It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board

  • Anyone taking/have taken Cytomel? Headaches from ect....

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 09-02-2007, 09:13 AM   #1
    homie78
    Junior Member
    (female)
     
    Join Date: Aug 2007
    Location: Norfolk, VA USA
    Posts: 17
    homie78 HB User
    Question Anyone taking/have taken Cytomel? Headaches from ect....

    Is anyone currently or have previously taken Cytomel? I have noticed headaches recently. I have been on 5MCG 2x's daily since 8/17/07. I have never been one to really get headaches to the point of taking Advil or Tylenol, I try not to take medicine for every little ache and pain or I would constantly be filling my body with, and the Thyroid meds are enough as it is

    But since the Cytomel, I notice that I have really bad headaches, usually in the mornings. In addition, still feel high level of anxiety, major stomach issues (addressed in another recent Thread by wdiguy) heart beat is all over the place, and have felt that I am real edgy and snappy. I really try and be conscious of this when around my kids, but I still find myself getting very impatient with them. I have tried to explain that I am on new medicine and that mommy is sometimes getting mad or yelling for something that I would not normally get that angry about, and the little darlings do try and understand, but lets face it, they are kids (6 & 8) and shouldn't have to deal with my issues.

    Help me out on this one, when I was hyper, I felt the same way, edgy/snappy, anxious, now I am hypo and before being put on Cytomel (I had quit taking any Thyroid meds for about 8 months or so ) I felt pretty good, I felt extra patient with my kids and husband, was tired and run down all the time, but that is nothing new to me, I have felt tired and run down since 15 I have learned to "deal" with it and keep truckin'. But mentally, I felt "right" and was not having headaches, heart beat was always real low, but not palpitating as it is now (father had heart transplant at 40, enlarged heart, makes me x-tra nervous when my heart acts up!)

    I don't know, I know this Thread is kinda all over the place, that is another thing!! I am having the MOST DIFFICULT time concentrating and processing info, I find myself sitting at my computer at work and being so damn tired that I literally stare at my work for minutes at a time and will forget what I am doing, I work in Insurance (P&C) and cannot afford to make mistakes in my work. It is really frustrating....hoping that maybe my body is just reacting from not being on any meds to going back on, trying to hang in there, hope this will stabilize soon

    Thanks for reading, any advice/feedback would be most appreciated.

     
    Sponsors Lightbulb
       
    Old 09-03-2007, 12:17 AM   #2
    FinnMaid
    Senior Veteran
    (female)
     
    Join Date: Aug 2007
    Location: Finland
    Posts: 3,354
    FinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    You started with 10 micrograms per day straight away? - maybe 10 micrograms is a bit too much at this point? I've started taking T3 with 5 and added the second 5 after two weeks and my nerves got better. You're not taking any T4 with that?

    Last edited by FinnMaid; 09-03-2007 at 01:19 AM.

     
    Old 09-03-2007, 05:51 AM   #3
    Reece
    Senior Veteran
    (female)
     
    Join Date: May 2005
    Location: NY
    Posts: 3,803
    Reece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    I also think you should decrease your dose by half, and after a week or so, increase your dose by another half of a pill, and if it's too much, go back down to where you feel well.

    Cytomel, if you take too much, can make your heart race, and is dangerous, and some pp. can't tolerate it very well.

     
    Old 09-03-2007, 08:41 AM   #4
    homie78
    Junior Member
    (female)
     
    Join Date: Aug 2007
    Location: Norfolk, VA USA
    Posts: 17
    homie78 HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Thanks for the replies so far

    I feel embarrassed, but what is T3 and T4 and the difference?? I have had thyroid removed for almost 15 years now and have never known of a T3 & T4 until I came to this message board (so grateful I found!!)

    I have never really asked questions and never have asked for copies of my results before (I am getting my labs done in Oct and plan on posting once received)

    I am now trying to educate myself, just recently got internet at home (I know, sad but true ) and have found this whole new world of information and best of all this board.

    So I have no idea what T4 is, I know that I am not taking any because all I have been prescribed to take is the Cytomel for now (which I am assuming is the T3). Wow, I have a lot to learn....

    Good advice on the Cytomel, will try and see if that helps. Thanks again

     
    Old 09-03-2007, 09:52 AM   #5
    Reece
    Senior Veteran
    (female)
     
    Join Date: May 2005
    Location: NY
    Posts: 3,803
    Reece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    You've had your thyroid removed 15 years ago, and all you've ever been on has been cytomel?

    Usually, doctors prescribe synthroid (not necessarily better, just what they tend to prescribe), which is t4, which is what the thyroid primarily makes, and converts in the body to T3, which is used by the organs.

    Cytomel, which is T3, is shorter acting, and doesn't last as long in the body---and could make you edgy/jittery, which could also happen if you are overdosed on any thyroid meds.

    You might feel better on a mix of synthroid and a little bit of cytomel---I did that at one time, now I feel fine on synthroid alone at this point (with no thyroid).

    Let us know what happens at the doc!

     
    Old 09-03-2007, 11:22 AM   #6
    Red Maple
    Senior Veteran
    (female)
     
    Join Date: Apr 2005
    Posts: 608
    Red Maple HB UserRed Maple HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    There is a very knowledgeable poster about both T4 and T3 here on this board by the name of Midwest1. She would be able to explain the differences and differents needs for each hormone to you. Another great place to start gaining knowledge is at your local public library. I found my library to be a wealth of information about my hypothyroidism. Many here recommend the book "Thyroids for Dummies" as a starting place.

    Good luck to you. The more you know about your thyoid disorder the better you will be able to communicate your needs to your doctor. Hope you are feeling better very soon!

     
    Old 09-03-2007, 03:01 PM   #7
    homie78
    Junior Member
    (female)
     
    Join Date: Aug 2007
    Location: Norfolk, VA USA
    Posts: 17
    homie78 HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Oh no, I have always been on Levoxyl (sorry I had explained this in a separate Thread) from the start (I guess that is the T4?) I had been on .125mg and was ok on that until 1st child at 21, since then levels have never been stabilized.

    I saw an Endo when first diagnosed at 15, but have been to primary Dr's since. Past few years my primary doc has increased/decreased Levoxyl and I felt like I was on a roller coaster of highs and lows, so I quit taking my medicine totally.

    Wow, I gained 15 much needed pounds (98-100 lbs before and 5'6, too thin, looked unhealthy!) felt more mentally stable, so I kept going without.....I know better than to so this, but was feeling good...all good things come to an end..

    Saw an Endo in July as I could tell that the tiredness was increasing & other symtoms. Endo first gave me Synthroid 75mg 1x daily, I had heart palpitations, real weird, hard to explain feeling, just felt wrong! Endo then called in Cytomel, been on since 8/17....

    I know I seem so naive, but just always thought, "their Dr's, they know what they are doing and don't question it", in reality I want to know what is happening with my body and I need to understand this disorder to successfully treat it.

    Sorry for the confusion on the meds there! Thanks again for the replies.

     
    Old 09-03-2007, 11:01 PM   #8
    FinnMaid
    Senior Veteran
    (female)
     
    Join Date: Aug 2007
    Location: Finland
    Posts: 3,354
    FinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Maybe you should take some sort of levothyroxine (we have only one kind here in Finland ) and a bit of Cytomel? Or move on to Armour which from what I've heard could be the right med if the synthetic stuff doesn't work for you?

     
    Old 09-04-2007, 07:10 PM   #9
    homie78
    Junior Member
    (female)
     
    Join Date: Aug 2007
    Location: Norfolk, VA USA
    Posts: 17
    homie78 HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Yeah, a co-worker is on Armour and has positive things to say regarding.

    I have also heard that the cost is less for the Armour (30 day supply of Cytomel was $50 copay!!) That is simply ridiculous, but that is another subject

    I went yesterday and today with 1 dose of Cytomel vs. 2x's. No difference yet, but that is a downside to Thyroid, nothing happens over night....(^_^)

    Thanks for your thoughts and feedback, much appreciated!

     
    Old 09-04-2007, 11:36 PM   #10
    FinnMaid
    Senior Veteran
    (female)
     
    Join Date: Aug 2007
    Location: Finland
    Posts: 3,354
    FinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Quote:
    Originally Posted by homie78 View Post
    I have also heard that the cost is less for the Armour (30 day supply of Cytomel was $50 copay!!) That is simply ridiculous, but that is another subject
    This is a bit off topic, but here it's completely opposite - my Liothyronin (T3, 25 micrograms per day) costs about 6 euros a month (what's that? - about 7 dollars? - and Levothyroxine is "practically free") whereas if I was on Armour, it would easily cost something like 40-45 euros or more a month Not fair Armour is also very hard to get (there are only few doctors who prescribe it) but we're working on changing that

    Last edited by FinnMaid; 09-05-2007 at 04:16 AM.

     
    Old 09-05-2007, 06:01 PM   #11
    homie78
    Junior Member
    (female)
     
    Join Date: Aug 2007
    Location: Norfolk, VA USA
    Posts: 17
    homie78 HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Health care and cost of prescrips are enough to drive someone mad.

    Just had this conversation today with my husband. He is making a career move and I will add him to my health insurance through my work, $360.00 per month for myself, husband and 2 kids, and then the high co-pays for both the Dr. visits and the meds...CRAZY stuff....

    Health care and meds should be a priority for everyone, not a privilege for those who can afford it!

    Yes, sorry to go off subject, but had to reply back on that! Have a good night, talk again soon I hope.

     
    Old 09-06-2007, 01:46 AM   #12
    FinnMaid
    Senior Veteran
    (female)
     
    Join Date: Aug 2007
    Location: Finland
    Posts: 3,354
    FinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB UserFinnMaid HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Quote:
    Originally Posted by homie78 View Post
    Health care and meds should be a priority for everyone, not a privilege for those who can afford it!
    I agree Our public health care system doesn't always work perfectly (we are very unequal in some issues here also) but not getting medical care is really not about patient's wealth but in many cases because of lack of (competent) doctors in small communities (they obviously don't want to live "in the middle of nowhere" ). For example I would be in deep **** healthwise if I still lived where I used to live (and had no internet ) - I would have to travel long distances to see a specialist who would take the time to listen to me and prescribe the med I need. I don't have private health insurance because the public system usually works and our tax money also helps us pay for private doctors too (to see my endocrinologist costs something like 70-80 euros but I have to pay 48 euros)

    Oh and have a nice day Hope the lower dose works for you.

    Last edited by FinnMaid; 09-06-2007 at 11:44 AM.

     
    Old 09-12-2007, 10:45 PM   #13
    Deda
    Senior Veteran
    (female)
     
    Join Date: Jul 2003
    Location: Northern C
    Posts: 2,327
    Deda HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Quote:
    Originally Posted by homie78 View Post
    Is anyone currently or have previously taken Cytomel? I have noticed headaches recently. I have been on 5MCG 2x's daily since 8/17/07. I have never been one to really get headaches to the point of taking Advil or Tylenol, I try not to take medicine for every little ache and pain or I would constantly be filling my body with.....


    But since the Cytomel, I notice that I have really bad headaches, usually in the mornings. In addition, still feel high level of anxiety, major stomach issues (addressed in another recent Thread by wdiguy) heart beat is all over the place, and have felt that I am real edgy and snappy. I really try and be conscious of this when around my kids, but I still find myself getting very impatient with them. I have tried to explain that I am on new medicine and that mommy is sometimes getting mad or yelling for something that I would not normally get that angry about, and the little darlings do try and understand, but lets face it, they are kids (6 & 8) and shouldn't have to deal with my issues.


    Hi Homie....

    When I first started taking Cytomel [April '06], my Dr. also prescribed taking .5mcg's, 2 x a day....which proved too much for me....[I think for a starting dose it was too much...I'm sure if I were to take another .5 now I'd do okay, so long as we dropped my T-4 down a bit].

    I didn't get heart racing or jittery or anything like that... [I had already been on Armour before, and I think on the dose that I was on for that had [I think], like 18 mcg's of T-3 in it]. I did get those horrible headaches from starting the Cytomel too...and I'm not a person to get headaches either, so I was pretty much certain it was the T-3 causing it. (I tend to get symptoms any time I increase or decrease a dose...like right now, I've gone down on my T4 by 12 mcg's, and I'm not feeling that great...I guess I'm just real sensitive to these dose changes, and it can get uncomfortable too].

    Anyway, it wasn't so much like regular, general type of headaches, but more like bad skull pain, in certain places on my head. Ouch..I remember it hurt so bad, that I did post on this board, [or another], to ask others if it happened to them. Also I remember having burning skin all over my body...so I did cut it down in 1/2, and only took .5 a day. I think our bodies just have to get used to it, a little gradual....especially if we've been pretty low, it's just a little bit of a shock to our systems. I was determined though to stick with it, as I knew eventually those symptoms would disappear...and I might actually feel better than I did before I started. Happily, I did feel better, and after about a 6 week period, those ugly symptoms were a thing of the past...so hang in there. Honestly, I know a few people do okay on T-3 alone,...but I wouldn't want to chance it myself. I'd feel horrible without any T4....I've had low T4 before, [when I was on Armour, although my T3 was at the top of the range], and it was unbearable...I was really sick....most of us need both...and especially need more T4 than T3.

    Good luck!
    Deda
    Oh..and btw...I was a grouch, [I really remember this] when I started this too...actually I think I was always a bear until I got my levels in a fairly decent place. I would tell myself to be nice, don't act like that...but it seemed like I just couldn't control my anger. [part of that could've just been because I felt so horrible, physically] Now I'm nice again again.

    Last edited by Deda; 09-12-2007 at 10:52 PM.

     
    Old 09-13-2007, 06:26 PM   #14
    homie78
    Junior Member
    (female)
     
    Join Date: Aug 2007
    Location: Norfolk, VA USA
    Posts: 17
    homie78 HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Thanks for the reply, I have been taking 1 Cytomel per day now since this thread started, and do feel better than before! Thank you who previously replied with that advice. Although still experiencing some headaches, not as frequently!

    Deda, I have noticed that I have been getting this tingling warm, not quite burning, sensation in my upper spine (in between shoulder blades). I can't say that it is directly related to the Cytomel as I have had pain there for several months, but have noticed the tingling warm sensation there since the Cytomel....

    Still feel like a grouch, thinking bout moving into a trash can on Sesame Street soon

    I do definitely think that I need both the T4 and the T3 after doing some reading up on. I am going on what I have until I see the Endo again next month, I have never mixed the two and am scared to do so on my own.

    Again, thanks for the reply take care

     
    Old 09-13-2007, 07:08 PM   #15
    Deda
    Senior Veteran
    (female)
     
    Join Date: Jul 2003
    Location: Northern C
    Posts: 2,327
    Deda HB User
    Re: Anyone taking/have taken Cytomel? Headaches from ect....

    Quote:
    Originally Posted by homie78 View Post
    Still feel like a grouch, thinking bout moving into a trash can on Sesame Street soon


    Homie...LOL...that's funny! I think my husband would've liked to put some duct tape on my mouth back then!

    Those headaches took me a while to go away after I cut the cytomel in 1/2...I can't remember exactly, but I would say at least a week...but they did ease up before that. If you're worried about taking the T4 without your docs supervision, but feel like you really want to get started on it, just take a smaller portion of it...just to get some in you. If you're sensitive to these meds, [like me], it's better to start slow anyway.

    I started my T4 at 50 mcg's and from there could only go up 12 mcg's at a time...that's why it took so long to get to feeling better. Even once I got to those good levels, then the healing process started, and for me that took quite a while. Some things went away right away, and some other problems/pain took longer. I think I had been hypo for quite a long time before it finally showed up on blood tests. My levels aren't perfect [for me] right now, but I feel pretty well, most of the time. [although I still have my days]

    Good luck!! You'll get there someday!
    Deda

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Please Help Anyone-in Despair- Headaches- Lowering Doses-please Respond tbren1 Thyroid Disorders 2 09-09-2008 07:16 AM
    Prescribed Synthroid/cytomel - Question On Dosage Split Liz1900 Thyroid Disorders 69 06-05-2008 05:03 PM
    Anyone better on Synthroid than Armour? librarygirl2 Thyroid Disorders 14 03-22-2007 07:38 AM
    Has Anyone Taken Cytomel Alone For Extended Periods Of Time? builder Thyroid Disorders 1 02-27-2007 08:41 PM
    Does taking Cytomel decrease your T4 levels? Meep..Midwest?? Deda Thyroid Disorders 7 06-20-2006 12:09 AM
    Has Anyone Trie Just Taking Cytomel Alone & Time Released T3 builder Thyroid Disorders 2 06-11-2006 09:18 AM
    anyone taking T3? sickandconfused Thyroid Disorders 6 08-25-2005 07:11 PM
    Cytomel dosing help needed, please - Meep, anyone Peeps Thyroid Disorders 9 10-28-2004 01:31 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 11:51 PM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!