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Levels don't make sense... help a newbie

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Old 10-30-2012, 12:21 PM   #1
Join Date: Oct 2012
Location: Chicago IL
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cnd1979 HB User
Unhappy Levels don't make sense... help a newbie

Antithyroid peroxidas <10
Thyroglobulin AB <20
TSH 3.41
Free Thyroxine 1.89

I have suspected Hoshimotos but this set of labs is throwing me off. Something is going on but what?

I am 33 have had issues since about 18. I have severe stomach pains which have finally after 15 years been explained as food allergies/oral allergy syndrome. So when the birch pollen is high I am allergic to apples because they have similar proteins. Same with gluten, ragweed is high I eat wheat I actually end up with a type of anaphylactic shock of the stomach. I have an epipen for this. I have had extremely high eosinophils 43 % which have reduced with the elimination of gluten to 5%. I had diarrhea for 4 years but also has gone away with the elimination of gluten and other allergens such as black pepper, apples, bananas, nitrates, peanuts. I am still extremely fatigued, brain fogged, loss of memory,low sex drive, cold hands and feet, intolorant of cold and heat, arms fall asleep while I am sleeping, anxiety, depression, insomnia, loss of joy, hair loss, nails falling apart, painful scalp, sensitive to medications, brown patches on face, did I mention fatigued? These issues seem to be at their worst (triggered) by pregnancy or actually the post partum period. During pregnancy I feel generally well but have severe anxiety and shortness of breath even in the early stages along with SI joint dysfunction. Anyway the doctors say I have celiac just not at the point of damaged villi to diagnose properly. She said most of her patients who have the issues I have also have Hashimoto or thyroid issues along with adrenal fatigue. Stomach dr. diagnosed eosinophilic gastritis, dermographism, and oral allergy syndrome. I am very overweight despite eliminating gluten that has not changed a bit. I did have a terrible problem with SI joint dysfunction and/or sciatica which has improved by removing gluten. I just got a flu shot and the SI pain has returned. Is this a flare caused by annoying/inflaming my system. So I totally just rambled and I hope I made sense. Just don't know what to do anymore. Tired of looking like a hypochondriac and feeling like garbage. What do those numbers mean? Hyper? Hypo? Nothing? I see my gp this week and a specialist in the city next month just wondering if those who live it have some words of wisdom....thanks!

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Old 10-31-2012, 12:09 PM   #2
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Re: Levels don't make sense... help a newbie

Welcome to the board although I'm sorry for the reason you're here.

May I please ask you next time to try to make some paragraphs/white spaces in your post, since it makes reading easier.

do you have the reference ranges going with that free thyroxine results, if so can you please share.(since it's different for each lab it's important information)

A person can have hashi's without the typical antibodies being present (antiTPO or antithyroid peroxidase and anti TG are the antibodies), so not having them is no guarantee.
Celiac and Hashi's often go together since they are both auto-immune in nature. if one has one auto-immune disease one is more prone for another.

Your TSH is slightly elevated. (>2.5 is considered suspicious of hypoT according to the AACE).

It's important to know where your FT4 is in your reference ranges since TSH alone does not give enough information.

Old 11-01-2012, 03:08 PM   #3
Join Date: Oct 2012
Location: Chicago IL
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cnd1979 HB User
Re: Levels don't make sense... help a newbie

Thank you very much for your response. I was in a complete frenzy typing away last time. The ranges were

Free Thyroxine 0.76-1.46ng/dl Mine came up High at 1.89

I am trying sooo hard to understand what is happening to my body. Feels like I have spent so much time reading and investigating and trying to make sense of everything but when I start looking at the numbers I just cannot process them or what they mean.

Thanks again. Going to have my GP run a full Thyroid panel, vit D and B12. I think my D was a 14 back in June when I had it checked.

Anything else you would recommend I test? My GP is usually great about doing what I ask.

Old 11-01-2012, 03:40 PM   #4
Join Date: Oct 2012
Location: Chicago IL
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cnd1979 HB User
Re: Levels don't make sense... help a newbie

Also, I have Eosinophilic Gastritis & dermographism both of which are autoimmune in nature. Also, have you known of flu shots to cause flares? I read something about them activating T2.

Old 11-01-2012, 05:31 PM   #5
Join Date: Oct 2012
Location: Chicago IL
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cnd1979 HB User
Re: Levels don't make sense... help a newbie

I also have a pain in my right armpit that comes and goes. I was actually going to make an appt with my OB when I read somewhere that this can be thyroid related. I honestly never gave my thyroid any thought. Around age 20 my GYN noticed a rapid weight gain, checked thyroid said it was fine and that was what you eat.

Old 03-09-2013, 06:55 PM   #6
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Re: Levels don't make sense... help a newbie

CND1979, have you had any luck in finding a solution to your symptoms? It has been a few months since you first wrote your post so I am hoping that you feel better. Your description of your symptoms are very much like mine, including the gastrointestinal ones. My problem is that I have not had luck finding a good doctor who is willing to treat my symptoms since my blood work has come back within range. You and I live in the same city, so if your doctor has figured out how to treat it I may want to visit the same doctor with hopes of getting the same results.

Last edited by Seekingpeace12; 03-09-2013 at 06:56 PM.

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adrenal fatigue, celiac disease, gluten, hoshimotos, thyroid

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