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I want to STOP taking levothyroxine!!!

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Old 07-23-2009, 09:17 PM   #1
Join Date: Jul 2009
Location: mount vernon, ny, us
Posts: 2
mboogie HB User
Unhappy I want to STOP taking levothyroxine!!!

I am 29 years old. About 5 years ago, doctors found a larger than average growth in my neck from an MRI. I was referred to an endocrinologist, had my thyroid biopsied twice and was placed on levothyroxine. Supposedly my thyroid is functioning normally, maybe it always had been functioning normally? My endocrinologist and I have a bit of a language barrier. So the main reason for me being on medication is to treat the size of my thyroid. I guess to shrink it and prevent it from growing into a goiter? My grandmother has a goiter and my mother also has a larger than normal thyroid.

So can I stop taking the levothyroxine now? I don't want to be on medication for the rest of my life! I am also experiencing hair loss and breakage. And if I forget to take meds or take at a different time I experience menstrual irregularities.

I know one thing I should probably do is get a second opinion from a doctor I can completely understand!

My other issue is that doctors, or shall I say some doctors seem to want to keep you on medication!

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Old 07-24-2009, 06:14 AM   #2
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Join Date: May 2008
Location: AZ
Posts: 2,251
javelina HB Userjavelina HB Userjavelina HB User
Re: I want to STOP taking levothyroxine!!!

If you've got a growth or enlarged thyroid then it's likely a goiter or you have nodules. So you've got abnormalities with your thyroid, which appear to be hereditary. Did you ever get tested for autoimmune thyroid disease (Hashimoto's?). If not you need to request the antibody tests: TPO-Ab and TG-Ab. Knowing if you have this will help you to understand your status.

Given your symptoms it appears that you are hypothyroid and it sounds like you are not getting adequate treatment. Treated properly you should not have any symptoms. Many doctors treat based on your TSH test and not on the tests that matter (free T3 and free T4, both of which need to be near or at the top of the range). * Disallowed website and related information removed by hb-mod, moderator *

I know that at your age the prospect of a chronic disease that will be with you the rest of your life is overwhelming and very, very hard to accept. People with diabetes have the same problems dealing with this issue and have difficulties complying with their medication protocol, often to very bad effects on their health. The good news about thyroid disease is that it is easily treated with oral medication and you can make some choices about what kinds of meds to us (natural vs synthetic). But to not treat is only going to make you miserable and lead to some very serious health issues down the road. It will actually disable you. Perhaps a cure will appear at some point (and you are young enough for this to be very realistic).

I found the best way to take control of my illness was to learn as much as possible about it so that I owned it and it didn't own me. So spend some time reading everything you can get your hands on (and with the internet we've got a wealth of info out there). Thyroid is a controversial subject and you will hear different points of view from different doctors, practitioners, and patient advocates. If you want any suggestions of places to start feel free to PM me.

Remember, you are not alone with this. Many people your age are struggling as you are and you can find them on the various forums and not feel so alone.

Glad you made it here and keep asking questions!

Last edited by hb-mod; 08-23-2009 at 02:36 PM. Reason: Please don't post disallowed websites and products as per Posting Policy. Thanks.

Old 07-25-2009, 10:25 AM   #3
Join Date: Jul 2009
Location: mount vernon, ny, us
Posts: 2
mboogie HB User
Re: I want to STOP taking levothyroxine!!!

Thank you so much for your response. I will definitely try to arm myself with as much information as possible and to get in touch with other doctors and the proper tests.

Thanks again!

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