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  • Mystery Diagnosis-Not such a Mystery!

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    Old 11-10-2008, 11:23 AM   #1
    osteoblast
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    Mystery Diagnosis-Not such a Mystery!

    I saw a segment of the show Mystery Diagnosis yesterday on the Learning Channel. Very interesting!Within the first 2-3 min. I had the diagnosis in mind but as it went on and on I thought my first thought must be wrong-too simple. I thought they were building to something totally mysterious -not so.
    Young mother has 2 miscarriages,
    notices her once lustrous hair becoming dull and dry,
    facial skin becoming dry in patches,and
    she feels totally exhausted and can barely move.
    Also she has joint pain esp. in the knees.
    Over a 3 year period she and her husband spend 10s of thousands of dollars seeing specialist after specialist including an endocrinologist.Her primary doc says it must be depression after her pregnancy.Gives her an anti depressant. And finally when she just keeps coming back and saying anti -depressant didn't work the doc then says Fibromyalgia-get used to it , there is no cure. She goes to a Fibro spec. does some extensive blood work and finds nothing. He then puts her on some 50 pills a day incl. supplements and scripted pills. She doesn't get better, but does get pregnant and maintains the pregnancy to term. Shortly after delivering , again she feels wretched.Docs can't find anything , she thinks they are thinking it is all in her head.
    When she is feeling that her life is almost not worth living -they go to another endo who looks over all medical records. The endo says what about this tsh it is on the low side. Feels the woman's thyroid and it is swollen.The endo says I think this has all been your thyroid and does further tests(they don't say what but it is probably thryoid panel and thyroid antibodies.) Test results come back and new endo announces:
    Hashimoto's Thyroiditis.
    Unbelievable-it should have been called medical screw ups. The woman says that she recalled saying to her primary doc something about the low tsh but he thought nothing of it. Apparently she was pregnant at that time and he said well pregnancy can cause such fluctuations.
    Pretty sad that thousands of dollars were lost on this medical mystery!Her general doc and first endo seemed to have really failed her. In looking at this instead of going to alot of these specialists-rheum, and others I can't remember--maybe if she would have done some doctor hopping looking for a better primary they would have gotten the diagnosis earlier and saved some money.
    Of course, as a person diagnosed with Hashi's it all seemed clear as day to me. Yet I know many here have had such trouble getting a diagnosis, so I thought I would put this info.
    MG- you in particular would have found this show fascinating I think. The prior segment which I only saw a part of was about a young woman with APS1-I know you have indicated interest in that.

    Last edited by osteoblast; 11-10-2008 at 01:55 PM.

     
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    Old 11-10-2008, 01:22 PM   #2
    mkgb
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    Re: Mystery Diagnosis-Not such a Mystery!

    I would love to see the medical mystery show that discusses optimal care of the endocrine system and lists MDs that do it. You are right we can see now that our blinders have been lifted. Most MDs do not look at everything. The prefer to compartmentalize.

    OH! DRY SKIN.. you need lotion and a dermatologist. Maybe you should drink more water.

    Your depressed too! Well I have a new anti-depressant that will work great for you.

    Your joints hurt? You were a high school/college athlete. That is just wear and tear. Ice it and we can get you to a PT, you probably have arthritis.

    You are gaining weight? Well with your hurting joints you must not be able to exercise enough.. diet more and walk or swim!

    Your tired? Not sleeping well? Here is a sleep aide.. and get more rest. It must be hard with the kids. It will get better as they get older. You need to watch what you eat. Take a multivitamin.

    We have all heard it before, but rarely do the MDs actual test beyond the obvious. We have to a sk and then we have to demand. Sometimes we have to move on. All in all it is rediculus and things would be cheaper if the MD took a closer look, weighed all options versus making us chase our tails and see 10 specialist. BUT then again it can not be the thyroid.. ESPECIALLY if your TSH is normal and you haven't went through menopause. Too many myths are propagated and too many lies cause dysfunction.

    MG
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    Old 11-10-2008, 01:47 PM   #3
    kindspirit
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    Re: Mystery Diagnosis-Not such a Mystery!

    Yes, I saw that too!!!! There have been some very fascinating segmants on that show "mystery diagnosis", and to see Hashi's was unreal! I hope doctor's catch that show! kudo's to TLC for the great work they are doing!!
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    Old 11-10-2008, 08:46 PM   #4
    famnd
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    Re: Mystery Diagnosis-Not such a Mystery!

    It's a re-run as I saw it last year. I love the show but I doubt many MD's would watch it after a long day seeing pts. Fam

     
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