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mcke16 06-10-2010 07:36 PM

High TSH after thyroidectomy -- help!
I had my thyroid removed in March 2010 due to Hashimoto's and 2 large growths (7 and 5cm) that were pushing my trachea to the size and causing difficulty swallowing. Following surgery my calcium was a little low so I spent an extra day in the hospital. I knew I wouldn't feel great right away, and I am trying to be patient. BUT... my endo has left her practice and I am relying on the ENT who did my surgery to get my levels right until I can get in with another endo (NOVEMBER!?!?!).
6 weeks after surgery my TSH was 35. At that point the ENT raised my synthroid to .125. I went back this week and it's only down to 26 so he raised my meds to .150. Apparently I will go back every 6 weeks and he will adjust the meds slightly.
So, my questions are: Is it normal to adjust synthroid so slowly? Is there hope that some time I will feel 'normal' again? I have been having massive anxiety attacks and panic attacks, I read that it could be because of the TSH levels... any help?
Also does anyone know what the 'right' calcium level is? I was told mine was low at 8.2
Many thanks!

Reece 06-10-2010 07:44 PM

Re: High TSH after thyroidectomy -- help!
It's really hard to know what you're right dosage is, so your doctor is trying to raise it slowly, it's not safe to raise it too quickly. 6 weeks is a normal time period to test blood and give an increase. But since you had a thyroid removed, your doctor could have dosed you much higher, and you wouldn't have had to go hypo at all.

That being said, you are a male, if you are of decent size, and you are replacing an entire thyroid, your ultimate levels could be in the mid to upper 200 or lower 300's. I think your ENT is managing this very poorly, should have started you higher, and you should try to get on a waiting list of an endo, or even a regular doctor can treat thyroid, for full thyroid replacement.

At this pace, you will definitely get there, but it's going to take a while.

mcke16 06-12-2010 08:39 PM

Re: High TSH after thyroidectomy -- help!
Thanks for your reply, I didn't realize they had to adjust the hormone slowly. Although, I'm a 41 y.o. female, not male :)
Glad to know there's hope though, this has been so frustrating.

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