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Not sure what's going on anymore


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Old 07-19-2015, 02:46 PM   #1
NJ321
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Not sure what's going on anymore

I've been having some sort of issue for a few years now with the right jaw. I'm not sure what the exact problem is anymore since I've tried so many different treatments but nothing has worked. I've been made 3 different night guards & I feel like wearing any of them makes my problem worse. I've been to dentists, an oral surgeon, to my regular doctor & had an X-Ray & MRI done on my TMJ joints & they both came back completely normal. I'll try to explain my problem the best way I can. So, I guess the best way to explain it is on the right side of my jaw right in front of the ear it just feels really loose & even when I touch my tragus or ear sometimes I hear crackling or crunching noises. Also, I hear clicking sounds on my right side, but sometimes it goes into a position where there's no clicking sounds, like it goes into a socket or something but when I move my right jawline it curves & feels loose & it'll crack out of place than I hear the clicking sounds all over again. The thing that's really weird is I rarely get any pain except for when I'm eating sometimes in the muscle that's a few inches directly across from my ear. I have no idea what the exact problem is anymore & what to do about it. I also sometimes feel like the inside of my ear is really itchy & also get a burning type of sensation in my ear & it seems like it affects my nerves & brain or something. I'm starting to get really worried about what exactly is going on anymore & what to do about it.

Edit: Also want to add that when I tilt my head down I hear these weird crackling sounds in my right ear as well.

Last edited by NJ321; 07-19-2015 at 02:58 PM.

 
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Old 08-01-2015, 01:02 PM   #2
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Re: Not sure what's going on anymore

Does anyone have any suggestions as in what I could do?

 
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Old 08-02-2015, 06:13 AM   #3
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Re: Not sure what's going on anymore

NJ321, I am so sorry you are going through this. I don't know what the answer could be, but I can offer one suggestion to try and get some relief: have you gone to a trusted, certified massage/myofascial therapist? They may be able to give you temporary relief, and possibly give you some answers. Good luck.

 
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Old 08-02-2015, 07:22 AM   #4
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Re: Not sure what's going on anymore

Is your bite off? Have you seen a tmj dentist?
Also try physical therapy get a tmj specialist. They can do manipulation to get your jaw mobility back to normal.

 
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Old 08-02-2015, 07:23 AM   #5
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Re: Not sure what's going on anymore

Is your bite off? Have you seen a tmj dentist?
Also try physical therapy get a tmj specialist. They can do manipulation to get your jaw mobility back to normal.

 
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Old 08-02-2015, 10:41 AM   #6
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Re: Not sure what's going on anymore

How does the oral surgeon explain the crunching noises and that your jaw feels loose? Did he offer an explanation or a recommendation? A regular doctor won't be able to help you.
For my TMJ, I was given exercises, as my dentist told me that the guards can make you worse. But it sounds like your problem is more of a structural one where the whole jaw needs some type of reconstructive work, I'm not sure your problem would be helped by simple exercises. But I would think an oral surgeon would be the one who should know what is going on.

 
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Old 08-02-2015, 03:07 PM   #7
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Re: Not sure what's going on anymore

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Originally Posted by kanded View Post
How does the oral surgeon explain the crunching noises and that your jaw feels loose? Did he offer an explanation or a recommendation? A regular doctor won't be able to help you.
For my TMJ, I was given exercises, as my dentist told me that the guards can make you worse. But it sounds like your problem is more of a structural one where the whole jaw needs some type of reconstructive work, I'm not sure your problem would be helped by simple exercises. But I would think an oral surgeon would be the one who should know what is going on.

When I went to oral surgeon he just gave me muscle relaxants which didn't do anything. Than I went to a physical therapist for about 6 weeks & that did nothing either to help. Than the surgeon ordered an MRI of my joint in an opened & closed position & it came back completely normal. So after that he said to see how I do without physical therapy, which in other words he pretty much doesn't know what else to do to help me without specifically saying it. He's the second oral surgeon I went to, where the first one just said I'm not a candidate for surgery & to get a new night guard made which I did & didn't help.

If I needed reconstructive work done, wouldn't I have severe pain issues? The thing that's weird is that I hardly get pain except for in my ear at times, but nothing major. That's the thing that's very odd about this since I'd like to think with an issue like this going on for so long that I'd have awful pain along with it but I have all these other weird symptoms instead.

Last edited by NJ321; 08-02-2015 at 03:08 PM.

 
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Old 08-02-2015, 03:13 PM   #8
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Re: Not sure what's going on anymore

Quote:
Originally Posted by Melemma View Post
Is your bite off? Have you seen a tmj dentist?
Also try physical therapy get a tmj specialist. They can do manipulation to get your jaw mobility back to normal.
My bite is actually fine. Never had an issue with my bite, but some of my teeth are chipped from clenching & bruxism. I'm wondering if that's why I'm having some of the problems I am where something isn't in the right position due to having some teeth that are chipped a bit. But I'd have no clue what to do for something like that.

 
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Old 08-02-2015, 08:13 PM   #9
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Re: Not sure what's going on anymore

Actually I think you hit the nail on the head for your particular problem. According to what I've read I think there are muscle relaxation exercises you can probably find online for bruxism, my dentist taught me to put my tongue in a nuetral position then say the word cluck, then bring lips together without closing teeth together, this has helped me to relax my jaw, and everytime I catch myself clenching to go back to this nuetral position. You probably already know that stress causes bruxism so I tried to lessen my stressful life(Ha ha) and cut back on my caffeine intake and avoid alcohol. As far as your ear problem, if the problem is bad enough maybe it affects that nerve that runs from the jawline into the ear canal. Hope this helps, probably the stress from worrying about this isn't helping either.

 
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Old 08-03-2015, 11:27 AM   #10
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Re: Not sure what's going on anymore

Quote:
Originally Posted by kanded View Post
Actually I think you hit the nail on the head for your particular problem. According to what I've read I think there are muscle relaxation exercises you can probably find online for bruxism, my dentist taught me to put my tongue in a nuetral position then say the word cluck, then bring lips together without closing teeth together, this has helped me to relax my jaw, and everytime I catch myself clenching to go back to this nuetral position. You probably already know that stress causes bruxism so I tried to lessen my stressful life(Ha ha) and cut back on my caffeine intake and avoid alcohol. As far as your ear problem, if the problem is bad enough maybe it affects that nerve that runs from the jawline into the ear canal. Hope this helps, probably the stress from worrying about this isn't helping either.
Yeah, I was thinking exactly about what you said about it affecting the nerve that runs from jawline into ear canal. But would that be considered an ear or TMJ problem? I've seen 2 ENTs & they couldn't find anything wrong at all with my ear. The one ENT even did a test where he put something in my ear & the machine printed out results & that came back completely normal too. I'm just confused on what the precise issue is anymore. But I think you're right that it's affecting some sort of nerve. I'm just worried I have permanent damage of some sorts for it to be going on for so long. Not sure what else to do at this point besides trying to keep my teeth apart & trying not to stress & worry about this that much. I even asked a psych about what to do & she just said to try muscle relaxants. But I already did & it didn't do anything.

 
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Old 08-03-2015, 07:52 PM   #11
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Re: Not sure what's going on anymore

I guess this isnt much help, but I hope you figure out a solution soon!

 
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Old 08-04-2015, 02:03 PM   #12
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Re: Not sure what's going on anymore

Hi,

A quick test you can perform to diagnose if the issue is with the TMJD, is to place your little finger in each ear and open and close your jaw. Cracking/ clicking means anterior discplacement. Which is not a problem as long as the jaw does not lock or cause jaw/headache pain.

I would suggest visiting an Osteopath for a diagnosis/massage, get some feedback off them.

If the issue persists and you believe it to be TMJD, I would highly reccomend seeing a functional orthodontist (TMJ Dentist) to make you a splint. A well made splint will alleviate any issues you have (downside is must be worn 24/7) - generally they are invisible though. For a more permanent solution the functional orthodontist can change the bite to its optimal position using braces.

Up to you.

Short term tips: Avoid chewing gun, find a good pillow (medium firmness, not too soft). Take up some regular exercise, this is very good for the body.

Take care,
Luke

 
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Old 08-11-2015, 04:36 PM   #13
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Re: Not sure what's going on anymore

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Originally Posted by TMJLuke View Post
Hi,

A quick test you can perform to diagnose if the issue is with the TMJD, is to place your little finger in each ear and open and close your jaw. Cracking/ clicking means anterior discplacement. Which is not a problem as long as the jaw does not lock or cause jaw/headache pain.

I would suggest visiting an Osteopath for a diagnosis/massage, get some feedback off them.

If the issue persists and you believe it to be TMJD, I would highly reccomend seeing a functional orthodontist (TMJ Dentist) to make you a splint. A well made splint will alleviate any issues you have (downside is must be worn 24/7) - generally they are invisible though. For a more permanent solution the functional orthodontist can change the bite to its optimal position using braces.

Up to you.

Short term tips: Avoid chewing gun, find a good pillow (medium firmness, not too soft). Take up some regular exercise, this is very good for the body.

Take care,
Luke
The thing that's weird is I really get no pain except for in my ear at times & when I eat sometimes. But I still get all these other weird symptoms. I feel like I've tried every option available to me & I'm still having issues. I'm not as bad as I was at the same time last year, but I'm still having a lot of issues. I'm starting to worry I have some sort of brain damage or a nervous system issue that's attacking my muscles in some way. I just don't know where to go from here or what to do about it. I forgot to add this but sometimes I get weird breathing problems & like my brain isn't attached to my body. Also, I feel I don't really get anxiety like I used to like a lot of the time my mind just feels numb & my body can't tolerate anti-depressant drugs.

 
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Old 08-15-2015, 10:52 AM   #14
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Re: Not sure what's going on anymore

NJ321, Ah ok. These symptoms could be a result of a trapped nerve or something not necessarily related to the jaw joint. I would advise seeing an experienced Osteopath, who can look at you as a whole and make a diagnosis, then take it from there. If the problem is not jaw related then it may just be a simple case. As you are not experiencing jaw pain, that is an excellent sign, again the fact that your MRI's came back ok is another great sign. These things mean that there is a low chance that you are suffering from TMJD (Pain, locking etc). Even if it was TMJD (Unlikely) , science will inevitably find the root cause of the issue for sufferers, it is just a matter of time. So yeah my advice, see an Osteopath, see what they have to say and take it from there.

I too have experienced the clicking and ear sensations.
This can be a side effect of a mandible (Jaw bone) which is being caused to sit too far back in relation to the upper and therefore causing the condyle to compress
muscle or nerve tissue at the back of the joint space. If your jaw is sitting too far back relative to the upper, your upper teeth (mainly incisors) will be sitting further forwards that your lowers. If this is the case, I am sure a cheap custom splint from a TMJ dentist will solve the issue.

If you really want to sort this:

1) See an Osteopath for a diagnosis
If Osteopath cannot offer effective treatment then:

2) See a TMJD trained dentist on IAORTHO Click find a dentist, stick your location in. Should say trained in functionals and TMJ. Get them to make you a cheap custom splint. This will permanently keep your jaw in its perfect resting position. It will have to be worn permanently, but they are invisible and awesome. Though since you aren't in pain you may not need one.

This information is given purely for your own assistance and not to promote any of those services. I've suffered myself. Such things tend to take care of themselves. All the best

Last edited by TMJLuke; 09-04-2015 at 10:59 AM. Reason: edit

 
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Old 08-18-2015, 10:59 AM   #15
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Re: Not sure what's going on anymore

Quote:
Originally Posted by TMJLuke View Post
NJ321, Ah ok. These symptoms could be a result of a trapped nerve or something not necessarily related to the jaw joint. I would advise seeing an experienced Osteopath, who can look at you as a whole and make a diagnosis, then take it from there. If the problem is not jaw related then it may just be a simple case. As you are not experiencing jaw pain, that is an excellent sign, again the fact that your MRI's came back ok is another great sign. These things mean that there is a low chance that you are suffering from TMJD (Pain, locking etc). Even if it was TMJD (Unlikely) , science will inevitably find the root cause of the issue for sufferers, it is just a matter of time. So yeah my advice, see an Osteopath, see what they have to say and take it from there.

I too have experienced the clicking and ear sensations.
This can be a side effect of a mandible (Jaw bone) which is being caused to sit too far back in relation to the upper and therefore causing the condyle to compress
muscle or nerve tissue at the back of the joint space. If your jaw is sitting too far back relative to the upper, your upper teeth (mainly incisors) will be sitting further forwards that your lowers. If this is the case, I am sure a cheap custom splint from a TMJ dentist will solve the issue.

If you really want to sort this:

1) See an Osteopath for a diagnosis
If Osteopath cannot offer effective treatment then:

2) See a TMJD trained dentist on IAORTHO website: Click find a dentist, stick your location in. Should say trained in functionals and TMJ. Get them to make you a cheap custom splint. This will permanently keep your jaw in its perfect resting position. It will have to be worn permanently, but they are invisible and awesome. Though since you aren't in pain you may not need one.

This information is given purely for your own assistance and not to promote any of those services. I've suffered myself. Such things tend to take care of themselves. All the best
I actually have been made 3 night guards already. The second dentist I went to last year said the other ones I been made are too big for my mouth. So she made one for me, but I'm still having all the same issues. It feels like my right jawline is out of place or something. When I make a fist on my left cheek & push my left jaw in I get bad pain around my right ear & sometimes a burning feeling in that area like something is out of alignment. This is honestly making me go crazy at times since I just want this fixed already & it feels like no matter what I do no one can help me. It's just scary thinking that I may have to be like this the rest of my life since it's been going on for years now. A lot of symptoms have eased up since this first started, but that honestly makes no difference to me since if I'm not 100% better from this problem than what good is it. I've been seeing a psych & she said to try muscle relaxants, but that's done nothing for me either. I go back to her on Thursday & I really just don't know what to even say anymore. This is definitely ruining my life.

 
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