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  • Looking for others who have experienced singular thyroid nodule

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    Old 09-13-2007, 12:35 PM   #1
    rebeccajoy
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    Looking for others who have experienced singular thyroid nodule

    Hello, I'm am new to this board. My family physician found my Thyroid goiter during a routine exam over 2 years ago. I had an ultrasound, Blood drawn, then a fineneedle biopsy done in May of '06 (by an Endocrinologist). The doctor determined my nodule was benign. My blood levels were well within normal range, too. I went for a follow-up in October of '06 and it had enlarged a little, but my blood levels were still normal. My doctor said I might want to think about surgery, but if it wasn't bothering me I could decide to just keep an eye on it. I asked about taking medication to shrink it because I did have a mild choking sensation sometimes. He gave me Synthroid samples to try, but I didn't take it more than a couple days because it gave me insomnia. I was supposed to go back for a follow-up in January of '07, but I skipped it.

    My nodule feels like it's enlarged even more over the last several months, and in the last week it feels like I am choking almost all the time. I called to schedule another ultrasound and I'm going to have bloodwork done today. I really REALLY do not want to have surgery, so I have been searching and praying and reading and hoping there is some other answer, some way to make this stupid goiter shrink down without having to cut it out.

    So, I am hoping there's someone out there who might have or had a similar case who can at least share their experiences with me. It's NOT cancer (as of last year), I do NOT have Hypo or Hyper-thyroidism, but I DO have a severly enlarged thyroid on my right side which is causing me serious discomfort, and I would like for the discomfort to go away.

    Thanks in advance for any help you can give.
    -rebecca

     
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    Old 09-13-2007, 01:16 PM   #2
    Petra1979
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    Re: Looking for others who have experienced singular thyroid nodule

    I am sorry that I don't have any words of wisdom, just wanted to let you know I am going through a similar situation, except I do have some thyroid issues associated with the goiter and I have two nodules. I haven't had my ultrasound and biopsy yet, I am trying to get them scheduled right now. I am also worried about having to have surgery, and my doctor said if they are benign she "might" try to treat it with medication. But I am in a great deal of discomfort, same as you - choking feeling, and I also have some pain when swallowing and difficulty speaking. Ugh, it's frustrating isn't it?

    Just wanted to let you know that I empathize with you and would be more than happy to share any information I get along the journey. Take care.

     
    Old 09-13-2007, 01:43 PM   #3
    NikkiNak
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    Re: Looking for others who have experienced singular thyroid nodule

    Hello-

    Your story sounds all to familiar to me.

    My hyperthyroidism started with a single "hot" nodule. This meant it was hyper functioning (nodule was producing to much hormone by itself) but in the very beginning it was just a small nodule and my labs were fine. It took a year from the time the nodule was found for my hormone levels to become affected.

    3 years later I now have a "toxic multinodular goiter". I have been taking methimazole which is an anti thyroid medication. I have a nodule on the right lobe of my thyroid (inch in size) that has become quite visable from the outside and has been bothersome.

    I have also tested possitive for the anti bodies that cause Graves Disease (this causes hyperthyroidism). RAI (radioactive iodine) will probably be suggested to you to shrink the nodules. This is a dangerous procedure unless you have cancer and should be avoided.

    I am currently looking for a surgeon. I have tried to kkep mine in check with the medication but my thyroid is growing rapidly so it will have to be removed. I have seen to many bad outcomes with the RAI so I would be more scared of it then surgery.

    Nikki
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    DX. Toxic Multinodular Goiter (now growing rapidly) & Hyperthyroid from autoimmune Graves Disease

     
    Old 09-14-2007, 07:33 AM   #4
    rebeccajoy
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    Re: Looking for others who have experienced singular thyroid nodule

    Thanks to you both for your input. It's good to hear of other's experiences. I have been trying ot read all I can about thyroid issues ever since I ofund out I had a nodule, but it's all the same thing over and over again.

    I am interested in alternative therapies to traditional medicine, like managing my depression through exercise, diet, and other lifestyle changes versus just popping pills. But I have not been able to find any info at all about holistic or alternative treatment for thyroid nodules other than Armour as an alternative to Synthroid. I am pretty frustrated about that.

    I don't want surgery for a lot of reasons, but I'm beginning to be resigned to the fact that I might have to have it.

    rebecca

     
    Old 09-14-2007, 08:17 AM   #5
    Oleander53
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    Re: Looking for others who have experienced singular thyroid nodule

    Hello,

    Mine started with one single nodule..with low normal labs........
    I was ultrasounded and over 6 months I had up to 12 nodules and a goiter.I was put on Armour for suppression it agreed well with me. I now have 4 nodules and am watched every 6 months........I no longer have a goiter now.

    It has been 16 months now and I have seen several Doctors....had many opinions.........I myself am glad I did not get a thyroidectomy and I am glad I have taken the Armour for suppression.....I do not mind being ultrasounded every 6 months........

    I think getting a scan for hot or cold nodules, having a cancer level test is a good idea.......

    Get the book thyroid for dummies.........it has alot of good information in it.

    Nodules come for different reasons.....some explained and some unexplained.

    Hope this helps you.......I remember when my first nodule was found.......I was scared to death.......could not think straight.

    Good luck Oleander

     
    Old 09-14-2007, 08:43 AM   #6
    pursie
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    Re: Looking for others who have experienced singular thyroid nodule

    hi i have discomfort sometimes when i eat food , i to have a single nodule they said it was only 3mm but hey i worry arnt they supposed to be the cancer ones when they are singular???? i would just keep an eye on it with ultra sound my dr wont send me again cos they said it was insignicant but its a case of keeping it checked and how it makes us feel love form katxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx xxxxxxxx

     
    Old 09-14-2007, 08:49 AM   #7
    rebeccajoy
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    Re: Looking for others who have experienced singular thyroid nodule

    Thanks again. I was prescribed Synthroid to try to shrink my nodule last November. It made me feel too wired and I've been scared to try it since.

     
    Old 09-24-2007, 11:44 AM   #8
    Kambre
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    Re: Looking for others who have experienced singular thyroid nodule

    I have a single nodule (tumor about 2 cm= about 1 inch) on the left thyroid and a tiny cyst on the right. I too am looking for alternative ways to treat instead of surgery or RAI. My tumor is "cold" which I understand is a bit more % risk of being Cancer...my gen. surgeon of course wants to take it out...at least 1/2 then during surgery if it test out to be cancer..they'd take out the whole thing..I'm not on medication and don't want to be. So many friends who have been through this have trouble bieng on medication and regulateing it. I am taking several vitimins I've read about and drinking Esiak Tea...one of the enzymes I'm taking is Protease...it is suppose to possibly break down the protien covering (capsule) of the tumor so as to let white blood cell get in to possible fight the cancer if that is what I have in my cold nodule...then the Esicak's Tea is suppose to help fight cancer also and help rid it (flush it) out of your body. Read Suzanne S. books...she had breast cancer but chose to fight it with some alternative ways. Let me know how your are doing?

    Kambre

     
    Old 09-24-2007, 11:49 AM   #9
    Kambre
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    Re: Looking for others who have experienced singular thyroid nodule

    My nodule is 2 cm and cold..I am looking for alternative solutions too. My biopsy (FNA) came back undiagnostic now I have to wait or take out 1/2 of it. I'm taking vitimins and enzymes and amino acids and Esiaks Tea...which are all suppose to help. I wrote post earlier ...not sure if it went through. Let me know if you found any more alternative methods and how you're doing.

    Thanks

    Kambre

     
    Old 09-24-2007, 12:59 PM   #10
    rebeccajoy
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    Re: Looking for others who have experienced singular thyroid nodule

    Thank you for your reply and suggestions. I did not see the earlier post, sorry.

    I posted a pretty lengthy entry last week after my checkup with the endocrinologist. He is going to spirate some more fuid to make me a little more comfortable, then I'll go back in January to have another sonogram. I'm trying to avoid surgery, but not having a lot of success so far. My nodule is growing and even though it's not cancer, it's causing me discomfort.

    Good luck with your thyroid issues, too. I hope it works out for you.

    Thanks again.

     
    Old 09-24-2007, 02:28 PM   #11
    louie112
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    Unhappy Re: Looking for others who have experienced singular thyroid nodule

    I have one nodule with Hurtle cells in the fnb. I just came from the ent and she says we do not need to remove it. Now I am confused. Is it not dangerous to leave a nodule in especially a single nodule with hurtle cells? Everything I have read up on this type of nodule says it must come out because it will eventually become cancerous. anyone experienced this same thing? I am seeing an endocronologist on October 24. That was the earliest I could get in. I am very worried that I will wait too long. I no thyroid issue until May and now I've gone from thyroid antibodies to having a nodule and I am afraid of what may be next. By the end of the day my neck is so sore and my throat sounds like minnie mouse. The ent wants me to get voice lessons. I am 54 been a teacher for 27 years and never had a voice problem before.

     
    Old 09-24-2007, 02:34 PM   #12
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    Re: Looking for others who have experienced singular thyroid nodule

    Quote:
    Originally Posted by louie112 View Post
    I have one nodule with Hurtle cells in the fnb. I just came from the ent and she says we do not need to remove it. Now I am confused. Is it not dangerous to leave a nodule in especially a single nodule with hurtle cells? Everything I have read up on this type of nodule says it must come out because it will eventually become cancerous. anyone experienced this same thing? I am seeing an endocronologist on October 24. That was the earliest I could get in. I am very worried that I will wait too long. I no thyroid issue until May and now I've gone from thyroid antibodies to having a nodule and I am afraid of what may be next. By the end of the day my neck is so sore and my throat sounds like minnie mouse. The ent wants me to get voice lessons. I am 54 been a teacher for 27 years and never had a voice problem before.
    louie you've got to be kidding me......find another ENT, you need to get that thing out. I can't believe a doctor would say it doesn't have to come out......you are correct, when it's just one nodule, it is more suspicious than multiple nodules, and you already know about the Hurthle cells......
    what is this doctor thinking??

     
    Old 09-24-2007, 03:53 PM   #13
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    Re: Looking for others who have experienced singular thyroid nodule

    I agree with rosequartz.

    If there is a university hospital near you, see a head neck specialist, I think you need another opinion!

     
    Old 09-24-2007, 04:27 PM   #14
    Kambre
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    Re: Looking for others who have experienced singular thyroid nodule

    I see, I'll have to go back and look at your other post about your visit. So you do already know that yours is begnin (not cancer..?) Is that the results you got back from your FNA (fine needle aspirations?) biopsy....Why would it make you more comfortable to aspirate more fluid...?? It must be a cyst and filling up ...is that why it's getting bigger and uncomfortable?? This is all so confusing isn't it? I don't want to be stupid and not take it out if mine is cancer but If I can safely avoid it some how that would be great. I'm going over to the hospital tomorrow , where I had my sonogram guided FNA biopsy to see if my nodule/tumor has grown since my orginal sono back in June....I'll keep you posted. Thanks for the reply.

    Kambre

     
    Old 09-25-2007, 12:20 PM   #15
    rebeccajoy
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    Re: Looking for others who have experienced singular thyroid nodule

    OK, here's what I wrote the day after my checkup:

    Quote:
    Originally Posted by rebeccajoy View Post
    I saw my doctor yesterday afternoon and had my sono done. I have a uninodular goiter which is better defined as a benign thyroid adenoma. It's roughly 10-15% fluid and the rest is solid. My doctor is pretty sure there's necrotic (dead) tissue there, and it is definitely growing. The measurements from the sonogram were: 3.6 cm long (top to bottom), 2.2 cm wide and 2.0 cm deep. It has grown 0.7 cm in length and 0.3 cm in depth since October of 2006. No change in width since then. They also got my bloodwork back and my TSH levels are very good - a 1.7 or something. I am not hypo or hyper-thyroid, so that's good news.

    My doctor recommended 3 options, in the order of his preference:
    1. Schedule surgery to remove the right lobe of my thyroid, where the nodule/adenoma thingy is. They would leave in my left lobe since it's completely normal.
    2. Do another Fine Needle Aspiration of the "blob" to draw out the fluid that's in there and make things more comfortable for me. However, my doctor is certain the fluid would come back and I'd be in the same position again.
    3. Take medication to suppress my thyroid function in hopes of shrinking the nodule. This is his least favored choice because results vary greatly.

    I chose to follow his recommendations in reverse order. I have a biopsy scheduled for two weeks from yesterday to draw out the fluid. I also am going to try the thyroid hormone to see if I can tolerate it and to see if it may shrink my nodule. My doctor gave me Levoxyl .25 mg and I started it today. I will go back in January to get more blood drawn and another sono to see how things are. If I or my doctor are still not satisfied with my progress, then I'll schedule a surgery.

    So far I really don't like how I feel on the thyroid hormone, but I wanted to completely rule it out as an option before I move on to considering surgery.


    I took the Lovoxyl once and didn't like the way it made me feel at all! Spacey, tired and wired at the same time, irritable.....

    Now i'm back at square one. I'm still going in for the FNA next Tuesday. If the doctor draws out more fluid that will make it slightly more comfortable, I think. I really do not want my neck cut open and part of my body removed if I don't absolutely have to have it done!

     
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