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  • Hyperparathyroidism

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    Old 10-29-2008, 12:42 PM   #1
    gracie67
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    Hyperparathyroidism

    I have had hyperparathyroidism for 4 yrs now. My PTH level at last ck was 130. My calcium levels are usually in the high normal. Is this normal to just watch and see for this?? My next blood ck they also want to ck my magnessium levels. What would thatbe for?
    Is this normal? I know my PTH levels aren't really high, but I thought normal was up to 65. Any ideas?

    gracie

    Last edited by gracie67; 10-29-2008 at 12:42 PM.

     
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    Old 10-29-2008, 04:32 PM   #2
    mistygreen
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    Re: Hyperparathyroidism

    HI GRACIE,, First,, How do you Feel?? Four years with this>?PLEASE read PARATHYROID.COM you will learn alot about the condition.. ALERT.. there are negative consequences to your health if you have this disorder and ignore it. . ie osteoperosis, kidney stones, / heart problems,, and years of generally not feeling well,-ie fatigue, bone pain, etc. Depending on your age and health, surgery is usually the recommended treatment. If you do indeed have Hyperparathyroidism - It means there is a growth on one or more of your parathyroids.Your blood has high levels of calcium because it is not getting to your BONES.!! (think fractures, osteoperosis etc.) Please read up, and consult with an expert endocrinologist, or endocrine surgeon.. they may do other tests to confirm the diagnosis. You can even write to Dr Norman, see his email address within the text of the website. (I believe it's toward the end). He will answer you if you give specifics re labs, AND a specific question..(do I have parathyroid disease?). Here,just do a search for hyperparathyroidism, parathyroid surgery, high calcium, etc and you will find alot on this website, if you browse through some older posts. All the best. Misty PS. RE the surgery is " **minimally invasive parathyroid surgery**.. that;s what you want.. it's a day op procedure, and leaves minimal scarring,,,you just need to find an experienced surgeon to help you.. once you are sure of the diagnosis.!! Keep us posted.

    Last edited by mistygreen; 10-29-2008 at 05:11 PM. Reason: typos..

     
    Old 10-30-2008, 06:48 AM   #3
    gracie67
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    Re: Hyperparathyroidism

    I actually have all the symptoms... I am so tired all the time my bones ache, I feel like crud all the time) but my nephrologist says my levels aren't high enough to have them. I was supposed to have the surgery 4 yrs ago,but right at that time I had to have emengency oopherectomy because they thought I had ovarian cancer, and thankfully it wasn't. (my ovarias grew to 14cm and 8 xm in just 3 months). Anyways since then they have just been watchingit. My calcium in the 24 hour urine test was over 600. I am on meds and get checked every 3 months.(full kidney). I do have other health issues and maybe they are worried about those as well, but I can tell you, all I want is a scan so I can know if they are enlarged or not.

    thanks for your respose!
    gracie

    I want to find another doc, or an endocrinologist, but how do I start?

     
    Old 11-18-2008, 04:57 PM   #4
    mistygreen
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    Re: Hyperparathyroidism

    Gracie, you might find an endocrinologist by calling a reputable hospital and asking for three names. Or, consider contacting the county medical society,, or looking online for specialists... google in a search for Endocrinologist...and your nearest city.
    You may feel better if you get a SECOND OPINION. Just because you have one problem,,does not mean you cannot have another. If you don't have it, then,, you at least have explored that avenue, and can put it to rest.. Feel better.. so glad your cancer scare was negative,, (but surgery must have been traumatic.) Take care.!!

     
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