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    Old 09-06-2010, 01:19 PM   #1
    bartonse
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    Question Levothyroxine, tiredness and vivid dreams

    Hi all,

    I have recently been diagnosed with Hypothyroidism and am already struggling with my medication.

    My blood results showed TSH of 23 when I was diagnosed and I've been taking 25micrograms of Levothyroxine since. My 2nd blood test showed my TSH was down to 2.4 so my GP said that I was on the correct dosage and there was no need to change.

    However, I'm more tired now than I ever was before! I've always had surreal and vivid dreams which I always remember but recently they've been getting worse. I wake up feeling as if I've had no sleep. My mind's spent all night in overdrive! Am also struggling to concentrate on anything and my brain feels like mush which is annoying as I was always on-the-ball and 'with it'.

    Are these common problems or is it just me!?

    Also, other people I know see specialists but I've not been referred. . . should I have been?

    Sorry for all the questions but I feel a bit lost.

     
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    Old 09-06-2010, 03:08 PM   #2
    Reece
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    Re: Levothyroxine, tiredness and vivid dreams

    It's normal to feel a bit worse after starting medication, when you are giving your body only a little of what it has been needing for a while.

    25 mcg is not really even a starting dose, it's not really a dose at all. The GP is judging you by your tsh, which of course goes down when you take medication, but is no longer an indicator of how you should be determining if you have enough medication.

    Unfortunately, you need to find a better doctor, this one is not going to work with you to find your "sweet spot dose." You need to be looking at other blood work, your free t4, and your free t3 levels, to find where you feel right. A "specialist" would be an endocronologist, sometimes they are good, some are not. Sometimes a GP can do great as well.

     
    Old 09-07-2010, 03:00 PM   #3
    Lisa scouse
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    Re: Levothyroxine, tiredness and vivid dreams

    Hiya

    sounds very similar yes ! my story is pretty much the same , felt worse and to be honest 8 months on after 3 changes now to my dose im still feeling pretty much the same . Patience ..... thats what everyone tells me, it takes time to get it right and then time for your body to adjust, im hoping thats true !
    I would speak to your doc again tho, my first one was useless just kept saying your levels are normal even tho i felt like crap. I asked to be referred to the endo clinic, which again was pretty useless i found , same again only interested in yur ' normal' levels not actually how i felt !!#
    Have changed docs again and am hopeful this new one will be an improvement, he says he will medicate on how i feel not my tsh , maybe its because he is european and not a british idiot !!
    My advice tell your doc if you dont see any improvement , it may take a while to find the correct dose for you and your body

     
    Old 09-07-2010, 04:11 PM   #4
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    Re: Levothyroxine, tiredness and vivid dreams

    Thanks for the advice. I started 100mcg of synthroid 1 1/2wk ago and felt great right after, now starting ot feel real tired again and i cant seem to get my brain to shut off at night. I wake up all the time. I guess i have to be patient to. My endo suggected taking melantonin to help with the insomnia. Well see.

     
    Old 09-07-2010, 04:16 PM   #5
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    Re: Levothyroxine, tiredness and vivid dreams

    I've been on a natural desiccated thyroid for 3 months. Like you I find sometimes I feel worse NOW than I did before I started treatment- but then I wonder is it because I have so many better days now? Like yesterday I felt great, lots of energy. Today I feel like it's all I can do to keep my eyes open. I have nights where I am SO cold and trying to fall asleep is impossible until I get all bundled up...and other nights where all I do is sweat...and the room temperature is the same. I just got my 2nd set of follow up bloodwork done this morning and should have the results next Monday. I'm hoping we've got my thyroid dialed in but just need to give it time.

    As to the dreams- I had very vivid dreams too but I thought it was due to a supplement my doc gave me (Glysine) because when I don't take that I don't have the super vivid dreams.

     
    Old 09-08-2010, 12:18 PM   #6
    bartonse
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    Re: Levothyroxine, tiredness and vivid dreams

    Thanks to everyone for the advice!

    I have huge amounts of patience but not where my well-being is concerned, I hate feeling so sluggish and just hope that it won't take too long to sort out.

    Have managed to get a docs appointment for tomorrow so will be putting my point across and see what happens. Fingers crossed that the doc is understanding and knows how to deal with these things.

    In the meantime, I'll continue to enjoy my weird and wonderful dreams!!

    I know what you mean about hot and cold though. I'm generally quite cold but some nights I'm soaked in sweat. I'm glad I have an understanding boyfriend!!

    I'll let you know tomorrow how I get on at the docs.

    I'm so thankful that there are people out there who have experience with thyroid problems. Your knowledge is priceless!

    x

     
    Old 09-15-2010, 01:38 PM   #7
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    Re: Levothyroxine, tiredness and vivid dreams

    I went back to the docs today as I'm not entirely convinced that they tested me properly. Another blood test done so just need to wait a week for the results. Asked about being referred to a specialist but the answer was no.. . . they will only do that if they feel that they can't control my levels. Again, I'm not convinced. Maybe I should go private rather than NHS?

    If the results come back with 'normal' levels then I don't know what to do. Am still more tired than ever and have no energy at all. Ahhhhhh!

     
    Old 09-15-2010, 02:10 PM   #8
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    Re: Levothyroxine, tiredness and vivid dreams

    How long have you been on treatment? I've been on thyroid hormone for 3 months and I'm still tired and dealing with poor immunity, even though my TSH levels are close to normal now. My doc says I just have to give my body some time to get used to having hormone that it didn't have before and that it takes some time to adjust.

     
    Old 09-17-2010, 07:39 AM   #9
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    Re: Levothyroxine, tiredness and vivid dreams

    3 months for me too.

    I meant to ask about alternatives to Levothyroxine as maybe a change of medication would be a possibility if there's no improvement to my energy levels?

     
    Old 09-17-2010, 08:24 AM   #10
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    Re: Levothyroxine, tiredness and vivid dreams

    The Royal College of Physicians in the UK has taken away your levoT alternative - natural desiccated thyroid. They have wrongly decreed that it is never of any benefit to anyone and have banned its members from prescribing it. You may be able to find a private doctor to prescribe it, but the NHS almost surely will not.

    Desiccated thyroid may work better for you than levoT. But you may not need to go to the bother and expense of getting it just yet. You first need a doctor who will prescribe a full therapeutic dose of levoT. Twenty-five mcgs will NEVER fulfill your needs. Your doctor is only looking at your TSH, which has admittedly responded to that 25 mcgs; but he needs to be looking at your free T4 and free T3 instead. On a "dose" of 25 mcgs, it's possible for them to be even lower than they were before you were treated.

    Use your best power of persuasion to get yourself a "real" dose of levoT. If your current GP won't allow it, change GPs, if you can, until you find one who understands more about free T levels and will treat you with an appropriate dose of levoT.

     
    Old 09-17-2010, 09:05 AM   #11
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    Re: Levothyroxine, tiredness and vivid dreams

    I was diagnosed with hypothyroid when I was 15 years old, and am now 32 years old. I started out on synthroid, and have taken various generics since then. It has worked for me, however. I went from taking a 3-hour nap every day to living pretty much normally. I too have vivid dreams nightly, and it's interesting that it seems to be common with hypothyroid!

    My advice to you is to hang in there! Your body does take time to adjust, and you will get used to your sleeping patterns and such. If you are able to go see a private provider, then you should do it. Your instincts are probably right if you feel that they did not test you properly. At least go talk to someone who will answer your questions and work with you.

    Good luck and take care!!!

     
    Old 09-18-2010, 05:58 AM   #12
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    Re: Levothyroxine, tiredness and vivid dreams

    Update---my insomnia has not improved yet. New question is dr prescribed 30mg terazapam to take to help me sleep. Anybody heard of this drug? Any suggestions would help. Melantonin isny helping.

     
    Old 09-22-2010, 07:24 AM   #13
    bartonse
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    Angry Re: Levothyroxine, tiredness and vivid dreams

    Ok, so I went back to the docs last week for a retest. I explained that I was pretty sure my last doctor hadn't run the full set of tests and that I wanted to make sure they were 100% sure my medication dosage was correct. I'm only on 25mcg of Levothyroxine but according to the leaflet, doses should start at 50mcg for adults?!

    I rang the docs yesterday where the receptionist told me the results came back 'normal'. I asked to speak to the doctor as I wanted more information. That was almost 24 hours ago and i'm still waiting!! I'm also pretty sure that they have only tested my TSH again but we'll see.

    Am so fed up with the NHS. I wish they would just do a job properly instead of half-hearted. I feel completely lost and don't know what to do next.

     
    Old 09-22-2010, 09:07 AM   #14
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    Re: Levothyroxine, tiredness and vivid dreams

    It's not just NHS. I'd say maybe 80-90% of docs don't really understand thyroid disorders or how to treat them. Can you request a copy of your lab work? That would give you a starting point. You could post your results here and perhaps we could offer some suggestions.

     
    Old 09-22-2010, 10:53 AM   #15
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    Re: Levothyroxine, tiredness and vivid dreams

    If your TSH again comes back above 2, respectfully ask your doctor if you could try to get it nearer .8-1.0 by increasing the dose to 50 mcgs. Tell him that's still within accepted treatment guidelines and is still within range, so it should be safe to do. If he refuses after such a polite request, all you can do is try to find another doctor who is more cooperative and attentive to his patient's needs, not just to the paper-and-ink lab reports.

     
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