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  • Is this all down to Hashimotos ?

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    Old 11-01-2008, 03:20 AM   #1
    angela30
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    Is this all down to Hashimotos ?

    A warm hello to everyone.........Im looking for some advice...Recently been diagnosed as having Hashimotos Thyroiditis, Not feeling too good because of this...but im having other symptoms that im not sure are down to this or not ???......Had blurred vision/double vision few weeks ago,im to see Neurologist about this 18wks waiting list ! ..the last couple of days ive started to itch all over but mostly on my face under my nose !...driving me NUTS!...cant sleep for it...not that i've been sleeping to great latley....I've had this burning patch on my abdomen which feels like ive put menthol on it...it also is painfull to touch....had this on my left forearm also...ive had painfull hips/knees on/off for years that no-one can find out whats causing it....wear orthotics in my shoes that are meant to help...I get very stiff at times especially when ive been sitting down...feel like an old man getting going again!...my hips feel like they want to go into spasm all the time....( cant walk long distances). At night recently i've noticed that im waking up(if I do get to sleep!!) with my hand and arms numb...and ive not been lying on top of them...and when the feeling does come back I dont get the pins and needles that goes with it when you have been lying/sitting on them.....I should probably mention that the reason I was diagnosed with thyroid problems was that I had pins and needles in my hands....which after 8 months of being on Thyroxine hasn't gone yet!...find myself occasionally putting the wrong letter in front of a word or getting things muddled up...and having this Brain fog people talk about....had numb toes a number of years ago...GP told me to wear 2 prs of socks! Also I put in a urine sample recently because Ive been running to the toilet to pass water every 1/2 hour or so...even through the night...and I seem to get the urge all of a sudden to pee...and Ive got to go there and then...but sample came back clear.. got heartburn +++ and Hiccups+++ ...just dont feel right and I know something is wrong...could all this be because of my thyroid?...my GP just says it could be....I feel exhausted all the time......sorry to go on but Im at a loss and Id be very grateful for any advice....

     
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    Old 11-01-2008, 05:46 PM   #2
    Oleander53
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    Re: Is this all down to Hashimotos ?

    If you are peeing so often and do not have a bladder infection you need to have a 2 hour PP Blood sugar and Insulin test.......not just a fasting but a 2 hour PP......... Unless you are drinking tons of fluids.....

    I have Hashi's too.......not sure what all of your symptoms are about..but everyone is different.

    My brain fog has stopped since I have been treated for Insulin resistance plus got the right thyroid dose.

    Make sure your Doctor does a thorough check of all your systems........

    Oleander

     
    Old 11-01-2008, 07:02 PM   #3
    shelbe
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    Re: Is this all down to Hashimotos ?

    Angela~

    I just read your post and thought I would let you know about my experience.
    I also have Hashimotos, was diagnosed last year. I haven't really felt great since starting Levothyroxine last October. Even though my labs looked pretty good I felt like something wasn't quite right. I was experiencing terrible itching/burning feeling on my skin. I also was still dealing with brain fog and exhaustion. Not to mention having to go to the bathroom every half hour. I finally went to an endo. 2 months ago and she ran a bunch of adrenal tests on me. After 2 LONG months of waiting for tests results, I was diagnosed with Addisons a couple days ago. Even though I have on been on HC and Florinef for such a short time, my symptoms are already lessening. I am not saying that you have Addisons but you might have an underlying adrenal problem. I hope that you get the help you need.

     
    Old 11-03-2008, 01:56 AM   #4
    angela30
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    Re: Is this all down to Hashimotos ?

    Thankyou both for your replys...I will certainly push my GP for more tests...Hadn't thought about the adrenal gland though ...im off to surf the web

     
    Old 11-03-2008, 06:46 AM   #5
    mkgb
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    Re: Is this all down to Hashimotos ?

    Angela,

    Yes it is possible for it to be JUST Hashimoto's, BUT it is alos possible that your Hashimoto's has triggered other issues to arise in your imbalanced endocrine system. The Endocrine system is delicate and when one thing falls some experience a domino effect, ESPECIALLY if their thyroid issues remained untreated for LONG periods of time. It took me FIVE long years to get a MD to test for the thyroid AIs and then over six more months to get an MD willing to treat me because my TSH was too low. WELL if your pituitary gland isn't working well your TSH and a few other hormones are defective and non-viable measures of thyroid and endocrine function. Your story sounds just like me a few months back. Since then with the help of my Integrative medicine Internal Medicine specialist, first I discovered and treated my adrenal dysfunction. My hypoadrenalism was indicated by an imbalance of my Ft4 and Ft3 levels. Cortisol is important in regulating the conversion of T4 to T3. If you have too little you over convert your T4 to T3 leaving you hyperT in T3 and hypoT in T4. The reverse is true if you have too much cortisol. Once this was treated and my thyroid treatment was able to move forward I realized something else was off. This sent me on the great search for the next issue in line.

    I knew if it was my thyroid/Hashimoto's or adrenals then treating these optimally should cause a reversal of symptoms, well my bone aches and pains seemed to lesson, BUT I was still a blimp and growing larger (despite diet and exercise) and tired and achy (muscles).. etc. I was not as tired and able to wake up and function, but my energy levels were still in the out house. So I began to dig and figured out that my remaining symptom set overlaid a few other companion endocrine issues perfectly. With this knowledge and the bumbling discovery of some key imbalances (Which EnDum #3 ignored) I requested BULK targeting testing to determine once and for all if my hypothesis of hypoglycemia, Insulin resistance/PCOS was correct. It turns out I am still batting in the 95% range. ( I was wrong about the hypoadrenalism being AI in nature.. my adrenals just collapsed due to too long a period of untreated hypothyroidism). My blood work came back positive and now I had new issues! I was insulin resistant, reactive hypoglycemic, and had a CLASSIC blood indicated order of PCOS as well. Well this was a newer development, but needed treating all the same. Starting my glucophage (Metformin - for PCOS/IR) made my muscle aches and mysterious origin charlie horses disappear. Also I began to lose weight again. AND best of all I had energy, I felt like a kid in a candy store where I was given FREE license to gorge and eat to my hearts content. This lasted for three weeks on my starter dose of 500 XR metformin. My muscle issues and energy issues returned this weekend. This is actually text book biochem for glucophage balancing. So my SIL OB told me to increase my glucophage by another 500 and go back to my MD for more blood work and approval. Last night I did this. This morning. NO MORE aches and pains, no more constipation, and MY ENERGY IS BACK! YES! I am dancing in my chair.. well spinning periodically. You have to keep your eyes and ears open and thoroughly investigate every group of symptoms. There is always a chance that something else may be the issue and aggravating an existing condition, LIKE Hashimoto's.

    The endocrine system is a series of checks and balances. I am working up another thyroid care and concerns going into the delicate/intricate chemistry involved in the complete endocrine system. It is going to be fun to keep the geek speak minimal and still get the message across. BUT if it is your adrenals your actual FT3 and Ft4 levels will tell you or hint at it. What were your last Fts including ranges? Is your MD even checking them? PLEASE say yes !! Also look up the signs of insulin resistance, hypoglycemia, and PCOS. These three are like the three stooges. If you have one fall on you the others tend to trip and squish you too.

    Welcome to our thyroid dysfunctional family.
    MG
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    Last edited by mkgb; 11-03-2008 at 07:04 AM.

     
    Old 11-05-2008, 06:39 AM   #6
    mkgb
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    Re: Is this all down to Hashimotos ?

    Angela,

    You should invite her to join and question us. We love a challenge and like nothing more than to defend our stand and advice. The more MDs willing ot listen the better. Have you looked at my week 2 and 3 thyroid care and concern threads. They have cited medical references and in depth discussions on the pains and quirks of Hashimoto's. The references might be helpful to you and your MD in getting your care optimized.

    MG
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    Old 11-13-2008, 10:24 AM   #7
    clueless42
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    Re: Is this all down to Hashimotos ?

    Hey!

    Well, I'm gonna share my experience of the past 10 days. I was DX with hashi's in 5/05, had the left lobe removed 8/05. As many as you know, I was still having a lot og problems mostly cognative - memory, concentration. It was weird becaus it was kind of on and off. Then this past May it was getting worse. I spoke to my thyroid dr, I see an internal med, and he said my numbers looked good so it's not my thyroid, it's stress and gave me a scrpit for a week off. I didn't take it, I AM in a difficult work situation but I couldn't help but feel there was somthing else going on.
    In August my shrink said look, you've been working on this thyroid thing for a while and your symptoms aren't getting better so he gave me a script for conterta, it's to treat ADD. This helped, the memory and concentration are better but I was still fatigued! In September my neck and shoulder pain, which I always seem to have, became worse. I was seeing my chyro every week for adjustments but they really no longer were helping. I also had shooting pain up my neck and into the back of my head when I sneezed, coughed, laughed or even had a bowel movement! I've had this on and off for about 10 yrs but now it was consistant. I went kyacking a few weeks ago and the pain in my arms and shoulders were so bad I had to go back. I started having knee problems also and my left foot gets so painful, even strolling around for more then an half hour is painful. There are more symptoms but that's enough for now.
    SO, the chyro ordered an MRI of the cervical spine. They found a large syrinx, AKA cyst, in my spinal cord. It's about 4.3 x 08. x 1.2 cm, under the C2, C3 and C4 verabrae. HE was shocked, not what he expected to find.
    SO, he ordered an MRI with contrast. Syrinx can be caused by a congenital problem, mass or trauma. The 2nd MRI showed a Chiari (kee-R-ee) malformation. Definition - "a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms." The Chiari causes the syrinx. So I was born with it, currently fingering my mom . It's called Chiari Malformation type 1, or CM1. Most people do not know they have it unless they are symptomatic, which usually happens some time in adulthood.
    Saw 2 neurosurgeons, surgery is the fix. They remove approximately a 3.5 cm piece of bone at the base of the skull to allow room for the brain and the syrinx will go away on its own.
    Both the surgeons were like what? CM1? *yawn* NOT brain surgery. No need to touch the brain or spinal cord. One surgeon referred to it as being like carpentry. Great, so basically your putting a bay window in my head.
    Any way, had to have a few more MRIs taken to make sure nothing else is going on and then should be scheduling surgery. The 2nd NSR said about 90% of the people with decompression surgery are symptom free. I'm sure it's all not as easy as it sounds!

    ************ YOU JUST NEVER KNOW!!!! ************
    Don't give up!! Tackle one thing at a time.
    Don't forget that there are people who are here for you!
    AND remeber to BREATH!!!

    Peggy

    Last edited by clueless42; 11-13-2008 at 10:31 AM.

     
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