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went to endo need help

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Old 04-10-2008, 11:41 AM   #1
Join Date: Jan 2008
Location: pikeville,tn,usa
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kisha973 HB User
Unhappy went to endo need help

went to endo for first time....he said since my t4 was normal i didn't need to be on synthroid even though my tsh was 8.8 anyone evr hear of that...he said he thought i had a tumor on my pit gland...without an ct scan.....i told him i am staying on he decided to run tests...i called my md she said my t4 was in normal range cause iam taking synthroid.......i am so confused.........please help me understand

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Old 04-10-2008, 01:14 PM   #2
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david45249 HB User
Re: went to endo need help

I saw two endos and they both said I don't need treatment if my TSH is below 5. It wouldn't matter if my thyroid was sitting in a jar next to me. Endos are know for being very ridgid about their medical approach. There are some good books out there that explains this. I go to a DO for my treatment. All my thyroid levels were in "normal range" and my TSH of 2.79 was also "normal". She treats me anyway and I'm doing better. I have positive antibodies, thyroid disease runs in my family and I do better on medicine. That was good enough for her but not the endos.

Consider seeing a DO or looking online for doctors in your area who prescribe Armour. That might be a good way to start. They don't have to be a specialist, just someone willing to work with you. Your Free T4 and Free T3 should be in the upper 50% of your normal range. Increase your medicine until you feel good but don't go above your normal range. Keep us informed with your blood results and ranges. People on this site with more experience than me will help.

Old 04-10-2008, 02:14 PM   #3
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kisha973 HB User
Re: went to endo need help

thank you. i needed to know that

Old 04-10-2008, 07:20 PM   #4
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funkadelica HB User
Re: went to endo need help

Your endo needs to go suck eggs. TSH that's out of range is out of range, period. And even if it's within range, you can still be quite sick.

You need to find another doctor - one who will up your synthroid (or prescribe armour) until your TSH is closer to 1. Yeah, 1. Not 8.

I hate doctors just for this reason.

Old 04-11-2008, 05:40 AM   #5
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kindspirit HB Userkindspirit HB User
Re: went to endo need help

Ditto!! My lab's were always under 5, just this past Jan. they hit 7.66, I'm 51. My thyroid is totally eaten up!!! (per ultrasound) Hashi's has had a field day with me. My "new" endo sd I've had this since my teens. So, tsh does not have to be sky high to be sick!!!!!!
Hashi's / Hypo Jan 2008
C 5-6-7 fusion
L-5 s1, discectomy, ddd, o/a, scoliosis

Old 04-11-2008, 06:31 AM   #6
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Re: went to endo need help

Wow! Dito all. You beat me to it.

Here are some facts and threads you should read. If you are a female of child bearing years.

Some added facts for your Endo that lives in a cave and doesn't follow latest care policies. The American Association of Clinical Endocrinologists!!!! Have changed the TSH normal range three times since under 10 was NORMAL! The last change was SIX years ago in 2002 when the recommended new TSH level be set to 0.3-3.0. This was based on a statistical normal range of 0.89-1.1 for a group study of over 4000 patients with no thyroid dysfunction! Optimal TSH is around 1. If something is up with your AI system or pituitary gland then you look to the FTs. Which for a woman pre meno should be in the 50-80 % range of normal. Post meno 40 - 75%.

Ditch the loser and shop for a new MD. I see an integrative care internal medicine MD for my care. Since January i have recieved treatment for my hashimoto's, identification of thyroid enlargement and nodule, met my ENT for an FNA consultation, been diagnosed with Primary adrenal insufficiency, vit D insufficiency.. my B12 and Ferritin are now normal. Working on final diagnosis of Hashimoto's encephalopathy. All has been done with out an Endo messing things up. Endos can be good.. and they can be bad. It all depends on their area of expertiese and their capacity to follow and keep up with current medical standards.

Another note.. they are considering and looking into adjusting that normal TSH range again.. making it narrower.. 0.35 - 2.5. A thyroid savvy MD would see a TSH greater than 2.5 to be borderline thyroid failure and not shrug it off. They would at least monitor levels every 3 months.

If we learn by our mistakes, I am working on one hell of an education.

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