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Wondering what steps to take now

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Old 01-04-2008, 03:34 PM   #1
Join Date: Oct 2007
Location: Salt Lake City, UT, USA
Posts: 78
talbet0729 HB User
Wondering what steps to take now

Hi everybody...

I just got some test result back a couple of days ago and I am wondering where to go from here.

My TSH was .66 I don't remember my exact Free T3 and T4 numbers, but I remember when I was in the doctors office that I figured out that they were at least above 50%. I got a copy of the labs but I haven't been able to find where I put it, so I will have to go by to get another copy.

My doctor thought that maybe my dose was too high. I told him that I didn't feel overmedicated or hyper, so he agreed to let me continue on my dose which is 150mcg of Levothyroxine for two months and then retest.

I am still not feeling so great though, so I don't know where to go from here. Do I just need to give it more time? I only started treatment 3 months ago. At that point my TSH was at 147, so my body has definitely been through some major adjustments over the last few months.

Also, my ferritin was at 15 when I had it tested a couple of months ago. My hematocrit and hemoglobin were all normal. I am thinking that maybe that the low ferritin could be causing me some problems.

I am still tired and sluggish. I still don't have much of an appetite. I still have constipation issues, and I am still dizzy, although not as bad as I used to be. I have had fluid and fullness in my ears since all of this started three months ago. I read that can be thyroid related. I've also had some extremely bad heartburn in the last couple of days. I'm getting so discouraged and just don't know what to do now.

Do I just need to sit tight and wait it out on this dose and see if things get better over the next few months? I talked to my doctor and he said that he would be willing to let me try Armour, so maybe I should try that. I am sooo tired of running here and there to doctors to try and figure out what the heck in going on. I just want to give up. I am too tired to try and figure out what is wrong.

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Old 01-04-2008, 03:55 PM   #2
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Join Date: Jun 2007
Location: Akron, OH
Posts: 26
glynis_girl HB User
Re: Wondering what steps to take now

I'm sorry you feel so miserable! Your TSH sure changed in 3 months, but it will more than likely take your body some time to heal from the effects of hypothyroidism.

Old 01-04-2008, 04:36 PM   #3
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Join Date: Sep 2006
Location: Northern VA
Posts: 951
ChristineVA HB UserChristineVA HB UserChristineVA HB User
Re: Wondering what steps to take now

Hi there!!

Your TSH was very, very high. Mine got that high when I was being treated for my thyroid cancer. TSH levels at that high range do start to cause organ "issues". This is what my endo told. He also told me that since I had been so hypo, that it would take my body 6-12 months to recover from this even though I was on medication and even if my TSH numbers looked great. Being hypo for even the 6 weeks that I was, is VERY hard on your body. For instance, in just 6 weeks time, my cholesterol shot up from 150 to 263. Imagine what that does to your body if you are like that for months or years.

Being hypo effects every major organ in your body. The longer you're hypo, the worse it is.

I will also tell you that some of things may be irreversible. I don't say this to make you feel bad, just to let you know that hypo causes trouble and you're going to have to blame that for awhile versus the medication.

After I was last hypo (TSH well in the the hundreds), I started having bowel problems and GERD problems. This had never happened before. Even after I went back on the thyroid med, things changed, but never got better. I have been left with chronic reflux and I have bouts of IBS. My doctor and I believe that the severe hyponess caused a changed in the motility of my digestive tract.

Hopefully, you will be feeling lots better in a few months, but I think you really need to give it at least another 3 months.

Old 01-04-2008, 06:23 PM   #4
Join Date: Oct 2007
Location: Salt Lake City, UT, USA
Posts: 78
talbet0729 HB User
Re: Wondering what steps to take now

Thanks for the replies. I have read that some of the damage could be permanent. Some of the symptoms I can live with long term, but this dizziness and fatigue has really made it difficult to do even the simple daily tasks that I have to do. I sure hope those symptoms are not permanent.

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