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Memory Loss

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Old 08-28-2009, 11:23 AM   #1
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loralei HB User
Memory Loss

So I've been post-thyroidectomy for about 6 months now, and doing really well for the most part. My Endo has been gradually increasing my Levoxyl dosage to get my TSH to a suppressed level (because I had papillary cancer).

Since my dose has been increasing, I have had one really scary symptom emerge.. memory loss. TWICE while driving- I've forgotten which was the gas/break and hit the wrong pedal with my foot. Thank God no one was around, but this absolutely terrifies me.

Should I see a neurologist or something? I am so scared, I need to be able to drive to work and stuff.

I do know that I haven't been sleeping well lately, it's very broken sleep in which I grind my teeth. Also I can feel my anxiety has increased, my muscles are always very tense ( I imagine I am getting closer to hyperthyroid with my suppressed TSH).

This is a brand new symptom, I was fine when for the first few months after my thyroidectomy and now it's hit me. Anyone else experience this?

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Old 08-28-2009, 02:46 PM   #2
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Re: Memory Loss

My daughter had her left lobe removed in 05 and dxd with hashimoto's. She complains of brain fogginess - some forgetfulness. And def has problems with sleeping. But not to your extreme.
Hope you are calling the doctor. The driving may have to be done by someone else until you feel better.

Old 08-28-2009, 03:54 PM   #3
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Re: Memory Loss

I would ask your doc for some labs besides TSH to see what your actual levels of thyroid hormones are. Your symptoms are very thyroid-like, either hypo or hyper and the only way to determine where you are at is to get a free T3 and free T4 drawn. You might need some T3 added to your meds or you might just be over medicated. Without these levels it's impossible to tell. But I'd check this out before going to any other specialists.

Old 08-28-2009, 05:02 PM   #4
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Re: Memory Loss

I had that extreme muscle tension when I was hyper from overmedication. The anxiety fits the pattern, too.

I think you need to get your free T4 and free T3 levels done (if you haven't recently), and perhaps will need to strike a balance between TSH being sufficiently suppressed and free Ts at better levels to avoid hyper symptoms.

Old 08-28-2009, 08:45 PM   #5
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Re: Memory Loss

My new endo had told me the memory loss or "brain fog" comes from the antibodies. (TPO'S)

Old 08-29-2009, 02:31 PM   #6
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Re: Memory Loss

So does that mean it never goes away as long as you have antibodies? I'm literally forgetting things 2 seconds after I think of them. Nothing is sticking in my short term memory lately.

Old 08-29-2009, 02:40 PM   #7
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Re: Memory Loss

I know GG's endo has a lot more schooling than me, but I have to disagree. I got relief from my brain fog within 2 weeks of starting treatment, and I know my antibodies didn't disappear that fast. I'd bet the farm the brain fog has to do with low FTs. Antibodies don't cause symptoms in an of themselves, not unless they're astronomically high.

Old 08-29-2009, 03:02 PM   #8
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Re: Memory Loss

dont mean to be contradictory but I dont think brain fog is as simple as antibodies or low FTS, that is I dont think there is a single cause for it but
any dysfunction of the thyroid will do it
Im considered to be subclinical hyper with optimal FTS, low TSH no antibodies
and yet my brain fog scares me sometimes

Old 08-30-2009, 06:06 AM   #9
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Re: Memory Loss

I am 59. Frankly my brain fog seemed worse until I started the meds. But I am not back to 100% yet.

Before I knew about the tumor I could tell I was forgetting things but they were relatively unimportant. I was always stressed too, thinking about so many things at once.

Like walking into the kitchen and forgetting what I went in there for.
It seems I was never focused on only one thing. I still get that way.

Trying to do too many things at once. I swear I feel ADD.

It is like a 3 ring circus inside my brain. I have been dealing with sinus problems, female hormone issues, and now the Thyroid for the last 3 years. Combine that with children, husband, grandchildren, my sisters, my 81 yr old mother, etc. and you will get a little distracted and foggy. Plus tempermental.

But, my gosh, even my 35 year old daughter will say--now what was i going to tell you?

Our days move too fast---as soon you have one thought another crowds it out!

Maybe we are all a little ADD.

Only you can tell whether the brain fog is worse --- is it simply trying to think of and DO too much at one time, leading to doing nothing really well.

This is a problem I hope starts to go away the longer I am on the meds.

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