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  • Iodine...bad for Graves but good for Hashi's??

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    Old 11-24-2008, 05:52 AM   #16
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    Re: Iodine...bad for Graves but good for Hashi's??

    Originally Posted by midwest1 View Post
    A gland that's damaged or dead because of Hashi's can't make use of the iodine, so it becomes surplus. Most people with Hashi's who try supplementing iodine in the hope of resurrecting the gland end up feeling even worse. I don't know the scientific reasoning, but I suspect the extra iodine just circulates around without being used, ending up toxic in a way. I wouldn't try to eliminate all iodine from the diet, because it fulfills a few other needs in the body; but I would not go out of my way to supplement it, either.
    I don't beleive it is surplus:
    Iodine is detected in every organ and tissue in the body. It is found in high levels in the thyroid, breast, stomach, saliva, ovaries, liver, lung, heart, and adrenals. It is essential in pregnancy.
    I no longer have a thyroid, and have been using lugols solution since mid July,
    I have never felt better, I started out with a goiter,1990,was put on syncrap,was on that for years, was dx fibrocystic breast deiease,then went on to develop ovarian cyst,that was causing pelvic pain for a yr before they actually did the utrasound. So that takes me to now on iodine, I have more energy,no longer suffer pelvic pain,no acid reflux,and no heart palps. So in my case it is definately a positive thing .

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    Old 11-24-2008, 06:18 AM   #17
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    Re: Iodine...bad for Graves but good for Hashi's??

    You can have too much iodine, but even without a thyroid the main processor of iodine you do need some. It is especially important during the second and third pregnancy trimesters, when the fetus is making its own T4 and dependent on iodine reserves in the mother for synthesis. Iodine toxicity is a fact you all can research and read up on. When you have toxic iodine levels the main issue that results is an impairment of the creation of thyroid hormone, resulting in fluctuating levels of thyroid hormone in the bloodstream. In most cases the thyroid gland enlarges in an attempt to process and remove the excess I from your system, as a consequence, and goiter is produced. This enlargement is often a sign of hyperthyroidism when excess iodine is to blame. (Goiters can be caused by iodine deficiency or surplus. We have to test to determine which is the source.) Iodine toxicity produces ulcers on the skin called "kelp acne". This may be the source of many rashes and sores that hypothyroid/hashimoto's patients get if they are supplementing iodine. Rashes, acne, and sores about my body during my earlier Hashimoto's phase WERE very common and distressing. This symptom was determined and named in association with eating kelp. It was found that certain asian cultures that used kelp as a main part of their diet while getting other iodine supplementation developed this iodine toxicity acne. The main country this was seen in was Japan, where large amounts of seaweed are consumed. Hashimoto who found Hashimoto's thyroiditis.. is also Japanese. Now going a bit hyperthyroid and getting acne are the EARLY signs of too much iodine in your diet. A full blown iodine overdose.. which one will build too if you are chronically over doing your iodine supplementation has some scary symptoms: Abdominal pain, Coughing, Delirium, Diarrhea(hyperthyroid), Fever(hyperthyroid), Metallic taste in mouth, Mouth and throat pain(goiter and lymph node enlargement in most cases), No urine output, Seizures, Septic Shock, Shortness of breath, Thirst, Vomiting, Hyperthyroidism. Thus in my opinion it is not bad to supplement iodine, BUT you should really test your levels periodically if you do..especially is you are getting unexplained rashes and acne flares.

    I wouldn't say vit D is most important, BUT it has been proven that your level or lack of vit D impacts your immune system. Those with low vit D and B12 are more susceptable to immune dysfunction. When I come across medical studies such as this it makes me wonder why MDs do not do a better job in preventitive care.

    If an MD was thorough in ones yearly physical (AND we were willing to go in for a yearlies..) we might be able to practively hold off or correct minor issues that could be the source of major ones. I think that it should be worth it to have metabolic chemistry profile with vit D and B12 added every 6 mo. to a year starting when a child is YOUNG! I personally would want to know if my child needed supplements at the age of 6 verses 30! How many have children that actually willingly eat a balanced diet? Mine is pretty good about it.. as long as it doesn't deal with meat or bread. He hates the textures. Veggies and Fruits he loves.. but he is not found of beans. I have to slip in protien powder supplement on him so I know he gets enough for muscle building, repair, and growth. Even with closely monitoring his diet, giving him vitamins, he has an immune issue. I found it by forcing my MDs to test him thoroughly last year. He is low in 2 of 4 Immunoglobulin subclasses. IgA and IgG. There are studies proving that this is common in those predisposed to develop autoimmune dysfunction. Being low in IgG and IgA also means one is predisposed to getting and retaining sinus infections and respiratory ills. However it took MANY hours of dedicated research and reading through journal article after article to dig up this information. Most MDs are seeing so many patients they do not have the time to keep up with it all. HOWEVER, tey do make the big bucks. How hard would it be to have a researcher on staff just part time to keep up with the latest care trends and recommendations? I do think that MDs can do more. If they are not willing to listen to the patient and work with said patient, then they need to do or requisition their OWN research. Too much is just passed off or shruged off because it is not life threatening.

    Now you have to admit, being low in vit D and other nutrients isn't going to kill us; but, it does weaken us and stress or immune systems. It does seem to take someone willing to go to all the separate specialists and connect the dots for the MD concerned with thyroid care to get adequate care in my opinion. That is what I had to do. Many MDs will dismiss it if you are "NORMAL" in range, but if you can get enough MDs to state that symptom X is autonomic/autoimmune/thyroid in origin then eventually you will have an MD treat your issues. To get testing before finding my rare gem of an MD that I work with now.. I used to have to order/threaten/beg/move on from the MD in question. One of the best tactics was reason. Asking:
    1) Will running tests X,Y, Z hurt me? No?
    2) If the tests won't hurt me and may help explain what is wrong, why not run the test?
    3) You do not want to run the test just because? Well... What are you going to do to find out why?
    4) Since my insurance will pay for said tests, the tests are not invasive or harmful, and you can not give me a solid reason WHY NOT to test.. please run the tests for my peace of mind and the knowledge it may provide?
    5) We are not the MDs but we do know our bodies and if something is wrong. It is our obligation to doggedly follow and pester and badger or MDs until they do listen. Now I wish that we did not have to take on the role of border collie/sheltie nipping at the heels of sheep in lab coats. *Pauses to grin at the mental imagery of MD sheep being herded through the pasture of life* But the better educated we are and more determined we are the more willing the MD is to work with us.. OR kick us to the curb. My first Endo gave me the boot, she didn't want to be challenged. She new best.. yeah, the best way to drive me into adrenal failure... BUT that is a whole different gripe.

    Reasoning for checking your metabolic chemistry including the special ferritin, D, Mg, and B12? 1) It never hurts to treat all the other imbalances that may be causing hypothyroid symptoms first though.
    2) The test won't hurt you and can only help you if you are low in something essential.
    3) Hypothyroid patients are reknown for malabsorption issues and prone to low D, B12, Mg, Ferritin.
    4) It gives the patient peace of mind and the MD more information on which to treat said patient.
    5) There is no good reason not to run the test once, ESPECIALLY if ones insurance will pay for it in the pursuit of determining the source of fatigue.

    In the US testing of low B12, D, Ferritin tend to be covered when the MD writes down the diagnostic code for fatigue. Nice to know huh. I am betting if you talk to a patient advocate of your health care you might find out the same thing. What reason does my MD need to test for X? I am certain they are obligated to answer your quieries. I am an advocate of knowing ALL, TESTING ALL, and getting to the SOURCE of ALL symptoms. Treating the symptom and not the disease is not an effictive way to SOLVE a patients problem.. it is just using a wade of bubble gum to plug a leaky pipe. It may hold for a while.. BUT we know what will happen eventually.

    I have taken to requesting a phone chat with the Endo's nurse before coming into an appointment. If the nurse can not answer my questions or get the right answer to key recommended thyroid ranges and says we just go by the LABORATORY ranges... well I cancel my appointment faster than Superman could fly. Unfortunately, you may have a Nurse/MD that knows the right information but is still unwilling to move on it. Conservative thyroid care seems to be the normal, because MDs seem to be afraid to push the patient hyperthyroid.. however briefly. As a rule: You can not give up hope for a solution/treatment AND you can not trust the MD to keep up with the latest trends in your best interest. In th words of my last dumped Endo, "Hypothyroidism is not lethal to you, it is just tiring. Some people live better tired. Rest more and worry less. Hyperthyroidism is what must be avoided at all cost. Go back to your MD, continue treatment that way, come back in 6 months and we will see how you are progressing." WELL.. he isn't getting anymore of my money. I hope you all get your answers sooner rather than later with minimal gater.. uh croc wrestling in between.

    If we learn by our mistakes, I am working on one hell of an education.

    Last edited by mkgb; 11-24-2008 at 06:35 AM. Reason: Added iodine blurb.

    Old 11-24-2008, 02:37 PM   #18
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    Re: Iodine...bad for Graves but good for Hashi's??

    Very interesting..... I am wondering what med and doseage you now take for " no thyroid" and how did the doseage change when you started the iodine??? Were you ever tested for iodine deficiency?? And how much iodine do you take now??
    Thanks and congrats on feeling good!!!! You are an inspiration to the rest of us!!!

    Old 11-25-2008, 01:39 PM   #19
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    Re: Iodine...bad for Graves but good for Hashi's??

    MG - Think i'll have to take a leaf out of your book and compile a list as i've finally convinced my father to have some tests done. I wrote a nice letter to his doctor and his doctor kindly ordered all the tests i asked for. Only thing is he didn't tell my dad when cortisol should be checked and i also forgot to warn my dad to get it done in the morning. Obviously he did it in the afternoon. Oh well guess it might tell us something and he can always have another early morning test. He wakes extremely tired, sits on the edge of the bed and simply can't get up and then lays down again. He also has the hurting eyes and brain fog. Then my mum nags saying "he sits in that chair and refuses to speak to me". I've tried to explain to her that if he feels anything like i used to feel that i'd be locking myself up in a room and refusing to see or speak to anybody. She just doesn't understand. She thinks it's like a headache, you take a pill and it goes away. Ahhhh the frustration!!

    His gp wont be able to treat him and this will leave me to ferret out a good Endo. His gp might even say the tests are all within range and fine. So i'll be going in with him tomorrow to help the doctor along if he gets into unchartered waters , hehehe. then after that it's finding a decent Endo who understands thryroid issues, doesn't simply treat T4 only regardless of what your T3 is doing and doesn't brush my dad off if he's what the lab considers to be "within range".

    This will be a big job as it's taken decades for my dad to finally come clean on his symptoms with me. I'd say he only did due to me being diagnosed this year. It runs on dad's side of the family, not that anybody ever bothered to discuss these issues. Anyway, we are in for some interesting times as i'll have to keep my dad on course and focused as he gets disillusioned with doctors very easily.

    Wish me luck

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