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  • Hope for you TMJ sufferers!

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    Old 08-04-2015, 01:45 PM   #1
    TMJLuke
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    Thumbs up Hope for you TMJ sufferers!

    Hi TMJD sufferers,

    I'm posting to let you know you that there is hope and things do get better. I am not a doctor, I have simply had a splint and orthodontics to realign my bite. I was 19 when mine started, clicking, horrid headaches so I went to a TMJD dentist who was trained in functional orthodontics. What he did was ever so slightly move the jaw forwards and stabilise the jaw position with Orthodontics. Though it still clicks (displacement) slightly on the right, it does not lock and there is no pain whatsoever. I do not even realise that I once had it. Clicking alone does not indicate a TMJ condition, perhaps the jaws are out of alignment slightly, but this is not damaging the TMJ.

    The key thing here is that my condyles were moved forwards enough to allow enough space so that they were not pinching nerve/muscle tissue at the back of the joint space.

    I fought hard to beat TMJ, I swore I would not let it end me, and I raised money to pay for my own treatment, I amassed so much energy to defeat it, I was tireless. I never gave up on myself, and I won.

    I learned alot about the condition, I researched it like crazy.

    Do not believe anyone who tells you that TMJD gets worse over time in terms of locking or joint damage, because it simply does not, with exception to surgical cases. The joint is malleable and highly adaptable, it simply changes shape and adapts. Do not think you are degrading. TMJD is more common than you think.

    Life is damn good now.

    Get yourself to a TMJ dentist who is trained in functional orthodontics and ensure that they are able to move your condyles forward slightly. This relieves the pressure at the back of the joint from the condyle rubbing against it, the facial and jaw muscles therefore are not straining to protect the joint and this prevents the headaches.-This eliminates all pain.

    At the start of my journey I honestly didn't know where I would end up, but TMJ has seriously made me a stronger person than I ever thought possible, I've pushed my boundaries, I've made most of my dreams come true simply because TMJ forced me to push myself to the edge of human tolerance.

    Another good thing is that the condyles actually remodel themselves over the course of about 10 years, so once the jaw is moved, the condyles actually adapt their shape.

    I wish you all the best. Enjoy life and remember, anything is possible if you are willing to fight hard enough. The condition did not stand a chance and I am laughing in its face right now. The day the pain ended I ran down the road laughing my head off, one of the happiest moments of my life.

    Luke

    Last edited by TMJLuke; 08-04-2015 at 02:48 PM.

     
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    Old 08-07-2015, 03:33 AM   #2
    jayja
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    Re: Hope for you TMJ sufferers!

    Good news. Be optimistic. But be cautious with who you work with. Most of the dentist and orthodontist "specialists" are trash and out to suck your money.

     
    Old 08-09-2015, 09:43 AM   #3
    TMJLuke
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    Re: Hope for you TMJ sufferers!

    Oh yeah absolutely, check the dentists credentials and ensure they are registered with IAORTHO and it says trained in: Functionals and TMJ. Be sure to read up on things yeah as treatment is very costly, but if done right is worth it.

     
    Old 08-22-2015, 03:19 AM   #4
    lankyrunner
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    Re: Hope for you TMJ sufferers!

    Awesome story. I ahave been using a splint that brought the jaw forward and it has helped heaps but now the dentist has tried to ween me off and made the splint alot smaller and pain is returning. I think it has been made harder because I have had to fly out of town to see this dentist. Going to see if i can have it adjusted again pain has gone down from 9/10 to 2/10 most of the time so the splint has definitely helped!

    What level did your pain get too before you started braces/ did you go straight to those from the splint?

     
    Old 08-31-2015, 05:46 PM   #5
    Melemma
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    Re: Hope for you TMJ sufferers!

    Hi
    Thank you for sharing something positive! I went to a dentist for non surgical treatment and they sent me to a surgeon bc I was in too much pain and couldn't open enough for splint therapy. They were going to do something similar to your treatment. I just saw a surgeon who is going to do the Same treatment with a guard and braces except he wants to perform surgery after braces. But first I had a procedure called arthosentesis to flush the joint with steroids to get me opening enough for the occlusal guard due to a stuck disk. I can't chew food with out severe pain and I am waiting for the procedure to take affect, it takes a while. So my point is you had success with non surgical treatment. Were you in similar pain when you started your treatment? Did you have an open bite fixed? I was told that an open bite fixed with braces will eventually come back bc the teeth want to be in the bone and braces will pull them away from the bone.
    I appreciate any advice.

     
    Old 09-03-2015, 12:57 PM   #6
    TMJLuke
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    Re: Hope for you TMJ sufferers!

    Quote:
    Originally Posted by lankyrunner View Post
    Awesome story. I ahave been using a splint that brought the jaw forward and it has helped heaps but now the dentist has tried to ween me off and made the splint alot smaller and pain is returning. I think it has been made harder because I have had to fly out of town to see this dentist. Going to see if i can have it adjusted again pain has gone down from 9/10 to 2/10 most of the time so the splint has definitely helped!

    What level did your pain get too before you started braces/ did you go straight to those from the splint?
    Hi, Great that you are using a splint. Well, with me, I had an upper functional orthodontic appliance on my uppers to create a good horseshoe shaped upper arch alongside a clear lower splint. Pain was nil at this point. 6 months afterwards I was moved to braces on the lowers, then uppers. I do remember headaches and minor locking returning briefly with splint removal. However this was because the position and relationship of the teeth was pretty much the same as before I got my splint. The purpose of the braces in my case was to modify the relationship between the teeth and the jaws to create space in the joint and keep them there permanently. Something else to bear in mind is that braces themselves do at times cause headaches. I can attest that before I started treatment I had clicking, minor locking, headaches and muscle aches. Afterwards I have a small amount of clicking, no locking at all, no headaches or even pain for that matter. Best of luck, stick with it and educate yourself even more where possible on the Temporomandibular Joint so if you find treatment is perhaps not helping as much as you think, explain to your dentist that you believe you need the jaw to move forwards a little more to free up joint space etc, things like that. They will likely understand. Feel free to pressure your dentist if you think things aren't turning out as well as planned. You are in a good place though at the moment, stick with this.

     
    Old 09-03-2015, 01:13 PM   #7
    TMJLuke
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    Re: Hope for you TMJ sufferers!

    Quote:
    Originally Posted by Melemma View Post
    Hi
    Thank you for sharing something positive! I went to a dentist for non surgical treatment and they sent me to a surgeon bc I was in too much pain and couldn't open enough for splint therapy. They were going to do something similar to your treatment. I just saw a surgeon who is going to do the Same treatment with a guard and braces except he wants to perform surgery after braces. But first I had a procedure called arthosentesis to flush the joint with steroids to get me opening enough for the occlusal guard due to a stuck disk. I can't chew food with out severe pain and I am waiting for the procedure to take affect, it takes a while. So my point is you had success with non surgical treatment. Were you in similar pain when you started your treatment? Did you have an open bite fixed? I was told that an open bite fixed with braces will eventually come back bc the teeth want to be in the bone and braces will pull them away from the bone.
    I appreciate any advice.
    Hi, when I started treatment, I was in chronic pain honestly. Sleep, eating and day to day life was pretty painful due to headaches and muscle soreness around my lower neck area. Afterwards, I can honestly say I am in no pain whatsoever. No headaches, and good sleep. Interesting question. Yes I believe I did have an open bite, which was mostly caused by a thing called tongue thrust. Which is where when you swallow, the tongue hits the backs of the upper incisors (front teeth). In my case, the tongue thrust was corrected as part of my treatment using an ALF appliance with a tongue attachment, which trains the tongue to swallow normally (tongue hits area above the incisors when swallowing) Once the tongue thrust is fully corrected, then the effect of the braces is permanent, and an open bite will not reoccur. Another thing to remember is that teeth in adults are very unstable, they move around alot over the course of one's life. So once the retainer part of treatment has been completed, one should still wear their retainers at least once a week at night just to maintain teeth position. This will also assist in preventing an open bite reoccurence. Ultimately the open bite is mostly caused by tongue thrust and addressing this prevents it from reoccurring.
    You are doing well by seeking treatment, please steer clear of surgical procedures which are not necessary and are statistically unsuccessful.
    Those that have had them, hang in there until science finds some solutions (Won't be long, so enjoy life)

     
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