being hypo 30 yrs before. I'm sorry you had
    to suffer all those years because it really can affect so many other organs
    etc.

    Thanks again and I am going to try to continue. See what happens.

    Jodianne

     
    Old 01-31-2007, 05:48 PM   #11
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    Re: Feeling Yucky When Starting Synthroid????

    Keep us posted on how it's going. You'll find a lot of empathy here.

    In regard to your question, I haven't noticed many hypos mentioning feeling "wired" as their symptoms, but the symptoms are not the same for everyone.

    I did have very unpleasant physical symptoms I considered to be caused by anxiety. Those miserable feelings have gradually subsided as my Levothroid was increased (gradually since May 2006) and I seldom experience that anymore.

    It may be what you call "wired" is similar to that which I experienced, but I didn't think about it that way because I was so constantly fatigued by the time I cried weakly for help. "Wired" sounds energetic to me and I certainly was not that.


     
    Old 02-01-2007, 01:21 PM   #12
    jodianne
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    Re: Feeling Yucky When Starting Synthroid????

    ErinBeth,

    Thanks again for your reply. It really helps knowing others out there care
    and can be corresponded with.

    As far as the "wired" feeling, I have to explain that better. I didn't feel
    "wired" until I started the Synthroid about 9 days ago. I do suffer from
    anxiety, but the "wired" feeling is different and that just started when I
    started the Synthroid. I don't remember feeling that way when I took
    the Synthroid 30 yrs ago, but at that time I was so exhausted that probably
    being "wired" meant feeling better!! One of the reasons the alternative is
    trying me on the Synthroid is because of the anxiety.

    "Wired" doesn't feel energetic to me, it feels really uptight, or again like
    when you drink too much caffeine. Feels like heart is pounding, racing,
    but it isn't.

    Again I didn't expect to feel ANYTHING different for 4 to 6 weeks and as
    soon as I started taking this, I got this "wired", hyper feeling almost like it
    created anxiety. That's what I have trouble understanding. My pulse is
    good so I know my heart is not racing.

    Anyway, I'll try to hang in there for a month and see what the levels show.
    Thanks again for your help, keep in touch.
    Jodianne

     
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