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Symptoms after complete Thyroidectomy

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Old 02-02-2010, 03:30 PM   #1
Join Date: Feb 2010
Location: Fort Worth, TX
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jredhd477 HB User
Symptoms after complete Thyroidectomy

Hi. It's been two years and 2 months since I had my thyroid removed. My thyroid was functioning properly, but had a 3cm goiter on one side and lots of growths on the other, so they opted to remove. I have been on Synthroid ever since with the exception of 5 weeks where I was taking generic Levothyroxin. During that 5 week period, I gained 22 lbs!!! Doctor put me back on name brand Synthroid, and the weight gain stopped, but I have not lost any of it.

Most recent test:

T3 Uptake (a useless test) 23.72
Free Thyroxine Index 3.0
T4 12.6
TSH 3rd Generation 1.983


wide swings in fatigue levels sometimes as early as 1pm
digestion severely affected - 2-3 days to pass, bloating, constipation
dry skin
hands and feet cold
hair loss (30% at least 6 months after thyroidectomy) still more than average
inability to lose weight (300-600 calories less than BMI requires for maintaining current weight)
acne/cysts/boils (never had it this bad even in puberty)
fluid retention (3-8 lbs)

I feel like I'm missing some critical tests, particularly since I think I should have a full hormone workup since all hormones work in sync, and I am missing T1, T2, T3, and T4?


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Old 02-02-2010, 05:42 PM   #2
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Re: Symptoms after complete Thyroidectomy

Because your TSH is almost 2, I can tell you're being undertreated. It's much more common than you'd ever believe. But it isn't surprising that an MD who would use such outdated, useless tests would not be prescribing you as much hormone as you need.

You must insist on tests for blood levels of free T4 and free T3. The free T4 index you had is worthless. (There are no tests currently for T1 or T2 levels. That doesn't mean these hormones aren't important; they're just produced in amounts too small to measure. If you could get your MD to switch you to natural dessicated thyroid hormone from Synthroid, you would get the T1 and T2, along with T4/T3, that your Synthroid does not provide. I'm pretty sure he would never allow you to do that though - See paragraph 1. )

You may have to find another MD to get the right kind of thyroid replacement that will restore your health.

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