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Please help, Hyper, remission, back to Hyper

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Old 01-07-2013, 04:17 AM   #1
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Please help, Hyper, remission, back to Hyper

Hi Diagnosed Graves disease Dec 08, in remisson for last few months, no treatment, results in Oct were FT3 4.61 (3.6-6.5) FT4 14.3 (9.0-19.1) TSH 0.88 (0.35-4.94)
Results last Friday were FT3 13, FT4 27, TSH 0.01 !!!
How can this happen ??? Doc has given me 5mg of carbimazole and has said I'm totally Hyper, Devastated, do not understand how this has happened ? And is 5mg of Carb enough with these results please ? Please help.

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Old 01-07-2013, 07:43 AM   #2
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Re: Please help, Hyper, remission, back to Hyper

Graves is a different beast than Hashimotos. It is also sneaky. It can flare up as a result of many things. I have one aunt that is pure Graves' disease. She has been managing it with meds for almost 20 years now.

She has routine blood work checks every 3 months and always has an order in hand for a TSH, ft3 and ft4 test for when she has a sudden onset of symptoms. Because something may aggravate your immune system and suddenly your TSI levels may change and graves is in full sprint mode versus jog. It has to be closely monitored because it can flare at anytime. Many find that if they have a tendency for runaway TSI production that removal of the thyroid and treatment of hypothyroidism is easier.

My aunt has managed it, but her first two to three years were a roller coaster ride. Never enter a pizza eating contest with her if she is in a hyperT phase.... She will eat You under the table.

Another aunt and I have Hashimotos and Graves' disease. We spent 5-10 years in a thyroid turf war. My Hashimotos was dominant and killed off my thyroid in a 5-7 year period. My aunt was not as luckily. Her Hashimotos was secondary and just seemed to **** off her Graves' disease. She had two RAI ablasions which made things worse and then when a third was requested... Insisted on a thyroidectomy instead. Now she is happy and stable.

I wish I had more information, but graves is a tricky condition to manage. You have to be the go to person for managing your care. My aunt with graves swears by the symptom logging.

If we learn by our mistakes, I am working on one hell of an education.

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