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  • New Doctor / New Tests - Hashimotos??

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    Old 02-20-2013, 10:05 PM   #1
    elisacook916
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    New Doctor / New Tests - Hashimotos??

    Long and short of it, I have Kaiser...felt crappy for about a year. Begged Kaiser to test thyroid, came back 1.78 TSH (range .10-5.50) they dismissed me said its in range, so I begged harder for Free testing they only would do the FT4 came back as .09 (range .08-1.8) obviously on the low end, but again a dead end. So I finally found a hormone doctor and self paid. He put me on meds almost immediately - 75 mcg Levo and 7.5 mcg of compounded T3. The new blood work came back as after being on medications for 4 months:

    FT4 -1.1 (range .08-1.8)
    FT3 - 3.8 (range 2.3-4.2)
    Reverse T3 - 24 (range 11-32)
    Thyroid Peroxidase Antibodies 248 (range <35)

    He mentioned Hashimotos, but for some reason I am fuzzy on it now that it's been a few weeks since I saw him..Good news of it was that the meds are helping and I am coming out of this thyroid coma that I was living in for 2 years!!

     
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    Old 02-20-2013, 11:16 PM   #2
    fresnogirl
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by elisacook916 View Post
    Long and short of it, I have Kaiser...felt crappy for about a year. Begged Kaiser to test thyroid, came back 1.78 TSH (range .10-5.50) they dismissed me said its in range, so I begged harder for Free testing they only would do the FT4 came back as .09 (range .08-1.8) obviously on the low end, but again a dead end. So I finally found a hormone doctor and self paid. He put me on meds almost immediately - 75 mcg Levo and 7.5 mcg of compounded T3. The new blood work came back as after being on medications for 4 months:

    FT4 -1.1 (range .08-1.8)
    FT3 - 3.8 (range 2.3-4.2)
    Reverse T3 - 24 (range 11-32)
    Thyroid Peroxidase Antibodies 248 (range <35)

    He mentioned Hashimotos, but for some reason I am fuzzy on it now that it's been a few weeks since I saw him..Good news of it was that the meds are helping and I am coming out of this thyroid coma that I was living in for 2 years!!
    elisa, how did u tolerate taking 75 mcg of Levo and 7.5 of t3?! did u take those all at once?? Did you go through any hyper symptoms? (palpitations, anxiety, chest flutters, headaches, nausea?)

     
    Old 02-20-2013, 11:30 PM   #3
    elisacook916
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    Re: New Doctor / New Tests - Hashimotos??

    I started the levo at 75 mcg in the morning, but the t3 started with one pill a day moving up to 3 .. 3 pills was too much I was itchy like crazy. So I have gone down to 2 a day once in the morning and once in the evening and feel much better. No Hyper symptoms... every once in a great while if I really get moving around I get a hot flash... other than that good.

     
    Old 02-21-2013, 09:13 PM   #4
    fresnogirl
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by elisacook916 View Post
    I started the levo at 75 mcg in the morning, but the t3 started with one pill a day moving up to 3 .. 3 pills was too much I was itchy like crazy. So I have gone down to 2 a day once in the morning and once in the evening and feel much better. No Hyper symptoms... every once in a great while if I really get moving around I get a hot flash... other than that good.
    is 75 of levo and the amount of t3 your optimal dose? I see you were suffering for a year or so.. I dont know if im going to need t3. ill see how my next labs look in another week or so. im on synthroid 50 mcg.

     
    Old 02-21-2013, 09:47 PM   #5
    elisacook916
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by fresnogirl View Post
    is 75 of levo and the amount of t3 your optimal dose? I see you were suffering for a year or so.. I dont know if im going to need t3. ill see how my next labs look in another week or so. im on synthroid 50 mcg.
    So far so good. I was on the 75 of Levo for about 5 months before adding it. I did get some improvement on the Levo alone, but not much. After adding it, I feel so much better. One weird thing was on the Levo alone, I had horrible heartburn. Once I added the t3 poof it was gone.?? The Dr said he didnt want to change things at this point. With the elevated antibodies he was afraid that they would increase more if the t4 level was to change. The way I understood it was the antibodies attack the t4. You know all this at once gets clouded and after you leave the doctors office all of these extra questions come to your mind and your like crap why didnt I ask him this? LOL

     
    Old 02-21-2013, 11:28 PM   #6
    fresnogirl
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by elisacook916 View Post
    So far so good. I was on the 75 of Levo for about 5 months before adding it. I did get some improvement on the Levo alone, but not much. After adding it, I feel so much better. One weird thing was on the Levo alone, I had horrible heartburn. Once I added the t3 poof it was gone.?? The Dr said he didnt want to change things at this point. With the elevated antibodies he was afraid that they would increase more if the t4 level was to change. The way I understood it was the antibodies attack the t4. You know all this at once gets clouded and after you leave the doctors office all of these extra questions come to your mind and your like crap why didnt I ask him this? LOL
    elisa,
    i know exactly what you mean! can you tell me how you titrated your t3 dose? My nd wrote me a script for 5 mg cytomel once daily in the am. However, i didnt want to start the t3 until i got labs done. Im on 50 mcg of synthroid and at 5 weeks is when i plan to get blood work done. (tsh, free t3, free t4). -- beginning of march. Do you ache? have you ever experienced muscle pain or aches? thats the only lingering symptom for me. id rather feel those, then feel anxious. hyper stage of hashis is NOT FUN. another symptom i experience is severe itching. I dont want to feel hyper on t3 that is why i am super hesitant about starting it.

     
    Old 02-21-2013, 11:39 PM   #7
    elisacook916
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by fresnogirl View Post
    elisa,
    i know exactly what you mean! can you tell me how you titrated your t3 dose? My nd wrote me a script for 5 mg cytomel once daily in the am. However, i didnt want to start the t3 until i got labs done. Im on 50 mcg of synthroid and at 5 weeks is when i plan to get blood work done. (tsh, free t3, free t4). -- beginning of march. Do you ache? have you ever experienced muscle pain or aches? thats the only lingering symptom for me. id rather feel those, then feel anxious. hyper stage of hashis is NOT FUN. another symptom i experience is severe itching. I dont want to feel hyper on t3 that is why i am super hesitant about starting it.
    I took 1 pill in the morning for a week, then added a 2nd pill in the evening for 2 weeks, then added the last 3rd pill a few hours after lunch. That is the one I eventually stopped taking.

    Before taking any of the meds, every month I would get a neck spazm. I have not had one since I started them!! But yes, I was achy all over, freezing all the time, foggy, my hair was falling out, skin and nails very dry, barely could walk to the copier at work without being totally pooped out, constipated, and last by not least depressed as all get out because I NEVER felt good. In fact that is what Kaiser told me, everything I was experiencing was just because Im depressed and to double the dose of Zoloft....

     
    Old 02-21-2013, 11:47 PM   #8
    fresnogirl
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by elisacook916 View Post
    I took 1 pill in the morning for a week, then added a 2nd pill in the evening for 2 weeks, then added the last 3rd pill a few hours after lunch. That is the one I eventually stopped taking.

    Before taking any of the meds, every month I would get a neck spazm. I have not had one since I started them!! But yes, I was achy all over, freezing all the time, foggy, my hair was falling out, skin and nails very dry, barely could walk to the copier at work without being totally pooped out, constipated, and last by not least depressed as all get out because I NEVER felt good. In fact that is what Kaiser told me, everything I was experiencing was just because Im depressed and to double the dose of Zoloft....
    OMG! I hope im one of those hashi people who dont convert well! Ive been so hesitant to try t3 because my last ft3 in december was 3.75 (2.5-3.9) I didnt want to go hyper and have my ft3 go out of range. So, I figured upping t4 would solve some issues. which it did. no more anxiety, but, i am constipated!, exhausted!, achy!, painful periods, hair falling out!!, itchy.. im sure t3 would solve some of those issues. i was even thinking about discontinuing synthroid all together and just start a small dose of Armour. But, im not reacting to synthroid at all as far as allergies. what is your dose in the morning and night? 5mg? or 2.5 mg? yeah, i see people take t3 at least twice a day.

     
    Old 02-21-2013, 11:53 PM   #9
    elisacook916
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by fresnogirl View Post
    OMG! I hope im one of those hashi people who dont convert well! Ive been so hesitant to try t3 because my last ft3 in december was 3.75 (2.5-3.9) I didnt want to go hyper and have my ft3 go out of range. So, I figured upping t4 would solve some issues. which it did. no more anxiety, but, i am constipated!, exhausted!, achy!, painful periods, hair falling out!!, itchy.. im sure t3 would solve some of those issues. i was even thinking about discontinuing synthroid all together and just start a small dose of Armour. But, im not reacting to synthroid at all as far as allergies. what is your dose in the morning and night? 5mg? or 2.5 mg? yeah, i see people take t3 at least twice a day.
    I take a compounded T3 - 7.5 in the morning and 7.5 in the evening. My FT4 without the T3 in the picture yet was still on the lower end 2.2.

     
    Old 02-21-2013, 11:59 PM   #10
    fresnogirl
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by elisacook916 View Post
    I take a compounded T3 - 7.5 in the morning and 7.5 in the evening. My FT4 without the T3 in the picture yet was still on the lower end 2.2.
    Ohhh. Nice. Do you see an endo or functional primary doctor? Endos around here are not open to t3 or t3/t4 combo. i see a functional doctor and naturopathic doctor. Recently diagnosed last september. HUGE flare and hyper symptoms for two weeks straight. now, hypo! my ft4 and ft3 are low in range right now too. my last labs are tsh 1.13 (0.3-3), free t3 3.15 (2.5-3.9), free t4 0.95 (0.58-1.64). do you anything about reverse t3 by the way? do you also take vitamin d?

     
    Old 02-22-2013, 12:16 AM   #11
    elisacook916
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by fresnogirl View Post
    Ohhh. Nice. Do you see an endo or functional primary doctor? Endos around here are not open to t3 or t3/t4 combo. i see a functional doctor and naturopathic doctor. Recently diagnosed last september. HUGE flare and hyper symptoms for two weeks straight. now, hypo! my ft4 and ft3 are low in range right now too. my last labs are tsh 1.13 (0.3-3), free t3 3.15 (2.5-3.9), free t4 0.95 (0.58-1.64). do you anything about reverse t3 by the way? do you also take vitamin d?
    No Vit D, just multi. I see Dr. Warner in Sacramento, he is technically an OB/GYN, but he doesn't practice that anymore, he specializes in hormone imbalance therapy.

     
    Old 02-22-2013, 12:24 AM   #12
    fresnogirl
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by elisacook916 View Post
    No Vit D, just multi. I see Dr. Warner in Sacramento, he is technically an OB/GYN, but he doesn't practice that anymore, he specializes in hormone imbalance therapy.
    Maybe If i found an obgyn doc that specialized in hormone imbalance therapy it would be very helpful.. i was just recently diagnosed with endometriosis by my new obgyn doc. i dont think he specializes in thyroid because we discussed that on my last visit and he didnt seem too knowledgeable about it. Im glad you are feeling better though. I read your posts from awhile back regarding how hard it was for you to get treated. Ive gotten every lab test in the book that i could find about autoimmune thyroid disorders. ferritin, cbc, b12, vitamin d, cortisol via saliva and blood.. im even takin a stool test to test for candida, h pylori, and celiacs. All this in 4 months of being diagnosed! do you work a full time job as well?

     
    Old 02-22-2013, 12:37 AM   #13
    elisacook916
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by fresnogirl View Post
    Maybe If i found an obgyn doc that specialized in hormone imbalance therapy it would be very helpful.. i was just recently diagnosed with endometriosis by my new obgyn doc. i dont think he specializes in thyroid because we discussed that on my last visit and he didnt seem too knowledgeable about it. Im glad you are feeling better though. I read your posts from awhile back regarding how hard it was for you to get treated. Ive gotten every lab test in the book that i could find about autoimmune thyroid disorders. ferritin, cbc, b12, vitamin d, cortisol via saliva and blood.. im even takin a stool test to test for candida, h pylori, and celiacs. All this in 4 months of being diagnosed! do you work a full time job as well?
    Yes! And at the beginning of this it was a new job... so as horrible as i felt I had to get my butt up each day to get there....

    I too have a host of other things going on. I was diagnosed in 2001 with PCOS, had a hysterectomy in 2009....when I was researching the thyroid issues, I pretty much read that hypo goes hand in hand with PCOS people. I'm now wondering if the neuropathy in my feet is related to all of this??

    I am so tired of popping pills....I currently take 75mcg Levo, 100mg Spiro, 1500mg Metformin, 50mg Zoloft, 300mg gababpentin, 15 mcg T3 and 5mg ambien = 11 pills a day, plus gummy multi, C & Fish Oil

    Check this website out: http://thyroid.about.com/gi/o.htm?zi=1/XJ&zTi=1&sdn=thyroid&cdn=health&tm=7&f=2 1&tt=2&bt=0&bts=1&zu=http%3A//www.thyroid-info.com/topdrs/california.htm

    There are a few specialist in Fresno

    Last edited by elisacook916; 02-22-2013 at 12:40 AM.

     
    Old 02-22-2013, 12:42 AM   #14
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by elisacook916 View Post
    Yes! And at the beginning of this it was a new job... so as horrible as i felt I had to get my butt up each day to get there....

    I too have a host of other things going on. I was diagnosed in 2001 with PCOS, had a hysterectomy in 2009....when I was researching the thyroid issues, I pretty much read that hypo goes hand in hand with PCOS people. I'm now wondering if the neuropathy in my feet is related to all of this??

    I am so tired of popping pills....I currently take 75mcg Levo, 100mg Spiro, 1500mg Metformin, 50mg Zoloft, 300mg gababpentin, 15 mcg T3 and 5mg ambien = 11 pills a day, plus gummy multi, C & Fish Oil
    Wow, sometimes i wonder if i have PCOS too. How did you test for that and find out that you had it? My periods are very very painful and the pain is always near my rectal area. I have no problems with intercourse, but when my period comes, it feels like death even when having a bowel movement. (tmi!!!) Wow you take a lot of pills! Do you also have diabetes? I noticed the metformin. and 100 mg of spironolactone? since taking t3, has your appetite been affected? sleep better?

    i take 200 mcg of selenium, mag glycinate 400 mg before bed, fish oil, 5000 iu of vitamin d, 2 mg biotin for hair loss, adaptocrine for adrenal support (even though i dont have adrenal fatigue), and sometimes glutathione to help with the immune system. i am considering finding out my th1 th2 dominance issue and see if i can solve that. remember, with hashis, its the immune system thats corrupt, our thyroid is just the poor organ that starts to get dysfunctional.

     
    Old 02-22-2013, 12:48 AM   #15
    elisacook916
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    Re: New Doctor / New Tests - Hashimotos??

    Quote:
    Originally Posted by fresnogirl View Post
    Wow, sometimes i wonder if i have PCOS too. How did you test for that and find out that you had it? My periods are very very painful and the pain is always near my rectal area. I have no problems with intercourse, but when my period comes, it feels like death even when having a bowel movement. (tmi!!!) Wow you take a lot of pills! Do you also have diabetes? I noticed the metformin. and 100 mg of spironolactone? since taking t3, has your appetite been affected? sleep better?

    i take 200 mcg of selenium, mag glycinate 400 mg before bed, fish oil, 5000 iu of vitamin d, 2 mg biotin for hair loss, adaptocrine for adrenal support (even though i dont have adrenal fatigue), and sometimes glutathione to help with the immune system. i am considering finding out my th1 th2 dominance issue and see if i can solve that. remember, with hashis, its the immune system thats corrupt, our thyroid is just the poor organ that starts to get dysfunctional.
    I am just learning about the Hashi's -- I didn't have any clue when he gave me the values of my last panel. Spiro is for the hair issues from PCOS, I still have sleep issues...I was able to reduce the amount of ambien from 10mg to 5mg since starting the t3. I am in the pre diabetes / insulin resistant stage and have been for 10+ years.

     
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